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by DIM
Tue Mar 02, 2021 3:53 pm
Forum: General Discussion
Topic: Ultimate outcome, expectation VS reality!
Replies: 24
Views: 538

Re: Ultimate outcome, expectation VS reality!

Wife's EBV blood tests revealed that the virus was recently activated (acute or past) although she had no symptoms, so there is connection for sure with MS:
negative IgM VCA, Positive IgG VCA, negative IgG EBNA
by DIM
Mon Mar 01, 2021 3:04 pm
Forum: General Discussion
Topic: Ultimate outcome, expectation VS reality!
Replies: 24
Views: 538

Re: Ultimate outcome, expectation VS reality!

Thanks NHE, interesting that is the only drug which reduces disability in PPMS/SPMS, all DMTs reduce severity or symptoms or both but they don't stop disability except probably the Anti Lingo / DITPA that increase remyelination. May I ask those that take Valacyclovir, why 2X500mg caps per day, it se...
by DIM
Sun Feb 28, 2021 2:56 pm
Forum: General Discussion
Topic: Ultimate outcome, expectation VS reality!
Replies: 24
Views: 538

Re: Ultimate outcome, expectation VS reality!

This is a very good article about EBV including treatment with vitamins, supplements and natural extracts. Interesting that except Artesunate which is synthetic Artemisin extract analog (with antimalarian and anticancer properties) all other mentioned supplements, are recognized and helpful in MS. h...
by DIM
Wed Feb 24, 2021 10:56 pm
Forum: General Discussion
Topic: Ultimate outcome, expectation VS reality!
Replies: 24
Views: 538

Re: Ultimate outcome, expectation VS reality!

Hi, This is the most recent large scale study on EBV and MS. They had to use three different methods to be sure. What it showed, apart from 100% EBV infection in MS, is not every test gives the result that shows infection but an alternative valid test will. https://jnnp.bmj.com/content/jnnp/91/7/68...
by DIM
Wed Feb 24, 2021 6:09 am
Forum: General Discussion
Topic: Ultimate outcome, expectation VS reality!
Replies: 24
Views: 538

Re: Ultimate outcome, expectation VS reality!

Ok then,today she had an EBV blood test for IgG IgM VCA & IgG EA that will show if she had recently active or dormant the virus
by DIM
Wed Feb 24, 2021 3:28 am
Forum: General Discussion
Topic: Ultimate outcome, expectation VS reality!
Replies: 24
Views: 538

Re: Ultimate outcome, expectation VS reality!

Hi, wife has had herxheimer reaction the first 2-3 weeks on LDN/supplements that went away and she felt much better the next months. I don't remember when exactly, but she has had white tongue and mouth patches for sure before and during her first relapses. Last years never again as far as I know/re...
by DIM
Tue Feb 23, 2021 4:18 am
Forum: General Discussion
Topic: Ultimate outcome, expectation VS reality!
Replies: 24
Views: 538

Re: Ultimate outcome, expectation VS reality!

Hi Scott, and thanks again for your valuable suggestions, I tried to send you personal message but it is stuck in the outbox, don't know why! Anyway I discussed yesterday with my wife your case - the valacyclovir treatment - but she is negative generally about medicines, mainly due to long term use ...
by DIM
Mon Feb 22, 2021 9:12 am
Forum: General Discussion
Topic: Ultimate outcome, expectation VS reality!
Replies: 24
Views: 538

Re: Ultimate outcome, expectation VS reality!

She takes 3 days X 400mg magnesium per week, 3 X 400mcg methyl folate (B-complex supplement) plus we eat twice per week buffalo liver and the mineral water we drink has high magnesium content at 80mg/lt! But her blood test never showed low magnesium or folic acid, her B12 last time was slightly abov...
by DIM
Mon Feb 22, 2021 5:07 am
Forum: General Discussion
Topic: Ultimate outcome, expectation VS reality!
Replies: 24
Views: 538

Re: Ultimate outcome, expectation VS reality!

I have never had a problem taking valacyclovir. Many years ago I mentioned it on this forum and a couple of people tried it. Some didn't like it and I don't know why. I was suspicious that it may have related to the very high doses of vitamin D they all favored and there may have been a contraindic...
by DIM
Mon Feb 22, 2021 4:07 am
Forum: General Discussion
Topic: Ultimate outcome, expectation VS reality!
Replies: 24
Views: 538

Re: Ultimate outcome, expectation VS reality!

Thanks again for the explanations, forgot to ask you Scott, did you fully recover from your last attack in 2014?
by DIM
Mon Feb 22, 2021 2:43 am
Forum: General Discussion
Topic: Ultimate outcome, expectation VS reality!
Replies: 24
Views: 538

Re: Ultimate outcome, expectation VS reality!

Thank you Scott for your response! Out neurologist has retired before two years so a cousine neurologist that lives away follow her remotely all this time and during this exacerbation. Wife hasn't an MRI after this relapse, she had annualy the first few years and every two years later, we are going ...
by DIM
Sun Feb 21, 2021 9:55 am
Forum: General Discussion
Topic: Ultimate outcome, expectation VS reality!
Replies: 24
Views: 538

Ultimate outcome, expectation VS reality!

Long time member in the community but I have years to post. To cut a long story short my wife has RRMS since 2006 with a lot of relapses the first 2-3 months that left her some numbness here and there, some fatigue after 3-4Kms of walking or when doing hard works, and minor balance issues. Her annua...
by DIM
Sun Oct 07, 2012 9:54 pm
Forum: General Discussion
Topic: Infertility treatments may significantly increase MS
Replies: 19
Views: 3931

Re: Infertility treatments may significantly increase MS

Yes I was hospitalised for 10 days with severe OHSS (kidney's shut down etc) it was that March following the December IVF nightmare that I relapsed Biggest amount of damage on brain. Thankfully recovering from that relapse x I was on blood thinners prior to and during IVF but they didn't stop the r...
by DIM
Thu Oct 04, 2012 9:45 am
Forum: General Discussion
Topic: Infertility treatments may significantly increase MS
Replies: 19
Views: 3931

Re: Infertility treatments may significantly increase MS

Nice to see you too Cheer, wife is stable and in absolute remmision last few years, as you can read we changed some supplements in her regimen but she continues on LDN-regimen-diet-training. Back to our point yes there aren't researches for the above regarding IVF but al of those decrease permeabili...

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