Search found 398 matches

by radeck
Sun Jan 31, 2010 8:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Second opinion
Replies: 26
Views: 6732

Marie, thank you for getting your second opinion. The fact that your doc is an interventional radiologist may explain why he was more optimistic than the opinions I've received. Apparently this is a well known rift. It will nevertheless be interesting to hear if he thinks it was worth it in your cas...
by radeck
Fri Jan 08, 2010 10:24 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Oh, Radeck?
Replies: 194
Views: 43363

Thanks to you who're inquiring about me. I'm alive and will respond to your inquires when I'm able to.
by radeck
Wed Dec 16, 2009 3:40 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Oh, Radeck?
Replies: 194
Views: 43363

Today I found the most optimistic (besides Dake) experienced physician opinion so far on this, from head of vascular surgery of a nearby university hospital. He of course said that he couldn't make definitive statements about jugular vein stents because of lack of long term data, but made some argum...
by radeck
Sun Dec 13, 2009 12:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Oh, Radeck?
Replies: 194
Views: 43363

patientx, I understood the concern about mobility in the jugulars to not only have to do with fracture causing thrombosis, but also clots/thrombosis forming at the transition between stented and unstented vein, which could become welted because of the different elasticities. I think collapsing of th...
by radeck
Fri Dec 11, 2009 9:06 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Oh, Radeck?
Replies: 194
Views: 43363

Rhonda, that's why I wonder about second opinions. The obvious question is why the life expectancy of stents in jugular vein would be so much better ("a lifetime") than for veins where the same stents have been used for many years, which are less mobile and therefore less prone to problems? Bluesky,...
by radeck
Fri Dec 11, 2009 7:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Oh, Radeck?
Replies: 194
Views: 43363

Estimates for the survival of stented jugular veins

I was wondering if some of you have talked to or could talk to vascular surgeons or others who may be qualified, and get a second (or first) opinion about the patency of venous stents, in particular educated guesses about the patency of jugular vein stents. This was one of two questions I asked a ha...
by radeck
Sun Dec 06, 2009 6:54 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Oh, Radeck?
Replies: 194
Views: 43363

Just to mention two things, there's still the strong pulse in my head and neck, with actual motion so strong it makes it difficult to sleep. Furthermore my resting pulse is 40% higher than before the stents/surgery. It is now 78-88/min when it used to be 55-65/min. I don't know why. One idea I menti...
by radeck
Wed Dec 02, 2009 7:20 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New Blog Post-CCSVI: Separating Fact from Fiction
Replies: 45
Views: 9381

Johnson, I have a theory for the difference, it's definitely not demography, and one of the researchers I've spoken to has found evidence for it, but it may be a bit premature to mention.
by radeck
Wed Dec 02, 2009 3:46 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New Blog Post-CCSVI: Separating Fact from Fiction
Replies: 45
Views: 9381

Marie, you misread my post, so your response is out of context. Dake has little success treating what he calls stenosis with balloon dilation, in that the treated areas recollapse immediately. The problems Zamboni treats on the other hand stay open for a while: 18 months in half of his patients in c...
by radeck
Wed Dec 02, 2009 2:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New Blog Post-CCSVI: Separating Fact from Fiction
Replies: 45
Views: 9381

Marie, all relevant information from the new Zamboni paper were known to everybody since the Bologna conference in early Sep, and we got the detailed numbers when the abstract of the paper appeared in threads on this forum several weeks ago. The 53% patency of jugular veins and 97% patency of azygos...
by radeck
Tue Dec 01, 2009 8:53 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Circulation problems, anyone?
Replies: 13
Views: 4684

Opposite for me, cold/clammy hands that always fall asleep right post stents that I've never had before (plus a strong sensation of my heartbeat in my head that makes it hard to sleep). But then I also had open heart surgery at the same time, so maybe it's because of that.
by radeck
Tue Dec 01, 2009 6:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Oh, Radeck?
Replies: 194
Views: 43363

If you want to help...

I don't know exactly whether the stents used in us can be collapsed once they have been expanded. Maybe somebody knows?? I'm interested in this because I've been looking for ways to have at some of the stents removed. I have inquired about surgical removal, though endovascular removal might be safer...
by radeck
Mon Nov 30, 2009 9:23 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Oh, Radeck?
Replies: 194
Views: 43363

with regards to the order of stents if stents will be used, and postulating that maybe it is impossible to do lower stents then do uppers only if you need them--how would they get past the brand new stent to do the upper if it was still stenosed up there after the lower one was in? Wouldn't the doc...
by radeck
Mon Nov 30, 2009 11:13 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Oh, Radeck?
Replies: 194
Views: 43363

I got an EKG, which was abnormal, but apparently normal for someone who has had heart surgery, and a chest X-ray to show that no other stent is in the heart. MaggieMae, I don't know, but maybe they should consider keeping patients at Stanford for a month or so for observation. The impression I have ...
by radeck
Sun Nov 29, 2009 7:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Oh, Radeck?
Replies: 194
Views: 43363

I came home last night and have felt a strong pounding sensation in head, shoulders, and arms since this morning. Dake recommends that I get another X-ray (have had so many by now including the two venographies that if I survive this ordeal I'll probably die of cancer in a couple of years) tomorrow,...