This Is MS Multiple Sclerosis Knowledge & Support Community

It's shameful to post this because a) MS is a serious disease and this has nothing to do with MS b) I gave up managing this thread c) It is, in a sense, political and this isn't really the place but I will anyway because a)I put a lot of effort into recording it and a little effort into making the v...

Thanks for the information Lars. So you have had both transfusions already? Do you mind me asking, how high do you yourself score on the EDSS?

Nearly miraculous results are very welcome, I must say.

Thanks again, it's great to receive this first hand insight!

Artemia wrote:Thank you guys for your replies.
I went to a GP and he ordered some tests but he is adamant that this cannot be MS.
I will keep you posted.

Pleased to hear it!

Well, I must be feeling a bit annoyed at having ms because I haven't looked at anything ms related on the internet for ages and ages. But it's very nice for this thread to be waiting for me. Thanks for compiling the list Dignan. I first heard about Lingo eight years ago when I was newly diagnosed an...

For weeks following a lumbar puncture which seemed to bring on a relapse, years ago, I had a high pitched buzzing. It disappeared without a trace eventually.

Throughout 2009-2010 I experienced intermittent, rumbling tinnitus in my left ear but it disappeared with my treatment for CCSVI winter 2010.

I'm afraid it could yes. It could be a sign of plenty of other things though I'm sure. A numb feeling of tightness around the waist is common, people with ms call it 'the ms hug.' If it is ms then it's a good thing because CCSVI testing and treatment will, as far as I know, cure it at this early sta...

Is open for you to add your comments

http://guidance.nice.org.uk/IP/891/DraftGuidance

The National Institute for Health and Clinical Excellence in the UK is holding a public consultation from the last week of August until the beginning of last week of September.

If anyone would like to participate then get in touch with Emma Chambers - emma.chambers@nice.org.uk

:)

Oh dear, I've really let this slip. I've put off updating this for weeks. The thing is that, these days, having had successful CCSVI treatment (although I am still in a bit of a state) and having ditched tizanidine (which was making me really depressed and pessimistic and having me really focus on ...

Oh dear, I've really let this slip. I've put off updating this for weeks. The thing is that, these days, having had successful CCSVI treatment (although I am still in a bit of a state) and having ditched tizanidine (which was making me really depressed and pessimistic and having me really focus on m...

9 month update for Nicki '9 month post CCSVI procedure' NSWatts781 (Nicki) before: 'Nicki Watts pre-CCSVI Liberation Treatment video 8/18/10' after: 'Nicki Watts post CCSVI Liberation Treatment video 8/26/10' 'DSCF0146.AVI' (One month update.) 'Nicki Watts 3 month post CCSVI angio video 11/16/10' '9...

Update from Mary:

'Post-CCSVI Venoplasty x 2'

The whole set:
MsMezzaa (Mary)
before:
'My Battle With MS - Which doesnt have ME by the way'
after:
'CCSVI UPDATE! and some other news'
'Post-CCSVI Venoplasty x 2'

This thread's great, I'm really enjoying it. I mean, especially since i had the procedure and, despite no real expectations beyond the hope that my illness might stop progressing, saw a myriad of benefits.

Just to let you all know that Tizanidine was very bad for me.. First I need to tell you a long, boring story about my recent depression. Around Christmas time 2009 I began to feel incredibly hopeless and gloomy. Until then I had never paid too much attention to my illness and I'd never let it bother...

Thanks PCakes. So, here's a few.. I have been away for a bit.. Lori, Randy and Sophie. lorimayb (Lori) before: 'walking with MS before CCSVI treatment.wmv' after: 'walking after ccsvi treatment.wmv' AZDoppler (Randy) before and after: 'Randy Chapman's CCSVI Journay.m4v' sophiekaris (Sophie) before: ...