This Is MS Multiple Sclerosis Knowledge & Support Community

I just finished one month on Ampyra. No improvement at all.

Just wanted to post an observation about my experience with Cellcept. As noted above, I have been at full dose for a couple months now. Three weeks ago everyone in my house came down with the flu so my doctor instructed me to stop the Cellcept for a week. I did and immediately felt horrible, very we...

I have PPMS and have been on Cellcept for four and a half months now. I started with one 500mg tablet per day for the first month then increased one pill a day every month. I am now at full dose of four 500mg tablets per day. When I first started, I felt a dramatic improvement but it only lasted abo...

I faced the same exact problem back when I was still walking. The funny thing was that with it it was obvious I had a medical necessity and without it I just looked like a stumbling drunk. So, I looked better and was much safer. A person can spend more time worrying about how they will be perceived ...

Saw my Neurologist today. My PPMS is getting worse and he suggests that I try CellCept to lower my cell count. If that doesn't work he wants to try Rituxan. I am familiar with Rituxan but have never heard of CellCept until today. Any opinions or advice on this medication?

Very interesting Frank! I am going to pursue this.

How do I get in on this study?

Thanks Bob and Lisa. I have never even heard of cyclophosphamide (Revimmune) but will definitely check into it. Where can I get more info? A few weeks ago I flew to Miami, FL to see Dr. William Sheremata at the University of Miami in an attempt to be treated with Rituxan. I have not, however, been a...

Thanks to veryone for your words. I greatly appreciate it! Twisted, I'll answer your questions first. Nobody really supports me. It's not that I don't have access to these support services but I guess I am just hard headed. I want to do everything myself but I know it is unrealistic. My wife is my b...

Thank you Ally! What is Dignan? Can you elaborate?

Hello all. Just found this site. I have PPMS and was diagnosed 14 years ago. No real problems other than an annoying toe drag for the first 8 years then all let loose. I'm now at 8.0 on the EDSS and am full-time in a wheel chair. Can't move anything from the waist down and now it's spreading upward....