This Is MS Multiple Sclerosis Knowledge & Support Community

Just wanted to let Sandrine and the others know that I emailed one of the researchers from the RNF study group to ask about refrigeration. Serono is doing "stability studies." I specifically asked him about whether it was okay to try the Frio cooling wallet and he said yes. My neurologist ...

Dear Bezalel,

To the best of my knowledge, RNF has not yet been approved by the FDA. I've been following the US sites to check approval. Liz

Thanks everyone for input. This is the first time I've used "This is MS," and was heartened to see so many people writing back. For the last responses--Rebif New Formulation was approved in 2008. The earlier version can live outside of the refrigerator for up to 30 days. So I've been a hap...

Sandrine, Thanks again. I guess after I do my first trip, I'll decide whether it's so inconvenient as to be impossible. If that's the case, I'll ask my neurologist about switching to Betaferon, which doesn't require any refrigeration at all. But maybe by then Serono will rewrite its refrigeration re...

Dear Sandrine,

This is very helpful. I'll try to get the insulin pack that you mentioned. My Rebif nurse didn't mention this. She just said to keep in a cooler bag with one of those special ice packs and change the pack every day.

Thank you. Lisbeth

Hello everyone, This is my first posting and I hope that I am doing this correctly. I am about to switch to RNF. My Rebif nurse told me that it has to be refrigerated all the time. This is very inconvenient because I travel to Africa for work, where there is often no refrigeration available in hotel...