Search found 25 matches

by brianm
Wed Jun 01, 2011 2:14 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Could supplemental oxygen help patients PRE-VENOPLASTY?
Replies: 16
Views: 4667

This will be interesting cause I just wore that thing overnight. Im waiting for results
by brianm
Thu Apr 21, 2011 12:19 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Major decision please read......
Replies: 34
Views: 8227

Im gonna wait, even though I have felt my m.s. progressing its just been fatigue and nothing else yet. I think if I was having major issues I would go ahead with it. Thanks to everyone here....Brian
by brianm
Sun Apr 17, 2011 2:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Major decision please read......
Replies: 34
Views: 8227

Im gonna wait a little longer i think, my MRV was from the head up and showed 1 cranial vein pinched. that was enough evidence for him to proceed. Just a tough situation, dont want to wait till its to late.
by brianm
Sun Apr 17, 2011 1:10 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Major decision please read......
Replies: 34
Views: 8227

It is in Fresno Ca. and yes insurance is gonna pay. I talked to a localIR here who is gonna do it for me. Just getting cold feet, I think im gonna wait.
by brianm
Sun Apr 17, 2011 12:16 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Major decision please read......
Replies: 34
Views: 8227

Major decision please read......

My appt for venogram ccsvi is at the end of the month. Im getting cold feet regarding restenosis. why get the surgery if you are more than likely going to restenose after a year? FYI im not really disabled yet soo im having trouble convincing my wife. Ugh Brian :cry:
by brianm
Thu Dec 02, 2010 4:27 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Out of network coverage?
Replies: 1
Views: 1515

Out of network coverage?

I need help with this,
Has anyone with an HMO succesfully gone out of network and had insurance cover the cost? This is the position I am in
by brianm
Fri Oct 29, 2010 8:45 am
Forum: General Discussion
Topic: Just got diagnosed, can't find a reason
Replies: 7
Views: 2710

Calm down and relax.....im 35 now and have had it since my early 20's. I am working full time and have had the exact fear that you are talking about. You are young and have your whole life ahead of you, just take it one day at a time. You will learn to adjust as things happen and you will adapt. Ada...
by brianm
Thu Jun 25, 2009 10:40 am
Forum: General Discussion
Topic: What Next??
Replies: 0
Views: 1404

What Next??

Well it seems that the Tysabri is not slowing down this damn disease, Ive only had 2 infusions but i am progressing. I have to talk with neuro next week to discuss further treatments. should i stick this out on tysabri or look into something different? Oh I have had 2 mris in the last few months wit...
by brianm
Thu Jun 18, 2009 5:23 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: severe brain fog after Tysabr..
Replies: 5
Views: 3665

Well had #2 last week and I feel like I am finally stabilizing! knock on wood....LOL I still have some cog fog but not like a few weeks ago, i think that is just be the MS and nothing more. I hope this only gets better...
by brianm
Mon Jun 01, 2009 5:47 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: severe brain fog after Tysabr..
Replies: 5
Views: 3665

well I have a mri scheduled for wed. and this should give us some info. Im tired of the cog fog, but this weekend i felt a little better maybe cause im getting used to it. this disease is strange and i will go with my gut feeling to give it at least 3 doses, but my neuro may say no more. all i know ...
by brianm
Sat May 23, 2009 3:47 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: severe brain fog after Tysabr..
Replies: 5
Views: 3665

severe brain fog after Tysabr..

Had my first dose 2 weeks ago and I am feeling out of my skin looking in, its horrible and my neuro thinks its stress related since it started a few days ago. we did a blood test and everything was normal, so what now is something that should pass its awfull!
by brianm
Fri May 22, 2009 2:59 pm
Forum: Tysabri (Antegren, Natalizumab)
Topic: Where to go from here ?
Replies: 7
Views: 3405

gees these are the same symptoms I am having, actually i am awaiting a call from my neuro. on the results of a blood test i took yesterday. I am having SEVERE brain fog in which it is interfering big time. Just had my first infusion 2 wks ago.
by brianm
Fri Mar 13, 2009 11:56 am
Forum: General Discussion
Topic: Halt-MS study??
Replies: 1
Views: 1668

Halt-MS study??

I need some imput from you all regarding this study. Would you do it or not? Im really considering taking the next step in the review process just kinda having second thoughts...
by brianm
Wed Mar 04, 2009 4:06 pm
Forum: General Discussion
Topic: anyone else have eyes that are working slower?
Replies: 24
Views: 4798

jimmylegs I think i am going to get the zinc tested..it definately cant hurt right?lol
by brianm
Wed Mar 04, 2009 2:10 pm
Forum: General Discussion
Topic: anyone else have eyes that are working slower?
Replies: 24
Views: 4798

It just seems that most people that have m.s. eye probs have double vision or some vision loss. I have not had that (yet)lol and hopefully i wont, my main issue now is the ability to look someone in the eye and have a conversation with them. If they are talking to fast i cant keep up and i need them...

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