Search found 7 matches

by vk
Wed Aug 22, 2007 10:09 am
Forum: Copaxone
Topic: Anybody here with SPMS for 10+ years who is on Copaxone?
Replies: 8
Views: 4016

Have been away from forum for awhile, but, I have been taking copaxone for 2 years, now. I went off for awhile because of heart problems from novantrone. They wern't sure which drug was the cause. I do the injections every other day. I started out every day, but, retained water which led to heart pr...
by vk
Wed Jun 22, 2005 11:01 am
Forum: Novantrone
Topic: IS ANYONE ON NOVANTRONE
Replies: 18
Views: 28337

I am going for my last treatment in two days. It has been a long two years and lots of ups and downs. I still get symptomatic just before the treatment, but, the Drs. say it doesn't work that way. I have talked to many others in different forums, that say the same thing. We will be very glad when it...
by vk
Wed Aug 11, 2004 9:54 am
Forum: General Discussion
Topic: Pioglitazone
Replies: 6
Views: 2894

:D JUST CURIOS, HAS ANY ONE TRIED OR IS USING THIS 'NEW' TREATMENT? I AM SPMS AND ON NOVANTRONE, THIS, IF IT WORKS, SOUNDS A WHOLE LOT EASIER TO TOLERATE. THE DRS. ARE HAPPY I AM STABLE, BUT I HAVE NEVER RETURNED TO BASELINE AFTER THE LAST EXACERBATION. SOUNDS TOO GOOD TO BE TRUE. LET US KNOW, THANK...
by vk
Tue Jul 13, 2004 8:48 am
Forum: Novantrone
Topic: Why No Posts on Novantrone?
Replies: 7
Views: 8665

:D I JUST READ YOUR POST ABOUT NOVANTRONE AND I AM CURIOUS, DID A NEURO SUGGEST IT? IT IS USUALLY THE LAST RESORT FOR AGGRESSIVE SPMS. NOVANTRONE IS NOT A CURE-ALL, IT STABILIZES, OR SO THEY SAY. I AM ON MY SECOND YEAR AND THE DRS. ARE SATISFIED THAT I HAVEN'T DECLINED ANY FURTHER. YOU PROBABLY DON'...
by vk
Mon Jul 12, 2004 9:32 am
Forum: General Discussion
Topic: Banning Policy
Replies: 1
Views: 2148

:D GOOD FOR YOU. I HAD ALMOST GIVEN YOU UP, TOO MUCH POLITICS, HIDDEN AGENDA, COMPLAINING, AND ANGER. THIS IS FOR SHARING INFO. I HAVE NEVER FIGURED OUT HOW SOME MS.ERS CAN TYPE SUCH LONG DIATRIBES. I HAVE THE USE OF ONLY THE RIGHT SIDE, SO, IT IS AN EFFORT TO TYPE. GOOD WORK, STAY WELL, THANKS, VIK...
by vk
Sat Mar 13, 2004 9:41 am
Forum: Novantrone
Topic: ldn
Replies: 2
Views: 7598

:D THANK YOU FOR THE REPLY. JUST SAW THE NEURO AND HE SAID HE HAS ONLY ONE PATIENT ON LDN AND IT WAS NOT HELPING. HE LIKENED IT TO 'BEE VENOM'. WE DECIDED TO STAY WITH THE NOVAVTRONE FOR ONE YEAR AND IF THERE IS NO RESULTS, RETHINK. I'VE ONLY HAD 3 TREATMENTS AND GO NEXT FRI.. WE HAVE CHANGED TO TWO...
by vk
Mon Mar 01, 2004 5:03 pm
Forum: Introductions
Topic: Hi, Could We All Introduce Ourselves on this thread?
Replies: 316
Views: 66794

JUST FOUND THIS WEB-SITE AND SEE SOME FAMILIAR NAMES. I HAVE BEEN RESEARCHING LDN FOR MYSELF, BUT, I HAVE SPMS AND IN MY 6th MONTH ON NOVANTRONE. I AM FEMALE, SPMS, MARRIED, TWO KIDS, FOUR GRANDCHILDREN, THEY KEEP ME GOING. THIS SEEMS LIKE A GREAT SITE FOR INFO AND NOT TOO MUCH WHINING AND COMPLAIN...