Search found 20 matches

by lamom
Wed Jan 23, 2008 5:48 pm
Forum: General Discussion
Topic: my good news update!
Replies: 2
Views: 1989

my good news update!

Hi everybody- I feel terrible for just now posting this, but the doctor told me last friday that everything looked clear and I can take ms off of the table- as soon as I heard that I think I quit thinking about ms totally and felt like a load was taken off of me! My husband asked me last night if I'...
by lamom
Tue Jan 15, 2008 6:42 am
Forum: General Discussion
Topic: Yay!! I don't have MS...I think?!?
Replies: 21
Views: 7989

Wow- While I'm happy for you, that seems so horrible to have gone through the last 10 years thinking you have a life altering disease- And it seems scary to someone like me that they can misdiagnose someone for that long! I guess MS is just so unpredictable and hard to diagnose? I think I would be c...
by lamom
Tue Jan 15, 2008 6:39 am
Forum: General Discussion
Topic: lp results- no o bands and question about albumin and IgA
Replies: 18
Views: 7241

thanks AC- I should have updated yesterday that the neurologist's office called and rescheduled me for friday- so, a few more days for me!
by lamom
Sun Jan 13, 2008 7:00 pm
Forum: General Discussion
Topic: lp results- no o bands and question about albumin and IgA
Replies: 18
Views: 7241

Well- it is comforting to see that only 5-10% don't have o bands- I go in tomorrow morning so I'll post at some point on what he says. I feel pretty good about it. The only thing that's hanging in the back of my mind are two episodes I had over the last 6 years- they both involved a severe chest tig...
by lamom
Sun Jan 13, 2008 6:53 pm
Forum: General Discussion
Topic: Anyone out there with their Brainstem affected by MS?
Replies: 9
Views: 4212

Re: Dizzyness and ringing in the ears

lamom, the symptoms you mention The symptoms that brought me to the nuero were dizziness and ringing in the ear- seem quite commonly associated with other problems. For example, were you checked for sinus problems--sinus infection or sinusitis? Yes- I'd been seeing an ent for over a year when he ra...
by lamom
Sat Jan 12, 2008 6:38 pm
Forum: General Discussion
Topic: Anyone out there with their Brainstem affected by MS?
Replies: 9
Views: 4212

what is considered a large lesion btw? I can't ever seem to get a good answer- nuero described my 1 cm lesion as "a tiny spot"...
by lamom
Sat Jan 12, 2008 6:36 pm
Forum: General Discussion
Topic: Anyone out there with their Brainstem affected by MS?
Replies: 9
Views: 4212

I don't have a diagnosis, but do have a one cm lesion on my brainstem- midline of the midbrain I believe. The symptoms that brought me to the nuero were dizziness and ringing in the ear-
by lamom
Sat Jan 12, 2008 6:13 pm
Forum: General Discussion
Topic: lp results- no o bands and question about albumin and IgA
Replies: 18
Views: 7241

really coo? didn't you have a lot of lesions? I can't remember what your spinal mri said, but I guess with only one known flare they wait? I have NO idea what to expect at the dr's tomorrow- not nervous about it all anymore and I'll save any anxiety for an actual diagnosis I suppose- this is still a...
by lamom
Thu Jan 10, 2008 8:42 am
Forum: General Discussion
Topic: lp results- no o bands and question about albumin and IgA
Replies: 18
Views: 7241

lp results- no o bands and question about albumin and IgA

I went and picked up my lab results yesterday but am not seeing the dr until monday and wanted to see if anyone knew anything about this- I was releived to see there were no o-bands- is this pretty much a definite as to no ms? I know some people with ms don't have them, but it's a low percentage, ri...
by lamom
Thu Jan 03, 2008 6:32 am
Forum: General Discussion
Topic: New and not diagnosed, lumbar puncture question
Replies: 47
Views: 13231

yea- I pretty much stayed flat for 24 hours- all day and night. and was fine-
by lamom
Wed Jan 02, 2008 2:34 pm
Forum: General Discussion
Topic: New and not diagnosed, lumbar puncture question
Replies: 47
Views: 13231

thanks for the response- I did have the procedure last friday and it was no big deal at all for me-

I'm so sorry your daughter had to endure that headache, possibly unnecessarily- that's a shame. I hope she's better-
by lamom
Tue Jan 01, 2008 6:49 pm
Forum: General Discussion
Topic: toes tingling and numbness
Replies: 2
Views: 9148

thanks loobie- I like the 4 day rule- so many things come and go!

who knows- hopefully I'll hear something from the neuro tomorrow because this waiting is for the birds-

I'd like to know one way or the other so I can think about something else!

thanks again!
by lamom
Sun Dec 30, 2007 9:46 am
Forum: General Discussion
Topic: toes tingling and numbness
Replies: 2
Views: 9148

toes tingling and numbness

Hi there- it's me again! still recovering from the lp- doing fine with no headache, just a little sore back. For the last few days my toes on my left foot have been feeling like there is a hair or something wrapped around them- mostly the big toe. I get a little in the right toes- then yesterday, my...
by lamom
Fri Dec 28, 2007 5:21 pm
Forum: General Discussion
Topic: New and not diagnosed, lumbar puncture question
Replies: 47
Views: 13231

just an update for anyone who might be looking up information for a future lp- it was LITERALLY painless. PAINLESS. It was done under xray- and my after the teensy stick from the numbing stuff- I did not feel anything. I was laying face down on the table talking to my husband- I was a little loopy f...
by lamom
Fri Dec 28, 2007 5:19 am
Forum: General Discussion
Topic: New and not diagnosed, lumbar puncture question
Replies: 47
Views: 13231

aw- I feel for you! I had several days to prepare for the lp- and feel much better about it, but if it was a sudden thing I know I'd be more anxious. Good luck this morning- I'm going in in about two hours to have it done too. It's going to be fine- I've had the epidural which apparently uses a bigg...

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