Search found 398 matches
- Sun Jan 31, 2010 8:27 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Second opinion
- Replies: 26
- Views: 9646
Marie, thank you for getting your second opinion. The fact that your doc is an interventional radiologist may explain why he was more optimistic than the opinions I've received. Apparently this is a well known rift. It will nevertheless be interesting to hear if he thinks it was worth it in your cas...
- Fri Jan 08, 2010 10:24 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Oh, Radeck?
- Replies: 194
- Views: 63321
- Wed Dec 16, 2009 3:40 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Oh, Radeck?
- Replies: 194
- Views: 63321
Today I found the most optimistic (besides Dake) experienced physician opinion so far on this, from head of vascular surgery of a nearby university hospital. He of course said that he couldn't make definitive statements about jugular vein stents because of lack of long term data, but made some argum...
- Sun Dec 13, 2009 12:13 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Oh, Radeck?
- Replies: 194
- Views: 63321
patientx, I understood the concern about mobility in the jugulars to not only have to do with fracture causing thrombosis, but also clots/thrombosis forming at the transition between stented and unstented vein, which could become welted because of the different elasticities. I think collapsing of th...
- Fri Dec 11, 2009 9:06 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Oh, Radeck?
- Replies: 194
- Views: 63321
- Fri Dec 11, 2009 7:57 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Oh, Radeck?
- Replies: 194
- Views: 63321
Estimates for the survival of stented jugular veins
I was wondering if some of you have talked to or could talk to vascular surgeons or others who may be qualified, and get a second (or first) opinion about the patency of venous stents, in particular educated guesses about the patency of jugular vein stents. This was one of two questions I asked a ha...
- Sun Dec 06, 2009 6:54 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Oh, Radeck?
- Replies: 194
- Views: 63321
Just to mention two things, there's still the strong pulse in my head and neck, with actual motion so strong it makes it difficult to sleep. Furthermore my resting pulse is 40% higher than before the stents/surgery. It is now 78-88/min when it used to be 55-65/min. I don't know why. One idea I menti...
- Wed Dec 02, 2009 7:20 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: New Blog Post-CCSVI: Separating Fact from Fiction
- Replies: 45
- Views: 13491
- Wed Dec 02, 2009 3:46 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: New Blog Post-CCSVI: Separating Fact from Fiction
- Replies: 45
- Views: 13491
Marie, you misread my post, so your response is out of context. Dake has little success treating what he calls stenosis with balloon dilation, in that the treated areas recollapse immediately. The problems Zamboni treats on the other hand stay open for a while: 18 months in half of his patients in c...
- Wed Dec 02, 2009 2:11 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: New Blog Post-CCSVI: Separating Fact from Fiction
- Replies: 45
- Views: 13491
Marie, all relevant information from the new Zamboni paper were known to everybody since the Bologna conference in early Sep, and we got the detailed numbers when the abstract of the paper appeared in threads on this forum several weeks ago. The 53% patency of jugular veins and 97% patency of azygos...
- Tue Dec 01, 2009 8:53 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Circulation problems, anyone?
- Replies: 13
- Views: 6044
- Tue Dec 01, 2009 6:09 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Oh, Radeck?
- Replies: 194
- Views: 63321
If you want to help...
I don't know exactly whether the stents used in us can be collapsed once they have been expanded. Maybe somebody knows?? I'm interested in this because I've been looking for ways to have at some of the stents removed. I have inquired about surgical removal, though endovascular removal might be safer...
- Mon Nov 30, 2009 9:23 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Oh, Radeck?
- Replies: 194
- Views: 63321
with regards to the order of stents if stents will be used, and postulating that maybe it is impossible to do lower stents then do uppers only if you need them--how would they get past the brand new stent to do the upper if it was still stenosed up there after the lower one was in? Wouldn't the doc...
- Mon Nov 30, 2009 11:13 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Oh, Radeck?
- Replies: 194
- Views: 63321
I got an EKG, which was abnormal, but apparently normal for someone who has had heart surgery, and a chest X-ray to show that no other stent is in the heart. MaggieMae, I don't know, but maybe they should consider keeping patients at Stanford for a month or so for observation. The impression I have ...
- Sun Nov 29, 2009 7:19 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Oh, Radeck?
- Replies: 194
- Views: 63321
I came home last night and have felt a strong pounding sensation in head, shoulders, and arms since this morning. Dake recommends that I get another X-ray (have had so many by now including the two venographies that if I survive this ordeal I'll probably die of cancer in a couple of years) tomorrow,...