Search found 73 matches

by wobbly
Thu Feb 02, 2012 5:44 pm
Forum: General Discussion
Topic: help
Replies: 8
Views: 1327

Re: help

i am jc neg and neg 2 ty antibodies so what the problem just place dont want added paperwork -pain is unbearable thanx all lots changes at jacobs n bflo new leader cutten costs went from state of art 2 cash pit -me being on medicade --this zamboni thing sure didnt work it is an assembly line theory
by wobbly
Wed Feb 01, 2012 7:27 pm
Forum: General Discussion
Topic: help
Replies: 8
Views: 1327

Re: help

yes was on 4 long time then went off [ 2copaxone] then neg 4 jc and ty anti bodies but now 9 infusions on restart but having major relapse and dr says no roids cause of ty dont no why -any 1 no thanx
by wobbly
Wed Feb 01, 2012 5:56 pm
Forum: General Discussion
Topic: help
Replies: 8
Views: 1327

Re: help

still desperate 4 some help?
by wobbly
Wed Feb 01, 2012 8:51 am
Forum: General Discussion
Topic: help
Replies: 8
Views: 1327

help

does any 1 have scoop on tysabri and steroids -doc says 2 much paperwork really really suffering any help w work?
by wobbly
Sun Oct 16, 2011 6:44 pm
Forum: Friends and Family
Topic: partner ended our relationship
Replies: 11
Views: 7527

Re: partner ended our relationship

hi kind of struck me 2 read how u want 2 stay so bad/ myself am the 1 w ms still get around sort of okay but my spouse is sayen bye bye or 2 put it best kicken me upstairs we own a dbl / feel very very hurt but not surprised we have teen who doesnt hesitate 2 say f u etc at any given time/ so it wou...
by wobbly
Fri May 27, 2011 2:23 pm
Forum: General Discussion
Topic: Pain common in Multiple Sclerosis, restricts function
Replies: 5
Views: 1889

24-7 is how i hurt so i believe u/ sometimes does seem like drs really believe u / peace :oops: :oops: :oops:
by wobbly
Tue May 10, 2011 8:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: has anyone had cssvi treatment for more than 2yrs?
Replies: 22
Views: 3700

2 1/2 4 me -was part of 1st 2 go 2 italy done by dr z team - guess i m abt the same which i guess is good - but this deal still sux PEACE ALL :) :) :)
by wobbly
Mon Jan 31, 2011 5:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Cece's turn
Replies: 722
Views: 131063

peace of cake / very cool your going 2 the dance /STAY STRONG 8O 8O 8O
by wobbly
Mon Jan 31, 2011 5:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: calling Zamboni's original patients
Replies: 19
Views: 5110

JUST WAS LUCKY / now just on hold/ it really just was no big deal 2 have it done that s why i would do it again in a heartbeat 2 think that we were paid 75$ each time i went 4 whatever part of the study was going on [mri s-dopplers etc] and trip 2 italy very minor procedure rather have that then the...
by wobbly
Mon Jan 31, 2011 2:55 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: calling Zamboni's original patients
Replies: 19
Views: 5110

i was part of the 1st 4 americans 2 go / now the study has ended so i really dont no status of my veins i m betting i have re-stenosed 2 some degree hence the comments abt 2 and 3 times it could be and i did pick this up from the full dr team that repeat procedures r very likely 2 be needed as i sai...
by wobbly
Sat Jan 29, 2011 3:15 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: calling Zamboni's original patients
Replies: 19
Views: 5110

just past the 2 yr pt that i went 2 italy / didnt get much better didnt get much worse / but will say ready 2 have it done again/ stay strong all-peace :lol: :lol:
by wobbly
Mon Jan 03, 2011 11:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The thought of it grosses me out
Replies: 28
Views: 5411

hi all --all i can say is i was having cocktails in italy 3-4 hrs after totally no big deal
by wobbly
Mon Sep 27, 2010 4:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Tysabri patients..if you were asked..?
Replies: 2
Views: 1654

jc

there is a jc virus test that has come out so they can see your chance of pml / i had the test which was neg so thinking most 4 sure 2 go back on ty / also i was balloned 2 yrs ago in jan / seems like the best drug was on 4 36 doses/ but with this new test u can find if u can get pml/ stay strong al...
by wobbly
Fri Jun 18, 2010 3:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: no new
Replies: 5
Views: 1555

abt the same / but that is probobly good/ 4 big lesions on the spine is what it is / i no that this has a role why not just offer the angio/ seems like BS 2 me/ peace :o :o
by wobbly
Fri Jun 18, 2010 6:16 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: no new
Replies: 5
Views: 1555

YES

i was on the 1st 4 team that went 2 italy 19 months ago 8)

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