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My husband is 9 mos out from having both IJ's stented. Also did high-dose cyclophosphamide the winter of 2008 prior to this. No relapses, all fatigue and heat intolerance, etc. gone. Some improvement in prior damage. After chemo had no relapses, but still had the other daily "bothersome" o...

Thanks, and glad to hear you have been improving, too! He did the HiCy in December of 2008- it took from April until then to be scheduled for it. He had a rough time of it, so we wanted to do something fairly aggressive but safe. It stopped the relapses, which were coming in waves every month or so,...

We were in a similar boat as you. My husband was diagnosed just over a year ago. He had a rough relapse, and he wanted to get it earlier rather than later. There's also good data to suggest that the earlier you do something like this, the better (no long term immunity memory perhaps). It was a rough...

We just returned from Stanford earlier this week, where my husband got two stents placed in each jugular. He also did HiCy which so far had stopped his progression, but he had some lingering symptoms. It wasn't a bad experience at all and was up and about the next day no problem. He already feels be...

My husband just finished HiCy, we will be 1 month out January 7th. He has had some of his old symptoms recently, namely heaviness in his leg and numbness in his arm. He also is vertigoish. Is this normal 'healing' or could this be reactivation? Anyone with similar experiences?

I have been lurking around this forum and on all the blogs since March when my husband was diagnosed with MS. Although I'm a physician, I found out about this first from you all. This should tell you about the state of our collective knowledge. I cannot even tell you how grateful we are that we disc...