This Is MS Multiple Sclerosis Knowledge & Support Community

I was diagnosed with Progressive MS , 14 years a go .
since then , I got worse and worse slowly until 4 years back
all sudden 4 years a go my MS became very aggressive , lost my mobility in matter of 2 years and developed many more symptoms over last 4 years

brave

I do have prescription for LDN and have taken it last 3 months but my compound pharmacy charging me $60 for one month supply (3 mg)
do you know of any Pharmacy who can supply the prescription for less and ship it to me?

Thanks in advance

I personally believe Cece is knowledgeable and spend good amount of time researching . She is very care and tries to share her knowledge with other MSers BUT is every individual's responsibility to judge for yourself. If you disagree with her opinion just don't buy her opinion and move on , let othe...

I have been trying to find common base for successful CCSVI or unsuccessful procedure. here is my understanding, seems new diagnosed patients have a higher chance benefiting from CCSVI. I haven't seen any major improvement reported by MSer who have had MS for 5-6 years or longer or maybe at advance ...

Hello Dr Sclafani I had my CCSVI procedure done at Albany on 11/24/10 looking at my ultrasound result (before procedure), I see that I met criteria #1 and result was negative for other 4 tests criteria #1: Gray-Scale abnormalities of the proximal internal jugular veins. This is positive when valve a...

Surfbird
I live in CA, was diagnosed with MS, 12 years a go and since then, have changed company 4 times.
Never been denied to obtain insurance through my employer. just make sure to stay insured between jobs to be qualified for HIPAA later if needed.

brave

I had sleep apnea .
I had CCSVI about 2 months a go.

resoling my sleep apnea is the only improvement that I have noticed so far.

brave

Hi T19 I just saw my Neurologist today. I was on Tysabri for one year then was on break for 4 months . now he wants me to re-start taking Tysabri and ordered JC test for me. I asked him many questions about JC test and how the result might impact his decision on putting me on Tysabri? here is what h...

welcome Sandrab to TIMS I have had PPMS for 12+ years and have been on Avonex(5 years),Copaxon (3 years),Rebif (5 months) , Avonex again (1 year) and Tysabri (1 year), . None of them helped to slow down my progress . I fainted in office while I was on Rebif for 3 months. Having said that, we know th...

Cece,

great news, I wish you the best & I hope you are one of the lucky ones who sees mprovements CCSVI.

brave

Thanks for all replies again, I saw Dr yesterday and he stopped my Aspirin even though I have a swollen foot. it's strange that some days my I see just spots and like getting close to finish line but all sudden picks up heavily again. after CCSVI, I have been on Aspirin 325 mg daily until yesterday....

Thank you very much all for your replies.
Even though I'm weak and frustrated with my cycle, your words give me hope.

Cece ,
I appreciate your time, searching for related posts and pointing me to those links.

Thanks again,
brave

Thanks for sharing scorpion, sounds promissing

Hello Ladies
I had CCSVI done 45 days a go, my first period after procedure, has been extremely heavy and has lasted 15 days.

This worries me and makes me very weak. Have you had any issue with your period after CCSVI?

Thanks,
brave

Thank you all for your concern and pushing me to see a Dr. today I saw a cardiologist and he insisted there should be a clot but so far ultrasound from legs and x-ray from lung hasn't shown any clot . I'm waiting for lab test result to make sure no failure in kidney More tests are scheduled for Thur...