Search found 1068 matches

by patientx
Wed May 08, 2019 9:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Dayton Interventional Radiology
Replies: 7
Views: 580

Re: Dayton Interventional Radiology

If you're willing to give them your money, they will probably take it. Before doing that, look up those who decided to see Dr. Dake, Arata, McGuckin, etc.
by patientx
Fri Apr 19, 2019 7:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 353
Views: 69032

Re: Notes from CureIous' at Stanford

Just so you know, the great Dr. Michael Dake has moved on from Stanford: https://uahs.arizona.edu/senior-vice-president-health-sciences/Michael-Dake https://uanews.arizona.edu/story/michael-d-dake-appointed-senior-vp-health-sciences Perhaps he was chased away by those neurologists who dared question...
by patientx
Tue Aug 26, 2014 6:55 pm
Forum: Introductions
Topic: Hello from Canada, eh!
Replies: 25
Views: 4873

Re: Hello from Canada, eh!

The amount of woo and pseudo-science here (despite being regularly challenged, thank you to those that challenge it) sure makes it seem like this is not the place for me. Does anyone know of any science-based MS forums that have reputable information? Not MS World... Hi Misslux: As you can probably...
by patientx
Sat Oct 27, 2012 11:55 am
Forum: General Discussion
Topic: Two patients sue for harm caused by unproven MS
Replies: 14
Views: 1897

Re: Two patients sue for harm caused by unproven MS

You missed the point. These case studies show that stent migration beyond "weeks of the procedure" is not an unfounded nor "unnecessary" concern. The conjecture or "incorrect fiction" was in assuming this couldn't happen. No, I didn't miss the point. You can always get problems with any kind of sur...
by patientx
Fri Oct 26, 2012 10:44 pm
Forum: General Discussion
Topic: Two patients sue for harm caused by unproven MS
Replies: 14
Views: 1897

Re: Two patients sue for harm caused by unproven MS

I would imagine the various results of this kind of surgery are going to depend on who is doing the surgery. Good surgeon, good results. Not so good surgeon, not so good results. Harry You missed the point. These case studies show that stent migration beyond "weeks of the procedure" is not an unfou...
by patientx
Fri Oct 26, 2012 8:56 am
Forum: General Discussion
Topic: Two patients sue for harm caused by unproven MS
Replies: 14
Views: 1897

Re: Two patients sue for harm caused by unproven MS

The stents also cause chronic pain, sleeping problems, and lingering fear that others will become blocked or migrate to his heart – potentially fatal complications The fear of migration is an unnecessary fear after the stent has endothelized into the vein, which happens within weeks of the procedur...
by patientx
Thu Jul 19, 2012 1:29 pm
Forum: General Discussion
Topic: Sodium buildup in brain linked to disability in multiple scl
Replies: 11
Views: 1666

Re: Sodium buildup in brain linked to disability in multiple

So now MS is a venous disease of the kidneys ? 8O http://kidney.niddk.nih.gov/kudiseases/pubs/yourkidneys/ Yep, it has nothing to do with the central nervous system. I bet this is just a marker of neurodegeneration. That's pretty much the conclusion of the authors of this study. They and the refere...
by patientx
Thu Jul 19, 2012 6:40 am
Forum: General Discussion
Topic: Sodium buildup in brain linked to disability in multiple scl
Replies: 11
Views: 1666

Re: Sodium buildup in brain linked to disability in multiple

Sodium ions are released in edema, Mark---it's a scientific fact. Found in venous congestion in the legs, liver, kidneys. Why not in the brain? It's part of the renin-angiotensis system. http://www.ncbi.nlm.nih.gov/pubmed/7143701 Except the article you cite talks about Na+ leaking into the blood (i...
by patientx
Sat Jul 07, 2012 11:21 am
Forum: Introductions
Topic: Husband of an MS patient
Replies: 16
Views: 2157

Re: Husband of an MS patient

Dave,

As you can probably tell, you're probably not going to get a whole lot of useful advice here (other than lyndacarol's practical advice). Maybe you can contact your local chapter of the Multiple Sclerosis Society; they might have some services that can help.
by patientx
Mon Mar 05, 2012 6:49 am
Forum: General Discussion
Topic: Newly Diagnosed: Torn between treatment options. Help?
Replies: 18
Views: 3417

Re: Newly Diagnosed: Torn between treatment options. Help?

John,

Avonex is not your only choice for a DMD. For example, there's also Copaxone, which is not associated with the flu-like side effects of the interferons.
by patientx
Tue Feb 28, 2012 2:15 pm
Forum: General Discussion
Topic: Your thoughts on my dx journey?
Replies: 5
Views: 997

Re: Your thoughts on my dx journey?

Brad, Many doctors are getting away from using an LP to diagnose MS, since it may not show anything in about 15% of cases. I never had one, and a number of neurologists I asked said it wasn't necessary. (Of course, sometimes I do wonder if this additional piece of information would have been nice to...
by patientx
Sun Feb 26, 2012 12:17 pm
Forum: General Discussion
Topic: Characterizing brain oxygen metabolism in patients with MS..
Replies: 1
Views: 1093

Characterizing brain oxygen metabolism in patients with MS..

Interesting study: Characterizing brain oxygen metabolism in patients with multiple sclerosis with T2-relaxation-under-spin-tagging MRI. http://www.ncbi.nlm.nih.gov/pubmed/22252237 In this study Ge, et al found that blood in the vein draining the brain (superior sagittal sinus) contained more oxygen...
by patientx
Sun Feb 26, 2012 12:06 pm
Forum: General Discussion
Topic: Matter of fact overview of ccsvi
Replies: 29
Views: 3178

Re: Matter of fact overview of ccsvi

HarryZ wrote:A MS patient can have brain lesions shown on a MRI yet not exhibit any symptoms.
If a person was completely asymptomatic, I doubt he or she would be diagnosed with MS.