This Is MS Multiple Sclerosis Knowledge & Support Community

Thanks a lot for your answers.
All the best

Hi, I'm living in France. I'm father of 3 children born in 1988, 1990 and 1995. I'm 56. I have got MS in 2001. I'm now SPMS One of my daughters is stressed to have MS and she finds every month a new (imaginery ?) symptom. Have you heard some cases of hereditary MS from a father to her daughter ? Tha...

Is there any kind of invitation or register procedure or official poster to give to interested people ?
Thanks

Dr Sclafani, i coming back with more informations. I made in France several exams with following conclusions : Doppler protocol Zamboni : Diagnose CCSVI with two criterias : Left jugular internal: no flow and refluxes in valsalva, but no stricture Left jugular right : high flowrate Vertebral left : ...

All i see at that link is a single image of an MRvenogram. It does not show much of interest and does not visualize the more essential area where most of the stenoses occur so it is not possible for me to advise you since i do not have sufficient informoation to help you. Neither the clinical infor...

What is the state of Doppler ultrasound in france? Are there centers that state that they perform the Zamboni protocol. I look forward to hearing more about the state of ccsvi in france. perhaps then I can give you an opinion. best s Dr Sclafani, thank you for your answer. In France, as I know, onl...

Dear Dr Sclafani, I'm living in France. I would like to get your opinion on my CCSVI. Please find here a picture : http://ivcc.fr/images/ccsvi_jcm.jpg One doctor said I maybe have a TOS Another didn't want to make the liberation treatment, because too risky, my stenosed vein was due to a congenital ...

Dear Doctor, thanks for these informations. I understand a little bit better my problems. I forgot to tell about an other symptom : Very rarely, when I am lying and I am making an effort to stretch a leg, I have a pain, which disappears quickly on the back of my skull, as if the pressure increased a...

Dear Dr Flanagan, many thanks for your reply. I don't know what to tell you more about my symptoms .. For several weeks, I have the feeling to sleep more and more twisted. I have difficulty extending the fingers of my left hand, but remain flexible. My feet are cold and insensitive. Find here my sca...

NINOU, what are your signs and symptoms? Do you get migraine-like headaches? How is your balance? What other tests have been done? I don't have any migraine. No problem of balance, but I can't stand up alone. My left arm is very weak, I can not lift it alone over 45 °. Disappearance of the pulse wi...

Dear Doctor, I would like to know what you think about this MRI : http://ivcc.fr/images/ccsvi_jcm.jpg. I'm 50 with a secondary progressive MS , edss from 2 to 7 in 5 years. One doctor has detected a Thoracic Outlet Syndrom. What is it possible to do ? liberation treatment ? surgery ? Other ? I'm liv...

Thanks a lot. do you the date of this article and studies ? Mid April 2008 ? Italian clinical trial of LDN and PP-MS: http://www.unitedspinal.org/publications/action/2008/02/25/multicenter-clinical-trials-of-ldn-for-ms/ More details will be published in the mid of April in Chicago (at the 60th annua...

Can we try it in France ?

I have a progressive MS and I 'm really sad when french neuros said to me Tysabri is not for you.
Is there anboby treated with Tysabri and having progressive form ?

Help !

Hello everybody ! I'm living in France and I have a primary progressive form of MS. I would to know if anyboby on this forum has used LDN with a progressive MS. It's very difficult to get a such information on the french forum. I already have tried all treatments like betaferon, endoxan and mitoxant...