Search found 293 matches

by Ernst
Tue May 20, 2014 4:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1567355

Re: DrSclafani answers some questions

Wow, this thread is huge. Im not sure if this is asked here: Sir Sclafani, how common or rare is that a patient wasn't diagnosed with CCSVI in some other clinique, but you find CCSVI? I ask cause, one MS patient I know was in Poland and with doppler and then venography.. everything seemed to be ok -...
by Ernst
Sun Apr 27, 2014 10:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Long term results
Replies: 18
Views: 3398

Re: Long term results

My wife got quite optimal response to angioplasty almost 4 years ago. Her MS symptoms were fatique, balance issues, heat problem, low moods, weak right side and some neck pain (tension). We were quite ammazed when ALL her symptoms disappeared in following weeks. Benefits have lasten now almost 4 yea...
by Ernst
Wed Nov 27, 2013 11:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: PREMiSe study results
Replies: 77
Views: 8600

Re: PREMiSe study results

I was going to ask if Buffalo trial is published.. but it isn't yet? Im also wondering why unpublished and small trial, with no correction with blood flow, is so much in media? Study result is used as an proved evidence against CCSVI.. absolutely horrible. Why positive studies, are not in media.. li...
by Ernst
Wed Aug 21, 2013 5:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: consensus quide with doppler
Replies: 1
Views: 900

consensus quide with doppler

Hello, where can I find the latest consensus quite for doppler protocol? I found one done in 2011 but is there newer?
by Ernst
Sat Jul 20, 2013 6:32 am
Forum: Tysabri (Antegren or Natalizumab)
Topic: Tysabri rebound?
Replies: 3
Views: 1975

Tysabri rebound?

There is some research data about "tysabri rebound" effect.. but what causes it? Is there any scientific data about it?
by Ernst
Thu Jul 18, 2013 7:19 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: from Putnam to Zamboni lecture
Replies: 0
Views: 986

from Putnam to Zamboni lecture

..by Zamboni, february 2012 Florida. I find this interesting lecture, about history of CCSVI related research findings from 1930's to present day.

http://www.youtube.com/watch?v=AGAl6Dzw ... e=youtu.be
by Ernst
Mon Jul 08, 2013 1:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is nutrition and/or exercise related with re-stenosis?
Replies: 23
Views: 2075

Re: Is nutrition and/or exercise related with re-stenosis?

Cece-- It's not just balloon and adios--but too many are treated and not given follow up. cheer Yes, very well said :) About Dr Dake's comment: " he noted that the patients he treated who remained active and changed their lifestyles to include regular exercise and whole food diets have done the bes...
by Ernst
Wed Jul 03, 2013 11:59 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is nutrition and/or exercise related with re-stenosis?
Replies: 23
Views: 2075

Re: Is nutrition and/or exercise related with re-stenosis?

I found many studies about resistance training and MS.. and also how training affects brain. In MS brain usually shrinks and maybe this can be slowed or reversed with good training. For example this article is about subject: Exercising in your 70s 'may stop brain shrinkage' Exercise boosts brains ci...
by Ernst
Wed Jul 03, 2013 11:05 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is nutrition and/or exercise related with re-stenosis?
Replies: 23
Views: 2075

Re: Is nutrition and/or exercise related with re-stenosis?

I quess there is no data about CCSVI re-stenosis more accurately.. like what factors influence with it. This could be interesting area of research too. My observation is quite like cheerleader wrote: " in discussing this with Dr. Dake, he noted that the patients he treated who remained active and ch...
by Ernst
Wed Jul 03, 2013 2:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is nutrition and/or exercise related with re-stenosis?
Replies: 23
Views: 2075

Is nutrition and/or exercise related with re-stenosis?

First, excuse me if I write funny words, english is not my natural lanquage. I have been thinking about re-stenosis after PTA, in jugular veins. There are so many patients with re-stenosis and I believe there are many factors related with problem. Its just my observation with few operated.. but for ...
by Ernst
Mon Jun 24, 2013 3:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My wife's turn next week in Poland - am I dreaming or not?
Replies: 73
Views: 13222

Re: My wife's turn next week in Poland - am I dreaming or no

This is simple picture of her symptoms and situation in 3 points: before, 1 month and 36 months later. 100 % is just number where result is compared:

Image
by Ernst
Fri Jun 21, 2013 7:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: My wife's turn next week in Poland - am I dreaming or not?
Replies: 73
Views: 13222

Re: My wife's turn next week in Poland - am I dreaming or no

Since its 3 years of procedure, I made short video with my wife. Im very happy to say, that benefits are still there.. and actually she is nowadays in quite good shape.CCSVI operation gave her possibility to exercise again.. and we sweat together quite often. Believe it or not.. she can punch hard :...
by Ernst
Wed May 22, 2013 6:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8335
Views: 1567355

Re: DrSclafani answers some questions

Sir Sclafani,

Thank you very much for your case raports, most interesting. I was wondering about those external (muscle) compressions - is it possible that they are related to re-stenosis? Some new studies were published lately about external compression to jugulars and they were very interesting.
by Ernst
Fri May 10, 2013 11:34 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Best CCSVI videos? (seeking short & to the point no frills)
Replies: 16
Views: 2481

Re: Best CCSVI videos? (seeking short & to the point no fril

Best CCSVI videos? I have seen many wonderful videos. One of my favourites is Lena's video. There are many reasons why I love this video: Lena lives quite near, neighbor country Sweden :) , Lena was treated in same clinic as my wife, her treatment result is absolutely wonderful (my wife also), Video...
by Ernst
Tue Apr 16, 2013 11:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: List of all CCSVI groups, communities, organizations
Replies: 10
Views: 1473

Re: List of all CCSVI groups, communities, organizations

Yes Frodo, meant sociology. My typing is faster than my thoughs. Im just curious about quantitative data, how many CCSVI groups are there? where are they geographically? etc.. ps. english is not my native language, sorry for typing errors :) I read much better than write. ps. THANK YOU 1eye.. that l...