Search found 83 matches

by JenniferF
Mon Jan 03, 2011 9:33 pm
Forum: General Discussion
Topic: Copaxone & breastfeedin question
Replies: 5
Views: 2951

here is the thread on copaxone if you haven't found it yet (It falls in the "other category" for meds. Enter the forum as a guest in order to read): http://neonatal.ttuhsc.edu/discus/messages/53/1448.html?1212086135 The conclusion: "Its a large molecule and is unlikely even enter milk...
by JenniferF
Mon Nov 29, 2010 6:02 pm
Forum: General Discussion
Topic: Crepitus (crackling sounds when moving joints) in MS
Replies: 20
Views: 19276

Good reminder. Thanks.
by JenniferF
Thu Nov 25, 2010 8:07 pm
Forum: General Discussion
Topic: Crepitus (crackling sounds when moving joints) in MS
Replies: 20
Views: 19276

Taurus, Without wishing to overstate the obvious, nor incur the wrath of some lucky soul who is aging with joints intact -- is it possible you are just getting older? That said, I've got a dicey shoulder on my weak arm -- simple fact that it is easier to injure yourself if you have muscle weakness. ...
by JenniferF
Mon Nov 15, 2010 6:29 am
Forum: General Discussion
Topic: Flare-ups in Fall?
Replies: 3
Views: 2088

Yes. Definitely a similar pattern here. (Milder symptoms, but similar story.) I'm beginning to think I should just expect some activity-altering surprise every november.
by JenniferF
Mon Nov 15, 2010 6:23 am
Forum: General Discussion
Topic: winded easily during relapse?
Replies: 2
Views: 1616

Thanks SF -- that's helpful. I'd be interested to hear if anyone else experiences this. *** I have been surprised at how different doctors' descriptions of 'typical MS' are from what I read here. I could understand that being true a decade ago, but given the explosion of tools for gathering info fro...
by JenniferF
Sat Nov 13, 2010 5:54 pm
Forum: General Discussion
Topic: Relapse during pregnancy.
Replies: 5
Views: 2724

Looking up Thomas Hale's Medications and Mother's Milk 1999 (8th edition): Gabapentin has a pregnancy risk category C, meaning either no studies on animals or humans, or else it showed adverse effects in animals and there is no info for humans. Solu-medrol (methlypredinisone) didn't have a pregnancy...
by JenniferF
Thu Nov 11, 2010 10:42 am
Forum: General Discussion
Topic: winded easily during relapse?
Replies: 2
Views: 1616

winded easily during relapse?

Another 'anyone else get this?' question: Leg is acting up again over the last couple weeks; had been behaving more or less for over a year. But here is something I hadn't noticed before: It's not just that my leg is getting tired quickly during an activity that was no problem three weeks ago, but *...
by JenniferF
Thu Nov 04, 2010 9:27 am
Forum: General Discussion
Topic: Burning/Shards of Glass pain in hands and feet - familiar?
Replies: 8
Views: 9662

Nope, no denture cream -- thanks for the suggestion. Not on any meds.

The worst of the pain lasted about ten days then cleared up. Still prone to achiness with use, but not like it was. Sensitivity to the cold is resolved too.

Jen.
by JenniferF
Thu Oct 28, 2010 9:59 am
Forum: General Discussion
Topic: Burning/Shards of Glass pain in hands and feet - familiar?
Replies: 8
Views: 9662

Okay - interesting. That's a possibility. Thanks!
by JenniferF
Wed Oct 27, 2010 10:21 am
Forum: General Discussion
Topic: Burning/Shards of Glass pain in hands and feet - familiar?
Replies: 8
Views: 9662

Do a search on Raynauds Syndrome. I got this earlier this year. Had to keep my hands very warm to help with the pain, and running under hot water helped heaps. It's something to do with circulation and blood vessels, can be secondary to other problems. Thanks -- I had thought about that. Didn't kno...
by JenniferF
Wed Oct 27, 2010 5:13 am
Forum: General Discussion
Topic: Burning/Shards of Glass pain in hands and feet - familiar?
Replies: 8
Views: 9662

Yes - deep ache. Feels like it is in the joints/tendons.

And it gets worse with use? Does that sound right?

Okay, this is super helpful - thank you!

Jen.
by JenniferF
Thu Oct 21, 2010 12:28 pm
Forum: General Discussion
Topic: Burning/Shards of Glass pain in hands and feet - familiar?
Replies: 8
Views: 9662

Burning/Shards of Glass pain in hands and feet - familiar?

Anyone tell me if this sounds like something familiar: Sudden onset of shards-of-glass/burning pain in the small joints of my hands/wrists and feet. Symmetrical. Made worse by cold (such as washing hands), made better by heat (such as washing hands with hot water). Better with rest, worse with use. ...
by JenniferF
Mon Jul 05, 2010 11:53 am
Forum: General Discussion
Topic: have a question and I need advice on cooling vests
Replies: 9
Views: 3200

thanks Jen! What's a platypus water bag? Something from a sporting goods store?? Yes. If the link works, look here: http://www.rei.com/product/768123 or here: http://www.campmor.com/outdoor/gear/Product___67049 You could just use (or re-use) a plastic water bottle, too. We happen to already own the...
by JenniferF
Sat Jul 03, 2010 8:15 pm
Forum: General Discussion
Topic: have a question and I need advice on cooling vests
Replies: 9
Views: 3200

I have had good luck with using an ordinary (cheap, flimsy) backpack, and sticking a big bag of ice in it. I use a platypus brand waterbag, but you could use a doubled set of gallon ziplocks. Fill with water, freeze. Stick in backpack, so that the ice is against the small of your back. You could exp...
by JenniferF
Sat Jul 03, 2010 8:06 pm
Forum: Natural Approach
Topic: all things vitamin D
Replies: 1115
Views: 349650

I send my kids to play outside. All year round, many hours. They are homeschooled, so they can get a lot of hours in the sun. Beyond that, just a standard multivitamin, 400 iu I think, probably 60% of the time on average. (Depends on the spouse remember to put vitamins out before he goes to work.) T...

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