Search found 97 matches

by tt89
Wed Feb 17, 2010 4:22 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: Thinking of stopping Tysabri. Thoughts appreciated
Replies: 30
Views: 16011

Thank you Vonna. I really want to stop but now I have this fear they instilled in me that if I stop ( only being on the drug less than a year) I will be up a creek without a paddle in terms of being sicker. Why did I ever start this. We have a friend of a family member in TN that has MS, 20 years, n...
by tt89
Tue Feb 16, 2010 5:22 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Thinking of stopping Tysabri. Thoughts appreciated
Replies: 30
Views: 16011

Hmm you know maybe I can try a trial of the Cymbalta. Do you take it at night? I just am so leary of meds ( ha ha and I'm a Nurse) but I don't want anymore crazy side effects. The MS drugs make me sick. Provigal for fatigue was AWFUL. I'm on Adderall for that now, low dose and it helps way better. Y...
by tt89
Tue Feb 16, 2010 4:58 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: Thinking of stopping Tysabri. Thoughts appreciated
Replies: 30
Views: 16011

Well I went ahead and had the infusion yesterday but it was the worst mistake ever. This one made me really sick which is odd. I'm just now up and about ( barely) after 24 hours. I also had a neuro check after my IV and they found considerable added weakness in my hands and other stuff which is dish...
by tt89
Thu Feb 11, 2010 10:08 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Thinking of stopping Tysabri. Thoughts appreciated
Replies: 30
Views: 16011

Well I still feel cruddy but I'm pushing myself to work out in the gym. It's my way of getting back at MS and the docs that think I need to SLOW DOWN and so forth. I just want to do what I can to help myself. I'm seriously considering cancelling my appt on Monday, not sure. I'm so torn about everyth...
by tt89
Wed Feb 10, 2010 5:00 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Thinking of stopping Tysabri. Thoughts appreciated
Replies: 30
Views: 16011

I actually did pospone it. It was to be this past Tuesday and I'm set up for this coming Monday but I really do not want to do it anymore. I joined a gym today. I went and worked out and it was not easy but I did it and now tonight I actually feel decent. I just feel like I don't want anymore of any...
by tt89
Sat Feb 06, 2010 7:07 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Thinking of stopping Tysabri. Thoughts appreciated
Replies: 30
Views: 16011

I'm sorry to get back to everyone so late. Just been feeling so cruddy and trying to sort things out and make that decision on what to do. I'm scheduled this Tuesday for another IV and I just don't know what to do right now. I just wish this was an easy decision. I've done everything I can to think ...
by tt89
Sun Jan 24, 2010 5:21 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Thinking of stopping Tysabri. Thoughts appreciated
Replies: 30
Views: 16011

and with that regiment have your MRI's remained stable?

I saw a story of a dutch study where folks that had stopped Tysabri had some sort of rebound effect. That is the last thing I need.
by tt89
Sun Jan 24, 2010 4:01 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Thinking of stopping Tysabri. Thoughts appreciated
Replies: 30
Views: 16011

So you are not taking anything at all except OTC stuff? I don't blame you I really don't. I feel the meds make you worse thats how I feel right now. really let down with Tysabri. I feel worse now than on the shots. I mean Im sick only a few days after the IV but the rest of the month I feel cruddy o...
by tt89
Sun Jan 24, 2010 2:18 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Thinking of stopping Tysabri. Thoughts appreciated
Replies: 30
Views: 16011

Thanks for your response. I really appreciate it Well I started with Betaseron and that made me sick as a dog everyday. I then went off meds for 6 mos and tried Copaxone, failed that one too....so I started Tysabri. I was diagnosed in Jan/Feb 08. I think I will do just that get some new blood work w...
by tt89
Sun Jan 24, 2010 11:20 am
Forum: General Discussion
Topic: Thinking about stopping Tysabri...Thoughts appreciated.
Replies: 0
Views: 1384

Thinking about stopping Tysabri...Thoughts appreciated.

Well I had my 8th infusion this month. The only positive thing to having this IV once a month is that I'm only sick a few days vs everyone on the shots other than that and overall I think I'm doing much worse than before Tysabri. Things I notice that are worse: Legs are much more weak especially my ...
by tt89
Sun Jan 24, 2010 11:18 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: Thinking of stopping Tysabri. Thoughts appreciated
Replies: 30
Views: 16011

Thinking of stopping Tysabri. Thoughts appreciated

Well I had my 8th infusion this month. The only positive thing to having this IV once a month is that I'm only sick a few days vs everyone on the shots other than that and overall I think I'm doing much worse than before Tysabri. Things I notice that are worse: Legs are much more weak especially my ...
by tt89
Sun Oct 25, 2009 10:35 am
Forum: General Discussion
Topic: ** Tingling Sensation ** ??
Replies: 4
Views: 2154

You know I was sitting here thinking..when did this start...and it started after my 2nd Tysabri.....

So I will just have them order that test and see....


but do you suffer from that too...its all over my arms, legs back, stomach...tingling strange feeling

also being hot cold hot cold...
by tt89
Sun Oct 25, 2009 10:22 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: insurance
Replies: 7
Views: 2611

I have UHC
They cover it 100 percent. No copay, nothing.
by tt89
Sun Oct 25, 2009 10:11 am
Forum: General Discussion
Topic: ** Tingling Sensation ** ??
Replies: 4
Views: 2154

** Tingling Sensation ** ??

Well I'm having something else happen lately. This strange tingling sensation throughout my body which feels almost like the chills but its not and its happening alot. Any clues on this or anyone have this? I have been running a low grade fever for months but this is a strange feeling..hard to expla...
by tt89
Sat Oct 24, 2009 8:00 am
Forum: General Discussion
Topic: Bladder Issue. This is new
Replies: 10
Views: 2260

Hey There Again, Thank you so much Oh trust me. I do all I can to live the best life possible but I'm so ANTI MS and I really can't even stand the thought of it. I know..I know Even when I go to get my Tysabri..I do not like being around the other MS patients. I stay in a recliner far away from the ...