This Is MS Multiple Sclerosis Knowledge & Support Community

Loobie, Wonky, I'm really glad for you both. I hope the improvements continue.

You know, I'm not quite sold on CCSVI yet, but, in any case, I should imagine that benefits would not be immediate for PP and SP. Perhaps the bestis yet to come?

Great, thanks for that!

Does anyone know, if a person can't have MRIs (me and it's a long story) how would CCSVI be assessed? Does anyone know of any methods other than catheter investigations in all likely veins? They use MRI for the doppler imaging, right? I suppose that this may become something, if CCSVI theory stands ...

It's been about three weeks since my second of the two infusions. Perhaps I've had a tiny, tiny improvement.. In any event, I wasn't anticipating any improvement, I'm just hoping on svoiding my seasonal Spring relapse. So, I just t5hought that I'd post to say 'nothing to report'.. By the way, I'm ve...

http://news.bbc.co.uk/1/hi/health/8374980.stm


PS Thanks, Cheerleader, for your reply to my last post in this forum.

Thanks for that. That makes sense.

So I suppose that the answer as to how CCSVI theory might explain the way that I, exclusively, have relapses only in Spring, is pretty much the same answer as that for the demography/geohraphic distribution and MS thread in this forum?

Thanks again.

Dose Cyclophosphamide in the treatment of MS?

Sorry if that's been asked before, I waswn't paying attention..

Is this good? I think it sounds good.. http://www.sciencedaily.com/releases/2009/11/091119135640.htm Spinal Cord Injuries: Experimental Drug May Restore Function of Nerves ScienceDaily (Nov. 20, 2009) — Researchers have shown how an experimental drug might restore the function of nerves damaged in s...

A few weeks ago while I was in hospital having a Rituximab infusion I was sharing a room with a fellow with Guillain-Barré Syndrome. He complained of just this same thing. He said that a mouthwash of very cold, strong, black tea helped enormously stop any ulcers and help with any pain. And, searchin...

Ah, ok, Fampridine. Thanks. Old news then..

I never heard of this before.. < shortened url > An FDA panel is looking into the possibility that a new drug named Ampriva is helping people with Multiple Sclerosis. The drug is a reconfigured form of fampridine, which was originally used as a bird poison. The Food and Drug Administration is lookin...

Thanks Frank. It's true.

We are very unlucky to have MS but we are fortunate to have people who are dedicated to solving our problems.

A blog post which summarises three recent items of researcgh with regard axonal regeneration in spinal cord injury

http://nextbigfuture.com/2009/11/advanc ... -cord.html

It all amounts to something very, very promising..

No side effects to report. The literature talks about a 20% who suffer not-so-serious side effects buit my infusion nurse said that these figures were based on clinical experience with cancer patients and that she would expect the rate to be far lower with MS patients.