Search found 73 matches
- Thu Feb 02, 2012 5:44 pm
- Forum: General Discussion
- Topic: help
- Replies: 8
- Views: 2266
Re: help
i am jc neg and neg 2 ty antibodies so what the problem just place dont want added paperwork -pain is unbearable thanx all lots changes at jacobs n bflo new leader cutten costs went from state of art 2 cash pit -me being on medicade --this zamboni thing sure didnt work it is an assembly line theory
- Wed Feb 01, 2012 7:27 pm
- Forum: General Discussion
- Topic: help
- Replies: 8
- Views: 2266
Re: help
yes was on 4 long time then went off [ 2copaxone] then neg 4 jc and ty anti bodies but now 9 infusions on restart but having major relapse and dr says no roids cause of ty dont no why -any 1 no thanx
- Wed Feb 01, 2012 5:56 pm
- Forum: General Discussion
- Topic: help
- Replies: 8
- Views: 2266
Re: help
still desperate 4 some help?
- Wed Feb 01, 2012 8:51 am
- Forum: General Discussion
- Topic: help
- Replies: 8
- Views: 2266
help
does any 1 have scoop on tysabri and steroids -doc says 2 much paperwork really really suffering any help w work?
- Sun Oct 16, 2011 6:44 pm
- Forum: Friends and Family
- Topic: partner ended our relationship
- Replies: 11
- Views: 16359
Re: partner ended our relationship
hi kind of struck me 2 read how u want 2 stay so bad/ myself am the 1 w ms still get around sort of okay but my spouse is sayen bye bye or 2 put it best kicken me upstairs we own a dbl / feel very very hurt but not surprised we have teen who doesnt hesitate 2 say f u etc at any given time/ so it wou...
- Fri May 27, 2011 2:23 pm
- Forum: General Discussion
- Topic: Pain common in Multiple Sclerosis, restricts function
- Replies: 5
- Views: 2380
- Tue May 10, 2011 8:27 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: has anyone had cssvi treatment for more than 2yrs?
- Replies: 22
- Views: 5350
- Mon Jan 31, 2011 5:22 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Cece's turn
- Replies: 722
- Views: 185662
- Mon Jan 31, 2011 5:09 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: calling Zamboni's original patients
- Replies: 19
- Views: 6575
JUST WAS LUCKY / now just on hold/ it really just was no big deal 2 have it done that s why i would do it again in a heartbeat 2 think that we were paid 75$ each time i went 4 whatever part of the study was going on [mri s-dopplers etc] and trip 2 italy very minor procedure rather have that then the...
- Mon Jan 31, 2011 2:55 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: calling Zamboni's original patients
- Replies: 19
- Views: 6575
i was part of the 1st 4 americans 2 go / now the study has ended so i really dont no status of my veins i m betting i have re-stenosed 2 some degree hence the comments abt 2 and 3 times it could be and i did pick this up from the full dr team that repeat procedures r very likely 2 be needed as i sai...
- Sat Jan 29, 2011 3:15 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: calling Zamboni's original patients
- Replies: 19
- Views: 6575
- Mon Jan 03, 2011 11:15 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: The thought of it grosses me out
- Replies: 28
- Views: 7538
- Mon Sep 27, 2010 4:00 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Tysabri patients..if you were asked..?
- Replies: 2
- Views: 2133
jc
there is a jc virus test that has come out so they can see your chance of pml / i had the test which was neg so thinking most 4 sure 2 go back on ty / also i was balloned 2 yrs ago in jan / seems like the best drug was on 4 36 doses/ but with this new test u can find if u can get pml/ stay strong al...
- Fri Jun 18, 2010 3:20 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: no new
- Replies: 5
- Views: 2138
- Fri Jun 18, 2010 6:16 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: no new
- Replies: 5
- Views: 2138
YES
i was on the 1st 4 team that went 2 italy 19 months ago 
