Search found 1513 matches

by LR1234
Tue Feb 26, 2019 8:15 pm
Forum: Rituxan (Rituximab)
Topic: Rituximab iv and intrathecal with valtrex
Replies: 130
Views: 28365

Re: Rituximab iv and intrathecal with valtrex

Just to update, I went ahead in 2014 taking Rituximab I.V plus I supplement with acyclovir if I feel a bit MSy but I have to say Rituximab has been a life saver for me. I don’t suffer with fatigue or symptoms day to day other than the damage already done from optic neuritis. My MRIs are stable too. ...
by LR1234
Fri May 19, 2017 8:38 am
Forum: General Discussion
Topic: Pictures
Replies: 599
Views: 77777

Re: Pictures

Hey Robbie glad to see you are about still.....lost contact with all on here as I have been off this site for a while. How have you been? what meds have you been on? (if any?) Last time we spoke I think it was the antibiotics protocol so a long long time ago x I think this thread is a lovely idea an...
by LR1234
Wed Jan 27, 2016 2:12 pm
Forum: Rituxan (Rituximab)
Topic: Time it Takes for Rituxan to Work on MS
Replies: 12
Views: 10992

Re: Time it Takes for Rituxan to Work on MS

I had Rituximab the first time in March 2014 and then again in April (2 weeks apart) I felt so so ill during the whole of May (I thought I had made a huge mistake taking Rituxan) All my MS symptoms were present, I also had bad vision, fatigue, wobbly legs etc then toward the end of June I suddenly f...
by LR1234
Sun May 31, 2015 11:41 am
Forum: Rituxan (Rituximab)
Topic: Rituximab iv and intrathecal with valtrex
Replies: 130
Views: 28365

Re: Rituximab iv and intrathecal with valtrex

Hey, Just checking in....Im still feeling really well:) Eyes aren't quite as great as they were but are by no means as worse as they were pre rituxan. My doses of rituxan were the 18th March and 2nd April 2014 so I am over a year out. (I had 1500mg) I am planning to go in next week or week after for...
by LR1234
Sat Apr 18, 2015 12:25 pm
Forum: Rituxan (Rituximab)
Topic: Rituximab iv and intrathecal with valtrex
Replies: 130
Views: 28365

Re: Rituximab iv and intrathecal with valtrex

Hey anon,
B cells going up.....I don't know the exact number but they are on the up
Still feel ok ish, starting to feel a it fluey at the moment and general malaise but loads of illnesses still hitting our household but could be the ms resurfacing
How you doing? X
by LR1234
Sun Mar 29, 2015 2:30 pm
Forum: Rituxan (Rituximab)
Topic: Rituximab iv and intrathecal with valtrex
Replies: 130
Views: 28365

Re: Rituximab iv and intrathecal with valtrex

Hey Anon, Haven't heard back from Neuro yet about B cells.....so we will see. Its weird I have felt MS free this last year but don't know if the B cells taking time to come back is good or bad??? Good luck with the diflucan...that stuff is strong, I tried it a while back, managed one tab a month 150...
by LR1234
Tue Mar 24, 2015 11:13 am
Forum: Rituxan (Rituximab)
Topic: Rituximab iv and intrathecal with valtrex
Replies: 130
Views: 28365

Re: Rituximab iv and intrathecal with valtrex

Hey Anon, Hope you are feeling better x I don't think it was a relapse after all but I concerned what it was/is:/ Ive got an issue with my rib/lung still that feels like I have a rock in it. Im not sure if its altered sensation or some sort of growth or cracked rib or something. I not in pain but it...
by LR1234
Thu Feb 05, 2015 4:13 pm
Forum: Rituxan (Rituximab)
Topic: Rituximab iv and intrathecal with valtrex
Replies: 130
Views: 28365

Re: Rituximab iv and intrathecal with valtrex

Relapse:( thought I had strained rib as really painful but 3 days prior I had pulling, stiff, tingly spine and I now believe the pain is actually coming from spine and affecting nerves in muscles/ribs:( taken steroids today and codeine so hoping that will help (gonna take em for a week) also had com...
by LR1234
Thu Jan 08, 2015 12:24 am
Forum: Rituxan (Rituximab)
Topic: Rituximab iv and intrathecal with valtrex
Replies: 130
Views: 28365

Re: Rituximab iv and intrathecal with valtrex

Disaster averted, all seems to be well again. No ON and feeling fine. Family have bad colds so maybe my body was fighting that ;even though I didn't actually get ill.
by LR1234
Tue Dec 30, 2014 1:32 pm
Forum: Rituxan (Rituximab)
Topic: Rituximab iv and intrathecal with valtrex
Replies: 130
Views: 28365

Re: Rituximab iv and intrathecal with valtrex

Just wanted to post that last night I started to get optic neuritis pain in my left eye (been hit by ON in that eye 5 times previously) I took 30mg codeine then today 15mg of prednisone and it seems to be stable although pain still there a bit. Over Xmas I've really been burning the candle at both e...
by LR1234
Sun Dec 14, 2014 11:23 am
Forum: Rituxan (Rituximab)
Topic: Rituximab iv and intrathecal with valtrex
Replies: 130
Views: 28365

Re: Rituximab iv and intrathecal with valtrex

Hey Anon, Im still doing great:) I do feel my bladder is playing up a bit at the moment with urgency issues but not sure the reason...I don't feel like its progression or anything just my bladder goes through phases sometimes. My eyes are still improving, I still have little to no fatigue, in genera...
by LR1234
Sun Dec 14, 2014 11:17 am
Forum: Rituxan (Rituximab)
Topic: Need feedback on the use of Rituxan
Replies: 13
Views: 6170

Re: Need feedback on the use of Rituxan

Hi I have used rituxan and for me personally it has been life changing (but might be in combination with other things)....I do also take antivirals everyday and have changed my diet to drinking lots of green smoothies, I have gone on the pill which balances out my hormones. (I also still take copaxo...
by LR1234
Wed Oct 22, 2014 5:48 am
Forum: General Discussion
Topic: I went half blind from MS!!!
Replies: 9
Views: 1422

Re: I went half blind from MS!!!

My eye is 85% now I reckon but I still have issues with superstore lighting and reading black writing on white background is patchy???I know I also have lots of tiny blind spots. Since rituxan I feel it's still improving x (amended my previous post as to be clear went blind in one eye only)
by LR1234
Tue Oct 21, 2014 9:54 pm
Forum: General Discussion
Topic: I went half blind from MS!!!
Replies: 9
Views: 1422

Re: I went half blind from MS!!!

I got hit by optic neuritis five times in same eye (3 of those times I was completely blind in that one eye....always the left ) I have found rituximab to have helped a lot along with a good healthy diet.....lots of greens etc. It's awful losing your sight:(( I hope yours continues to improve, mine ...
by LR1234
Wed Oct 15, 2014 12:59 am
Forum: Rituxan (Rituximab)
Topic: Rituximab iv and intrathecal with valtrex
Replies: 130
Views: 28365

Re: Rituximab iv and intrathecal with valtrex

Hey Anon, watch out for the vitamin D....I was taking between 5-10K a day and I think it gave me bad brain fog (I would stop taking it for a while and get your levels checked) Im still doing really well;) had my B cell levels checked a couple of weeks ago and at almost 6 months they are still at zer...