Search found 90 matches

by jak7ham9
Mon Apr 04, 2011 4:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1812543

to wait or not to wait

Dear Dr. S Hi I had the procedure done by you last march patient 10 barbara with cutting balloon. I am quite sure I restenosed but after viewing so much questions and changes in the operation and how it is done I am wondering should I get it done again or should I wait. I feel my mobilility is somew...
by jak7ham9
Thu Mar 17, 2011 6:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: HyperBaric Oxygen Therapy good for CCSVI Patients?
Replies: 21
Views: 5917

in home hyperbariv

I have an in home hyperbaric with a oxygen condenser. It decreases spasticity and fatigue and removes cog fog . It doesn't last long term but you do feel and function better you just have to keep using it. My guess is that it is slowing progression stoping brain damage.. Also when I am finally compl...
by jak7ham9
Tue Jan 25, 2011 8:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dr. Dake's comments
Replies: 28
Views: 5115

Dear Scorpion

Hi Scorpion. I don't think it's bad to be skeptical. I had the operation last march was one of Sclafani first patients. I did not miracurlasly leap up and run sbout. but I will say that my walking especially upstairs was improved for about three weeks. My cognitive function were quick and lazer like...
by jak7ham9
Tue Jan 11, 2011 10:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: a role for post-procedure oxygenation?
Replies: 21
Views: 3952

hyperbaric

a good chamber cost about 15k with a good oxygen ststem and a high end condenser. I upgraded mine so i could get more oxygen at a pressure and a higher condensor atmospheric pressure. Again it is helpfl to me. Rather costly i believe a docs office chareges $150+ per session
by jak7ham9
Mon Jan 10, 2011 8:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: a role for post-procedure oxygenation?
Replies: 21
Views: 3952

hyperbaric chamber

For whats its worth I own a hyperbaric chamber. It works well at getting rid of cog fog memory loss and lessening spastisity. It is not a cure for ms but it let the brain still function. When I don't go in I am sluggish and feel like my brain is swiss cheese. I went in this 5am for 2 hours I got out...
by jak7ham9
Wed Dec 29, 2010 6:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani ASKS a question
Replies: 109
Views: 22434

faking it

wow rosegirl you are right about being deceitful. I am fabulous at getting myself there early sitting and looking like everything is peachy. not drinking anything so I don't have to pee. Yes we are very deceitful. But in our defense its no fun to be stared at ,laughed at, or pitied. We all want to d...
by jak7ham9
Wed Dec 29, 2010 6:19 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani ASKS a question
Replies: 109
Views: 22434

heat intolerance

The inability to sweat or handle heat. The feeling of being a limp noodle no energy or strength reduction in all ability to function above aprox 70 degrees. I mean its cold in my house because I actually can walk around a bit if I a make it warmer its wall walking again. The tightness of spasticity ...
by jak7ham9
Tue Dec 07, 2010 11:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Appointments at American Access Care
Replies: 185
Views: 38101

barbara 10th patient sclafani

Hi Holly I actually haven't heard back from you on rescheduling . I sent you a pm and phone number barbara
by jak7ham9
Mon Nov 15, 2010 10:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Rocky Mountain MS Center soliciting responses
Replies: 5
Views: 1884

oxygen and lack there of

Hi cheerleader yes I think experiment on lack of oxygen and high altitudes effect on ms are interesting I have a hyperbaric chamber which gives pure oxygen under increased pressure ( as in underwater low altitude) obviously it makes me feel much better and removes my cog fog issues).. i was operated...
by jak7ham9
Wed Oct 13, 2010 2:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1812543

restenosis cell proliferation

ok dr s. I know you are not hot to trot for stents but are the problems with them occluding caused by cell proliferation. Seems like ms folk have sticky veins(or sticky blood ) besides malformed veins. My humble opion a large dose of NAC (n-acetyl cysteine) taking continuously forever. this has been...
by jak7ham9
Mon Aug 23, 2010 5:04 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post if CCSVI treatment did NOT work for you
Replies: 339
Views: 169675

operation by sclafani late march improvements disappeared

Hi pkittle etal. I had surgery at very end of march by sclafani. Both jugs opened a couple times and cutting blade used.Tons of collateral like spaghetti. At that time they were not very good at imaging the azygous and blockages/stenoses were missed. Improvements at first easier going up stairs, cle...
by jak7ham9
Sun May 09, 2010 2:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1812543

hellu from barbara patient 10

Hi doctor.Ok here it is. When your neck starts to hurt again you rexperience problems. Even though I think we missed something else to begin with (inever got fully warm hands and feet) I deffinately had good improvements over the first month. Now my neck is starting to hurt again and when it does sy...
by jak7ham9
Tue Apr 20, 2010 4:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Negative Doppler test
Replies: 11
Views: 3689

dopplers don't work all that well

Ned...take heart dopplr are generally not performed correctly and even if they are the technicians don't reallyunderstand what they are looking at. sclafani who is great really considers venograms where they go up your veins and look around the only gold standard of ccsvi diagnosis. he sees discepan...
by jak7ham9
Fri Apr 16, 2010 4:50 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1812543

re purple feet and vsodialators

Dr Sclafani read your response to guy with purple feet and the gentleman who adores chiles(as a vasodialotor).. Ok I was your 10th librtation I think with the cutting balloon. I still have purple feet. But Iwill 100% tell you that niacin will alleveate those purple feet as well as large percentage o...
by jak7ham9
Mon Apr 12, 2010 3:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1812543

hi from barbara blonde patient first cutting balloon

Greetings Dr. Sclafani. Here I am at two weeks post surgery. I am seeing small improvements daily . But I desperately need a good script for physical therapy i think this is going to be highly important as you follow all your patients in your new research mode. It will also aid in the edss changes t...

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