Search found 6 matches

by greenwave
Thu Mar 11, 2010 10:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Stanford Relapses?
Replies: 39
Views: 10168

9 mos out

My husband is 9 mos out from having both IJ's stented. Also did high-dose cyclophosphamide the winter of 2008 prior to this. No relapses, all fatigue and heat intolerance, etc. gone. Some improvement in prior damage. After chemo had no relapses, but still had the other daily "bothersome" ones that a...
by greenwave
Thu Sep 03, 2009 3:45 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Blake's experience at Stanford
Replies: 7
Views: 3572

Thanks, and glad to hear you have been improving, too! He did the HiCy in December of 2008- it took from April until then to be scheduled for it. He had a rough time of it, so we wanted to do something fairly aggressive but safe. It stopped the relapses, which were coming in waves every month or so,...
by greenwave
Thu Sep 03, 2009 1:19 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: How many at JH now?!
Replies: 43
Views: 20932

Same boat

We were in a similar boat as you. My husband was diagnosed just over a year ago. He had a rough relapse, and he wanted to get it earlier rather than later. There's also good data to suggest that the earlier you do something like this, the better (no long term immunity memory perhaps). It was a rough...
by greenwave
Thu Sep 03, 2009 1:05 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Blake's experience at Stanford
Replies: 7
Views: 3572

Blake's experience at Stanford

We just returned from Stanford earlier this week, where my husband got two stents placed in each jugular. He also did HiCy which so far had stopped his progression, but he had some lingering symptoms. It wasn't a bad experience at all and was up and about the next day no problem. He already feels be...
by greenwave
Sun Dec 28, 2008 11:37 am
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: symptoms while recovering from HiCy?
Replies: 1
Views: 2299

symptoms while recovering from HiCy?

My husband just finished HiCy, we will be 1 month out January 7th. He has had some of his old symptoms recently, namely heaviness in his leg and numbness in his arm. He also is vertigoish. Is this normal 'healing' or could this be reactivation? Anyone with similar experiences?
by greenwave
Wed Dec 17, 2008 7:21 pm
Forum: Revimmune (cyclophosphamide or cytoxan)
Topic: Bad news - MRI results
Replies: 34
Views: 8421

Thank you to all the HiCyers

I have been lurking around this forum and on all the blogs since March when my husband was diagnosed with MS. Although I'm a physician, I found out about this first from you all. This should tell you about the state of our collective knowledge. I cannot even tell you how grateful we are that we disc...

Go to advanced search