Search found 219 matches

by Nenu
Sun Nov 22, 2009 12:13 am
Forum: Medical Marijuana
Topic: THE EXPERIENCE OF PATIENTS WITH MARIJUANA
Replies: 66
Views: 10162

I've been on Cesamet (Nabilone) for several months now. It works for the most part, but it's costly. Not nearly as costly as the Sativex that I was originally prescribed (that my insurance flat out refused to cover). I do find that the Cesamet (synthetic THC, in capsules) isn't even close to as effe...
by Nenu
Sun Nov 22, 2009 12:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Canadian Documentary ????!!!!
Replies: 152
Views: 28679

I haven't been on here in a long time (hi all!), I've been off DMDs for nearly a year now and eating a Swank-type diet for 1.5 years, been in remission too thankfully! :) I watched the w5 show, and I'm so hopeful about this treatment. It just makes entirely too much sense, which would take me hours ...
by Nenu
Tue Jul 15, 2008 7:18 pm
Forum: General Discussion
Topic: Miscarriage
Replies: 9
Views: 2292

Hugs Punchy. Sorry to hear about this.
by Nenu
Tue Jul 01, 2008 8:29 am
Forum: Copaxone
Topic: 1 large bump for 24 hours on 1 injection site
Replies: 3
Views: 2520

Well, I learned my trick that helps.

Pressing with the cotton ball for 30 seconds after injection. No more gigantic bump afterwards!
by Nenu
Tue Jul 01, 2008 8:28 am
Forum: General Discussion
Topic: caffeine
Replies: 28
Views: 6011

I don't know about preventing it, seeing as how I've drank coffee since I was 10 years old, and at 31 dx'ed with MS.

I have lived off the stuff since around the age of 19, prior to that I had maybe 1 every 2 days or so.
by Nenu
Wed Jun 25, 2008 8:33 pm
Forum: General Discussion
Topic: I've been copaxoned!
Replies: 5
Views: 1835

Whole day? Ouch! I have never had that happen for that long personally.

I always make sure the area is super dry after the alcohol wipe too, that reduces the stinging a bit :)
by Nenu
Mon Jun 23, 2008 5:14 pm
Forum: General Discussion
Topic: I'm Pregnant!
Replies: 19
Views: 4456

Congrats! :)
by Nenu
Mon Jun 23, 2008 9:30 am
Forum: General Discussion
Topic: I've been copaxoned!
Replies: 5
Views: 1835

Good stuff! One tip that I found is really helpful (not sure if the nurse showed you) is to press with the cotton ball on the injection site for 30 seconds after the injection. It reduced my welts that I was getting from injecting drastically, so I do this every time now :)
by Nenu
Mon Jun 23, 2008 9:27 am
Forum: General Discussion
Topic: MS Difficult to Spot for Many Physicians
Replies: 1
Views: 1762

Well, to be fair, this isn't surprising. MS can mimic so many different conditions, and so many different conditions can mimic MS. MS is not a diagnosis or suspicion that GPs are probably wanting to jump on.
by Nenu
Sat Jun 21, 2008 7:52 am
Forum: General Discussion
Topic: Chances of me getting MS?
Replies: 13
Views: 5291

I'd say slim to none at this stage. If you develop symptoms of neurological nature, and have been checked out and a doctor can find no other explainable cause for the symptoms, and these symptoms last for a decent period of time (sudden onset not to be dismissed), then it may be time to explore neur...
by Nenu
Fri Jun 20, 2008 10:25 am
Forum: General Discussion
Topic: Pictures
Replies: 599
Views: 83871

That really is a beautiful picture. God bless.
by Nenu
Fri Jun 13, 2008 10:06 am
Forum: General Discussion
Topic: Brain stem lesions
Replies: 14
Views: 7598

Nenu, I am fascinated to read about your burning mouth. Mine too burns so bad and i feel like an idiot trying to explain this to other people. I have experienced the inside of my mouth peeling also. I told my Neuro that the inside of my mouth was often numb but I did not mention the burning because...
by Nenu
Thu Jun 12, 2008 9:30 am
Forum: General Discussion
Topic: Brain stem lesions
Replies: 14
Views: 7598

Yes, I've done the IV steroids twice now. It does get better after the steroids (as do other symptoms I have), however it never completely goes away, and when I have stress/anxiety it comes back pretty full force. But the meds seem to be doing the trick :)
by Nenu
Wed Jun 11, 2008 11:18 am
Forum: General Discussion
Topic: Pictures
Replies: 599
Views: 83871

Dang, that's nicer than my house lol!
by Nenu
Wed Jun 11, 2008 11:17 am
Forum: General Discussion
Topic: Messing with my medication
Replies: 3
Views: 1896

Gabapentin takes quite a while for the benefits to be felt.

If you've taken something like Percocet for pain before, it's not at all like that. No immediate relief.

By quite a while, I can't give you an answer. It depends on the individual.

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