Search found 15 matches

by NINOU
Fri Apr 15, 2016 7:52 am
Forum: General Discussion
Topic: MS hereditary from father to children ?
Replies: 6
Views: 1971

Re: MS hereditary from father to children ?

Thanks a lot for your answers.
All the best
by NINOU
Wed Apr 13, 2016 8:38 am
Forum: General Discussion
Topic: MS hereditary from father to children ?
Replies: 6
Views: 1971

MS hereditary from father to children ?

Hi, I'm living in France. I'm father of 3 children born in 1988, 1990 and 1995. I'm 56. I have got MS in 2001. I'm now SPMS One of my daughters is stressed to have MS and she finds every month a new (imaginery ?) symptom. Have you heard some cases of hereditary MS from a father to her daughter ? Tha...
by NINOU
Sat Apr 30, 2011 11:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 2nd Annual CCSVI Symposium in NYC July 15-17
Replies: 158
Views: 25103

Is there any kind of invitation or register procedure or official poster to give to interested people ?
Thanks
by NINOU
Fri Jan 28, 2011 1:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1717260

Dr Sclafani, i coming back with more informations. I made in France several exams with following conclusions : Doppler protocol Zamboni : Diagnose CCSVI with two criterias : Left jugular internal: no flow and refluxes in valsalva, but no stricture Left jugular right : high flowrate Vertebral left : ...
by NINOU
Wed Nov 03, 2010 1:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1717260

All i see at that link is a single image of an MRvenogram. It does not show much of interest and does not visualize the more essential area where most of the stenoses occur so it is not possible for me to advise you since i do not have sufficient informoation to help you. Neither the clinical infor...
by NINOU
Mon Nov 01, 2010 12:49 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1717260

In France

What is the state of Doppler ultrasound in france? Are there centers that state that they perform the Zamboni protocol. I look forward to hearing more about the state of ccsvi in france. perhaps then I can give you an opinion. best s Dr Sclafani, thank you for your answer. In France, as I know, onl...
by NINOU
Sun Oct 31, 2010 5:17 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1717260

Dear Dr Sclafani, I'm living in France. I would like to get your opinion on my CCSVI. Please find here a picture : http://ivcc.fr/images/ccsvi_jcm.jpg One doctor said I maybe have a TOS Another didn't want to make the liberation treatment, because too risky, my stenosed vein was due to a congenital ...
by NINOU
Wed Oct 20, 2010 1:19 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 559082

Dear Doctor, thanks for these informations. I understand a little bit better my problems. I forgot to tell about an other symptom : Very rarely, when I am lying and I am making an effort to stretch a leg, I have a pain, which disappears quickly on the back of my skull, as if the pressure increased a...
by NINOU
Tue Oct 19, 2010 12:59 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 559082

Dear Dr Flanagan, many thanks for your reply. I don't know what to tell you more about my symptoms .. For several weeks, I have the feeling to sleep more and more twisted. I have difficulty extending the fingers of my left hand, but remain flexible. My feet are cold and insensitive. Find here my sca...
by NINOU
Tue Oct 19, 2010 5:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 559082

CCSVI - CTOS

NINOU, what are your signs and symptoms? Do you get migraine-like headaches? How is your balance? What other tests have been done? I don't have any migraine. No problem of balance, but I can't stand up alone. My left arm is very weak, I can not lift it alone over 45 °. Disappearance of the pulse wi...
by NINOU
Mon Oct 18, 2010 12:52 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 559082

TOS & CCSVI

Dear Doctor, I would like to know what you think about this MRI : http://ivcc.fr/images/ccsvi_jcm.jpg. I'm 50 with a secondary progressive MS , edss from 2 to 7 in 5 years. One doctor has detected a Thoracic Outlet Syndrom. What is it possible to do ? liberation treatment ? surgery ? Other ? I'm liv...
by NINOU
Sun Mar 30, 2008 12:26 am
Forum: Low Dose Naltrexone
Topic: LDN and primary progressive MS
Replies: 9
Views: 7819

Multicenter Clinical Trials of LDN for MS

Thanks a lot. do you the date of this article and studies ? Mid April 2008 ? Italian clinical trial of LDN and PP-MS: http://www.unitedspinal.org/publications/action/2008/02/25/multicenter-clinical-trials-of-ldn-for-ms/ More details will be published in the mid of April in Chicago (at the 60th annua...
by NINOU
Sun Mar 16, 2008 2:08 pm
Forum: Aimspro
Topic: Aimspro in France ?
Replies: 0
Views: 6087

Aimspro in France ?

Can we try it in France ?
by NINOU
Sun Mar 16, 2008 2:05 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Tysabri and progressive MS
Replies: 8
Views: 4377

Tysabri and progressive MS

I have a progressive MS and I 'm really sad when french neuros said to me Tysabri is not for you.
Is there anboby treated with Tysabri and having progressive form ?

Help !
by NINOU
Tue Mar 11, 2008 1:10 pm
Forum: Low Dose Naltrexone
Topic: LDN and primary progressive MS
Replies: 9
Views: 7819

LDN and primary progressive MS

Hello everybody ! I'm living in France and I have a primary progressive form of MS. I would to know if anyboby on this forum has used LDN with a progressive MS. It's very difficult to get a such information on the french forum. I already have tried all treatments like betaferon, endoxan and mitoxant...

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