This Is MS Multiple Sclerosis Knowledge & Support Community

Hi peterjjj,

I too, can relate to the near fall or near accident phenomenon of instantly feeling a short-lived decrease in symptoms. I have always chalked this up to a "flight or fight" adrenaline effect.

Dr. Sclafani -

I don't believe my hips issues are steroid related. Over the course of 20 years, I have probably only done 3 or 4 flare-up cycles. I more attribute the injuries and related athritis to ms-induced hip muscle weakness combined with being physically active.

I have a torn labrum, socket bone fragments, FAI, and thin cartiledge. All this has induced osteoathritis near the injury.

Hi, I am a 44 year old male who has been diagnosed by 5 orthpedic surgeons as a patient needing a total hip replacement. I have had RRMS for about 20 years now and was wondering what I should expect, be aware of, etc. if I decide to proceed.

Thanks for any input here!

Does anyone know of any Colorado Doctors who might be either currently prescribing or willing to? I am interested in being treated with antibiotics.

Thanks

Thanks to you all for replying to my question!

Here's another one for you...

With me only having three infusions to date, is the risk still there or does anyone have any experience with IRIS happening when going off Tysabori so early?

Just wondering.... I had the CCSVI procedure done in December of 2010 and also started Tysabri around this same timeframe. Up until a couple of weeks ago, I had not noticed any real major improvements with my symptoms. Two weeks ago, my balance, gait, etc have started to dramatically improve. I was ...

Cece - please send me your information.

Thanks!

I was wondering the names and locations of U.S. doctors currently performing the CCVSI testing and procedure.

Thanks,

Reece

bio-perine (from SourceNaturals) is made from a black pepper extract (piperine) and is used to enhance absorption.

Andrew,

What is the preferred sleeping posture with IBT? Is it on your back, side, stomach, rotating or does it matter.

Thanks,

Sharaon - thanks for the update. I am keeping my fingers crossed that someone will be inclined to explore CCVSI further and would need a guinea pig to test it on !

Hello all, I am in the process of moving back to CO and am wondering if anyone has found any Colorado neuro's interested in exploring the CCVSI procedure as a trial study? I am familiar with and have read Dr. Bowlings name in various posts and was wondering if he would be the best place to start as ...

Wihout a doubt, the biggest struggle I have with MS is that IT is the predominant issue on my mind and is constantly taking my thoughts, energy and time that should be going towards my job, my family, myself, etc. I don't even want to think about calculating the minutes hours, days and years I have ...

Thank you all for your great advise. As discouraging as this disease is, it is great to hear how others are fighting through the bad times and doing the best they can to continue to keep their heads up. I think the hardest part for me, is that MS is a tough disease to have in a world that is very ex...