Search found 37 matches

by cas
Wed Dec 06, 2017 7:43 pm
Forum: General Discussion
Topic: getting a mammogram
Replies: 2
Views: 543

Re: getting a mammogram

When I called to schedule I told them my husband would come to help. When I got there the tech said the scheduler was wrong. She gave me a number to call. I haven't called. Have you had a mammogram in an accessible machine?
by cas
Sun Dec 03, 2017 12:29 pm
Forum: General Discussion
Topic: getting a mammogram
Replies: 2
Views: 543

getting a mammogram

I am in a wheelchair (technically a power chair). Has anyone had a mammogram with an accessible mammography machine?
by cas
Mon Feb 06, 2017 2:14 pm
Forum: Friends and Family
Topic: no more-there's nothing left
Replies: 6
Views: 2734

Re: no more-there's nothing left

" I feel I have no options" I know you feel that you have no options, many of us have felt this way, but what most of us find is that there are ALWAYS options if you want them. Are you looking for advice/options or just to vent? I guess looking for options but I can't imagine you have anything to s...
by cas
Thu Feb 02, 2017 12:47 pm
Forum: Friends and Family
Topic: no more-there's nothing left
Replies: 6
Views: 2734

no more-there's nothing left

I am so weak. I can hardly get to the bathroom. I use a wheel chair outside apartment. Diagnosed 20 years ago. I feel I have no options. My left side is practically useless. I have bad drop foot and fingers curl. I can hardly hold a fork. I can only imagine what it must sound like to my SUPPORTIVE s...
by cas
Thu Feb 02, 2017 12:06 pm
Forum: Exercise and Physical Therapy
Topic: physical therapist in your home
Replies: 4
Views: 2259

Re: physical therapist in your home

For some reason my notification setting was off - sorry for delay. I am not wanting to go the insurance route in getting a pt. I have done that several times. They mostly have been rude or give the impression that there is no hope. They look at me and ask if I have a shower seat. I am looking to hir...
by cas
Wed Jan 25, 2017 1:36 pm
Forum: Exercise and Physical Therapy
Topic: physical therapist in your home
Replies: 4
Views: 2259

physical therapist in your home

Does anyone have a physical therapist that comes to your home on a regular basis? I can't go to a facility on a regular basis. I only have my husband to rely on and he can't keep missing work like that. Explaining that to doctors is like speaking a foreign language. I can't be unique in that departm...
by cas
Tue Jun 07, 2016 10:02 am
Forum: Daily Life
Topic: anyone like me?
Replies: 4
Views: 2602

anyone like me?

It has been almost two decades. Drugs, no drugs and drugs again. Therapy, therapy and more therapy. Drop foot and though FES gave me hope at one time is helping just a bit. Still better than nothing. Left side of body weak. Hand strength weak. Hands always cold. Fingerless gloves everywhere. Can't c...
by cas
Sat Apr 23, 2016 11:23 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: week without Tecfidera
Replies: 2
Views: 2509

Re: week without Tecfidera

Thanks for getting back. I called my doctor on Friday but they already left for the day. I left a message and no one as yet has returned my call. I called the Biogen support line and they advised me to call my doctor's office too.
by cas
Fri Apr 22, 2016 10:04 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: week without Tecfidera
Replies: 2
Views: 2509

week without Tecfidera

I missed a week of dosages. Do I have to start from the beginning on the starter pack?
by cas
Thu Mar 31, 2016 1:02 pm
Forum: Drug Pipeline
Topic: baclofen
Replies: 5
Views: 2204

Re: baclofen

Hi, I do. My feeling is they give you the wrong advice on how to use it. Initially I was told to start at 5mg in the morning then go to 5mg morning at night then go to 10mg and 5mg then 10mg morning and night and then possibly add more. All I could manage was 5mg at night for the first few months. ...
by cas
Wed Mar 30, 2016 12:45 pm
Forum: Drug Pipeline
Topic: baclofen
Replies: 5
Views: 2204

baclofen

Does anyone take a low dose of baclofen? I wake up and I'm stiff as a board.
by cas
Wed Mar 02, 2016 1:44 pm
Forum: General Discussion
Topic: mobility store to try out different gizmos??
Replies: 1
Views: 703

mobility store to try out different gizmos??

Does anyone know of a store to try out different scooters or power chairs? I feel like the only way to see if I really like a scooter is to chance it and just buy it. I have one that is collecting dust and taking up valuable space in a closet despite reading tons of reviews.
by cas
Tue Sep 22, 2015 2:20 pm
Forum: General Discussion
Topic: circulation?
Replies: 0
Views: 840

circulation?

My hands (especially left) are always cold. I have had numerous episodes of Raynaud. My feet usually get cold at bedtime. I never know what type of pajamas to wear. In bed I'm afraid to move because that is likely to trigger something urging me to pee. It is difficult getting to the bathroom with a ...
by cas
Tue Jun 09, 2015 6:01 pm
Forum: General Discussion
Topic: toilet
Replies: 6
Views: 738

Re: toilet

Have you tried Baclofen? It's a muscle relaxant that helps with muscle spasms. Yes, I have tried Baclofen. Once at least ten years ago. It made me too sluggish. Having forgot the first time, I tried it about a year ago but this time the dosage was much higher. And again, I was very sluggish. And I ...
by cas
Tue Jun 09, 2015 3:53 pm
Forum: General Discussion
Topic: toilet
Replies: 6
Views: 738

Re: toilet

Hi, As you exercise I presume you are mobile to some degree. What medications do you take and can you give us some background information on your symptoms? I think we all know what your feeling but there are strategies to look at. Regards I am mobile but rely on walkers, scooters, etc. Meds are Nif...