Search found 6 matches

by tomkats
Tue Apr 20, 2010 11:59 am
Forum: Copaxone
Topic: Mannitol allergy?
Replies: 5
Views: 4338

I successfully took Copaxone for 5 years before developing a reaction similar to yours. Because I had been on the drug for so long, it didn't even occur to me that I might have developed an allergy. My neurologist suggested taking a week off and all symptoms disappeared. Next step was to try an inte...
by tomkats
Sun Sep 13, 2009 7:41 am
Forum: General Discussion
Topic: Yoga anyone?
Replies: 11
Views: 4673

Yoga and Multiple Sclerosis - http://www.amazon.com/Yoga-Multiple-Sclerosis-Journey-Healing/dp/1932603174 - is just the book. I began to pracitce yoga following my diagnosis almost 6 years ago. Skiing, pilates, even distance walking was no longer comfortable or possible. I do 90 minute power yoga in...
by tomkats
Fri Mar 20, 2009 12:40 pm
Forum: General Discussion
Topic: Allergy to mannitol?
Replies: 10
Views: 4750

What a journey! After a lengthy discussion with the allergist and 2 very interested interns, we discussed the possiblility that it may have been the ibuprofen that I reacted to instead of the Betaseron. As a result we scheduled an ibuprofen challenge test. Last Tuesday I reported to his office at 7 ...
by tomkats
Mon Feb 23, 2009 3:59 pm
Forum: General Discussion
Topic: Allergy to mannitol?
Replies: 10
Views: 4750

Met with neuro today and started the process of filling the Avonex prescription. I also made an appointment with the allergy doc for Friday afternoon. He's skeptical about the mannitol allergy theory and will do a complete workup for hives - whatever that means. I won't start the Avonex until I'm su...
by tomkats
Mon Feb 23, 2009 2:38 am
Forum: General Discussion
Topic: Allergy to mannitol?
Replies: 10
Views: 4750

Wow - in my nervous quick search I somehow missed this. I think I probably misread a connection with REBIF. Do you feel that powdered form of Avonex is better than pre-filled? I have a feeling Avonex will be my next step. I had been very clear internally that if I had to take an interferon there was...
by tomkats
Sun Feb 22, 2009 3:59 am
Forum: General Discussion
Topic: Allergy to mannitol?
Replies: 10
Views: 4750

Allergy to mannitol?

I am a longtime thisisms fan but this is my first contribution. I am very grateful to the regular contributors who have helped me through many struggles along my journey. I was diagnosed 5 years ago and was on Copaxone successfully up until a few months ago when I began to have an allergic reaction ...

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