This Is MS Multiple Sclerosis Knowledge & Support Community

Hey LR, Thanks for your post. Yes i read on a different thread, I think it was Jules's (who i have also been in contact with) where you said you had heaps of MRI's and LPs and finally something showed. I was tempted to butt in and ask about all that, what symptoms and over what time frame etc. as it...

Hi JL, Thanks for your post. I have now been to 3 neurologists, seen 3 or 4 Physicians, had 2 MRI's and a lumber puncture, an EEG a video Telemetry (an EEG with video recording over 2.5days including nights) god only knows how many bloods, etc. etc. Anyhow we finally have got a tentative diagnosis b...

Hi Jules, Thanks so much for your thoughts and concerns, they are very much appreciated but don't worry about me you have enough of your own to worry about. I am not entirely convinced it is not MS but i hope like hell it isn't. At least i can live a life of denial for a bit longer. I was amazed tha...

Hi Jules,
I have just been to the Drs and the results were through already. Guess what__________Clear. That is good news but i don't know where to go from here.

Talk soon,
Scotty.

Hi again, I have just been to the Drs and the report on the MRI was normal. Good news in some ways but bad in others as i am still none the wiser as to what is wrong with me or where to turn to next. I have 2 more Neuro appointments, so will wait and see what they have to say. Thanks for listening, ...

Hi Jules, MRI done, i got some sedation but still had some tremmors so they had to do parts of it again. I got the tests done without contrast first and then with contrast. My next concern is the quality of the MRI machine it was only a 1.5t and so i am not sure if that will definately show anything...

Hi Guys, I had my MRI done today, the machine was a 1.5t. Would that be a sufficient quality machine to show leisions in early stages? I have read articles that state that there are different qualities and someboby posted that "all the low quality MRIs in the world arn't going to do you any goo...

Jules, What you are saying is correct. I Have had the head MRI and a spinal tap, both were clear in November (i think). So that is why i am going for the full head neck and spine and this time also with contrast. You need to be persistant if you suspect there is anything wrong. From my experience, t...

Hi Jules, Glad that part is all over for you. Sounds like it was a bit tough but you pulled through ok, so that's the main thing. Yes mine is on Friday and i had not told them that i would need anesthetic but i cannot guarantee that i can stay still for that long as i have lots of tremmors in my lef...

Hi Jules,
Have been thinking of you and suppose you are a nervous wreck. Please try and be strong think of all the support from family and friends. just wanted to wish you good luck for tomorrow.
Will be thinking of you tomorrow, all the best,
Scotty.

Jules, If it is MS that i have, then yes i believe that i have had the MS hug. The first time that i had it i was in excruciating pain it felt like i was being squashed around the chest region. I thought that i was having a heart attack and was screaming in agony. At times i actually passed out and ...

Hi Lyon, I am not sure about the MRI machine that will be getting used but i presume that it probably won't be "state of the art" seeing as it is a mobile MRI machine that tours 3 regional areas. I have read that the quality of the machine can make a big difference. I live in a regional ar...

Hi Jules, Remember i told you i was having a telemetry test in Brissie. The test came back clear, no brain activity with my seizure like symptoms. So guess what, the neuro that had ordered the test phoned and basically gave me the boot. Her secretary had the cheek to tell me there was nothing they c...

Hi Guys, I had a "telemetry" last week to see if any of my symptoms including tremmors and seizure like symptoms inc. what i believe is the MS Hug were in fact brain related. Guess what another test bites the dust. Nothing to report. The bad part is is that the Neuro that referred me for t...

Hi all, I am wondering how many of you out there have had the usually touchy feely tests done by nuros and specialists and come back clear. This may seem like a strange question but i have had a few of these tests done over the last few years and each time they say there is nothing abnormal with my ...