This Is MS Multiple Sclerosis Knowledge & Support Community

Cece, Blossom, and Happypoet.... I read everything you write and you always give me hope. My darling man has gotten worse since his procedure last September. He was treated by one of the best but he hasn't had the proper follow-up care because it isn't available near him. We're in a long-distance r...

trish, so sorry to hear your darling man is getting worse. i can relate to his emotions as after the procedure i am worse. the follow up is tough. so far i have flow they say but as you i just wonder. but, where there is life there is hope although even the best of us can get down at times. then yo...

Trish, Dr. Cumming is very good & so willing to help. I have been treated by him & he is so on board with ccsvi. He is so willing to follow up even when not being treated by him. I hope yor DM will consider seeing him but realize how it is when you must know your boundaries. MS can be such ...

Trish, you're a hero to us--and I'm sure to your "darling man" too. Even if he is resisting your wonderful efforts, I'm sure deep down he appreciates all you are trying to do for him. At the same time, he is likely feeling discouraged about his outcomes and afraid of being disapointed aga...

Cece, Blossom, and Happypoet.... I read everything you write and you always give me hope. My darling man has gotten worse since his procedure last September. He was treated by one of the best but he hasn't had the proper follow-up care because it isn't available near him. We're in a long-distance re...

Saying thank you doesn't seem like enough but....thank you....

Best wishes for continued improvements, Capt.

I'm so happy to hear that you're doing well, BB!!

Hugs!!

My thoughts and prayers are with his family.

Happy Birthday, Dr. Siskin....

Dr. Sinan told us that he uses this way, he said that all patients who have been subjected to this procedure did not have restenosis .. my sister had (Als) .. she tried to travel for re-catheter and Make (valvulotomy) vs ballooning, but unfortunately .. she could not travel because of the deteriora...

Wonderful news, HP! Congratulations! My thoughts and prayers are with you for continued improvements. Every time I see an exit sign, I'll think of you.

Happy Birthday, Dr. S! You're a Pisces! That totally explains your awesomeness!! lol!

Trish317, When our patients come back post-treatment for follow up they are compared to their baseline study. If a patient did not have a quality Zamboni protocol exam prior to getting treatment & feel they are restenosing a full protocol will evaluate them at THAT time for CCSVI not necessaril...

Thank you for posting this, Lanie. Would the same thing apply to a follow-up ultrasound to determine if restenosis has occurred? Trish317, When our patients come back post-treatment for follow up they are compared to their baseline study. If a patient did not have a quality Zamboni protocol exam pr...