Search found 18 matches

by robin50
Sun Jan 31, 2010 2:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Charité Berlin trial preliminary results?
Replies: 35
Views: 13366

it s realy funny, muse to talk with a nativ german, living in new zealand in an american board...ha as a now at edss 8 stable pp-ms er since several years, I can wait a bit, for better and hopefully clear results out of the buffalo researches and, as you mentioned, muse, other clinical trials are al...
by robin50
Sun Jan 31, 2010 12:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Charité Berlin trial preliminary results?
Replies: 35
Views: 13366

as i know, yannis

they did only mri testing, at charite in berlin....but at univ. jena and at frankfurt uni, they are also testing...but as i heard, on zambonis protocol...

will see, which results will come out buffalo study soon!?

Robin
by robin50
Sun Jan 31, 2010 12:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: february the 2nd = annbbe has the procedure!
Replies: 10
Views: 3002

hallo annbbe

whish you good luck and best greetings from your neighbur country...

watch all these libertion tests and- or operations with high interest...

again, my best regards !!!

Robin
by robin50
Mon Jan 25, 2010 5:56 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Prof. Reichenbach Germany
Replies: 4
Views: 3432

Is it possible to participate in the Frankfurt trial? Do you have an address? hello frodo...as you see, i m not ana 8) :lol: but if you "google" and look for "liberation treatment" you will find some worldwide adresses, like this in germany: Germany Prof. Juergen Reichenbach, Ph...
by robin50
Sun Jan 24, 2010 7:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI AND MS IN EUROPE
Replies: 13
Views: 4535

INONU, here you can read about doctors is Europe http://liberation-treatment.com/liberation-treatment/doctors there is also an ultrasound clinic, only for diagnosis in Slovenia Http://www.mc-sinigoj.si alex :D :D 8O - i cannot read what they wrote in slovenia...no alex... "our big european pro...
by robin50
Sun Jan 24, 2010 7:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI AND MS IN EUROPE
Replies: 13
Views: 4535

HELLO from germany

hello girls, i follow the discusions and the infos in the ccsvi board since beginning...well, the vistis to poland increase in the last months enormous and the therapy gets more and more expensive...some 100 people are still on the "waiting list" of dr simka...i myself have no interest, my...
by robin50
Wed Jul 02, 2008 10:08 pm
Forum: General Discussion
Topic: PPMS - does it always mean the patient will end up bedbound?
Replies: 12
Views: 5068

i m also 59 years "young" and my strict pp-ms startet appr. in 1985....it increased 15 years till 2000 nd STOPPED then!!! use power chairs and other aids for help, but life is still not bad for me! Know a meantime large no of other ms sick people...also with ppms, most of them are not SO B...
by robin50
Wed Jan 23, 2008 9:34 am
Forum: Introductions
Topic: Hello from London
Replies: 4
Views: 3014

hello simon

and "hallo london"

this is a "rather old man" from germany....21 years "more experienced" :wink: :lol:

robin (hood) 8)
by robin50
Sun Dec 16, 2007 11:22 pm
Forum: General Discussion
Topic: Fillings and MS
Replies: 50
Views: 15269

almost arround 10 years ago i read the "swedish study" about mercury in the central-nerve system, and everybody knows, that mercury is toxic! BUT: there was found no correlation between the ms and the mercury traces! (which where found) a number of dentists try to make only additional buss...
by robin50
Sat Dec 15, 2007 11:01 pm
Forum: General Discussion
Topic: Fillings and MS
Replies: 50
Views: 15269

AC PS...I believe mercury is one of many "invaders" the immune system recognizes as "other" and begins synapse shutdown. Don't think it's the only instigator, but one of many that break BBB- out of my experiences, you should NOT ASK a dentist about your amalgam fillings, of cour...
by robin50
Fri Dec 14, 2007 7:43 am
Forum: General Discussion
Topic: Fillings and MS
Replies: 50
Views: 15269

this "discussion" is NOT NEW

and also disc. in german boards!

my argument is:
THE RATE OF MS AMOUNG DENTISTS is N O T HIGHER than usually...so. save money and let it in your mouth!

ore replace ALL teeth with "the 3. ones" like me! :lol: 8O

robin
by robin50
Fri Dec 14, 2007 7:42 am
Forum: General Discussion
Topic: Fillings and MS
Replies: 50
Views: 15269

this "discussion" is NOT NEW

and also disc. in german boards!

my argument is:
THE RATE OF MS IST AMOUNG DENTISTS N O T HIGHER than usually...so. save money and let it in your mouth!

ore replace ALL teeth with "the 3. ones" like me! :lol: 8O

robin
by robin50
Fri Dec 14, 2007 7:41 am
Forum: General Discussion
Topic: Fillings and MS
Replies: 50
Views: 15269

this "discussion" is NOT NEW

and also disc. in german boards!

my argument is:
THE RATE OF MS IST AMOUNG DENTITS N O T HIGHER than usually...so. save money and let it in your mouth!

ore replace ALL teeth with "the 3. ones" like me! :lol: 8O

robin
by robin50
Wed Nov 28, 2007 7:48 am
Forum: Introductions
Topic: and also a german guy is watching.....
Replies: 8
Views: 3671

hi dom. you ask about my LDN "success"...well, i f got more force, my fatigue was gone, also the "heat sensibillity" was lower...i can move MYSELF from the wheelchair to the toillet...etc...but, it seems that it works different and one should test it.... a friend gave me appr. 30...
by robin50
Tue Nov 27, 2007 9:24 pm
Forum: Introductions
Topic: and also a german guy is watching.....
Replies: 8
Views: 3671

oh yes, marcia the ms starts slowly in 1985 and increased continuosly over the years. appr. 8-10% of all ms-ers have this prim. prog. form....but, in 2000 my ms stopped on a level of 8....something and in the meantime, i have some lowering of symptoms. stabel since some years!!! HOPEFULLY a kind of ...

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