Search found 35 matches

by turbotaguy
Sat Aug 30, 2014 12:09 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Tecfidera - cold and flu - Anyone getting sick more?
Replies: 12
Views: 11646

Re: Tecfidera - cold and flu - Anyone getting sick more?

Here I am again! I've had a "cold" for the past 6 weeks. My body just can't seem to fight a cold once it comes on. It turned into a sinus infection and I'm on steroids and a second course of antibiotics. It's just not letting up. I know that reduced white blood cell count is a side effect of Tech. I...
by turbotaguy
Fri Feb 14, 2014 12:24 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Tecfidera - cold and flu - Anyone getting sick more?
Replies: 12
Views: 11646

Re: Tecfidera - cold and flu - Anyone getting sick more?

I am the original poster in this thread. I finally got over my 5 week long cold / sinus thing on 1/2/14. I felt fine until a couple of days ago. Now I have a full blown cold again and it's only 2/14/14. I am so careful about germs, colds, washing my hands, etc. I am almost a fanatic according to my ...
by turbotaguy
Thu Dec 26, 2013 2:03 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Tecfidera - cold and flu - Anyone getting sick more?
Replies: 12
Views: 11646

Re: Tecfidera - cold and flu - Anyone getting sick more?

Yes, my neuro did a full CBC and everything was normal including the white blood cell count. Mine was squarely in the healthy section of 7.5. Getting a cold for me is horrible. It almost always turns into a sinus infection no matter how careful I am using Neti pot, etc. Plus MS gets very active duri...
by turbotaguy
Wed Dec 25, 2013 9:06 pm
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Tecfidera - cold and flu - Anyone getting sick more?
Replies: 12
Views: 11646

Tecfidera - cold and flu - Anyone getting sick more?

I was on Tysabri for several years. In September I moved to Tecfidera. I think I have been on it for 3.5 months or so. The stomach issues stopped after the first few weeks, but the flushing happens every time like clockwork. I have gotten used to that as well as much as I can. My question is, has an...
by turbotaguy
Tue Oct 01, 2013 6:55 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: Side effects
Replies: 184
Views: 85761

Re: Side effects

I started Tecfidera 2 weeks ago. I have had a lot of flushing and redness, a bit of itching. I also have had a bit of nausea and stomach upset but not as bad as many others. It's funny that the redness and flushing happens within the hour then goes away. It comes back when I eat lunch which is weird...
by turbotaguy
Sat Dec 22, 2012 11:56 am
Forum: Tecfidera (BG-12, dimethyl fumarate)
Topic: wash out period.
Replies: 8
Views: 4268

Re: wash out period.

My neuro and I discussed switching from Ty to BG-12 in the spring. She recommended a 2 month wash out period. Basically, missing 1 month of Ty. (i.e. last infusion May 1st, no June 1st infusion, start BG12 on July 1st).
by turbotaguy
Sat Jan 28, 2012 4:15 am
Forum: General Discussion
Topic: did anything cause your MS?
Replies: 36
Views: 3462

Re: did anything cause your MS?

My first flair up that landed me in the hospital and led to my diagnosis 5 years ago came about 2 weeks after using Chantix to quit smoking. I don't think Chantix causes MS, but I do think it turned it on. If you google Chantix and MS you will see that I am not alone. Many folks started having MS sy...
by turbotaguy
Thu Oct 21, 2010 11:39 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: Does anyone know of a way off tysabri without rebound
Replies: 7
Views: 2985

Pink - you need to make these decisions for yourself. Your doctor simply saying NO is invalid. You may need another doctor. I always begin to question a docs opinion that is too verbal. I left Tysabri a year ago. I barely had any rebound. I'm now on Copaxone and doing great, except now I don't have ...
by turbotaguy
Mon Oct 18, 2010 4:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Post CCSVI dreaming and emotional stuff
Replies: 3
Views: 1543

Post CCSVI dreaming and emotional stuff

I had my liberation procedure nearly 3 weeks ago. Everything went fine, both jugs were ballooned (one was 45% narrowed, other was 20%) and the azygos (sp?) was fine, but "tortuous" as they said. Many of my symptons have improved (walking, coordination, etc) but other have remained (dizziness, fatigu...
by turbotaguy
Sun Oct 03, 2010 2:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Turbotaguy HAS BEEN LIBERATED!!
Replies: 18
Views: 3352

One more comment on my experience - We are all on edge about CCSVI and getting the procedure done. I myself have been trying to get it done since last year. When it finally came time to get the venogram and the angioplasty it was extremely routine. Boringly routine if you know what I mean. Also, the...
by turbotaguy
Sat Oct 02, 2010 5:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Turbotaguy HAS BEEN LIBERATED!!
Replies: 18
Views: 3352

LOL...I'm not sure why they did the shaving in the O.R. It was quick with an electric, I guess I didn't give it much thought. I still feel great. I spent the last couple of days hanging out in NYC visiting friends. I walked the town yesterday all day and all night. I had great energy and feel really...
by turbotaguy
Wed Sep 29, 2010 2:35 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Turbotaguy HAS BEEN LIBERATED!!
Replies: 18
Views: 3352

The procedure is done and I am back in my hotel room. Here is a quick run down of what happened today. I know many have posted, but I'd like to share in case it can help someone: My procedure was scheduled at 1pm today. I was told to get to the hospital at 12:00 for check in. I got there right on ti...
by turbotaguy
Wed Sep 29, 2010 6:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Turbotaguy HAS BEEN LIBERATED!!
Replies: 18
Views: 3352

I'm in my hotel room getting ready to leave for the hospital in an hour or so. I am so nervous and excited I can't really even think. Here are my current MS symptoms as I sit here today: Dizzy - always there Buzzing sound and feeling - always there Slight balance issues - comes and goes Brain fog - ...
by turbotaguy
Tue Sep 28, 2010 7:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Turbotaguy HAS BEEN LIBERATED!!
Replies: 18
Views: 3352

Turbotaguy HAS BEEN LIBERATED!!

After a long long wait my liberation appointment date has arrived. My procedure is tomorrow at noon. I am in my hotel room now trying to relax, thinking about what will happen tomorrow. Thanks to everyone who has done this before me and written up their experience. Based on reading tons of posts I h...
by turbotaguy
Fri Sep 17, 2010 4:48 am
Forum: General Discussion
Topic: Anyone live in the Czech Republic? I have some questions...
Replies: 0
Views: 1029

Anyone live in the Czech Republic? I have some questions...

Does anyone on this forum live in the Czech Republic? I am considering doing a 6 month work assignment there and I have some very specific questions. Anyone?