Search found 55 matches

by queenie
Sun Aug 01, 2010 10:26 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Is Campath helping you?
Replies: 8
Views: 3889

15 months post campath

Am on a TON of meds, but they are for HBP, neuropathic pain (cymbalta), and vits B and D. Now I also take provigil, because I work long hours and was falling asleep at the wheel. Hated to add this, but preferable to hugging a tree at 50 miles an hour, or harming someone else. Definately feel the eff...
by queenie
Sun Aug 01, 2010 10:06 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Campath 12mg - 2nd
Replies: 6
Views: 3190

campath s/p round 2

The palpatations are still with me almost 3 months post, however they are much resolved. My cardiac w/u was normal. Subjectively, I feel like I am slipping. However, objectively, I am improving. I guess the least I can say is that I am holding my own. Still working long hours full time, but doing le...
by queenie
Thu Jun 17, 2010 3:23 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Campath 12mg - 2nd
Replies: 6
Views: 3190

I finished my second set of infusions about 3 weeks ago. Like the first time, I tolerated it well, without any symptoms to speak of. I didn't even get a rash this time, just a red face and chest that resolved fairly quickly. One strange thing is that the night I finished the 3rd infusion, I started ...
by queenie
Tue Oct 13, 2009 3:52 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: HELLO EVERYONE!! JUST GOT CAMPATH 2 MONTHS AGO!!!
Replies: 15
Views: 6228

Hello, guys.
I am nowalmost 6 months post first infusions.
I'm feeling pretty good!
So glad I took it.
I read that the study is closed now, so I feel really lucky that I was able to get it.
by queenie
Tue Oct 13, 2009 3:48 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Flu shot, post campath: Yes or no?
Replies: 6
Views: 3031

Yes, leetz, that's right. Dead vaccines only. The new H1N1 is dead, and I plan to get it. The nasal one is live, so just say no!
by queenie
Wed Oct 07, 2009 6:54 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: awesome results
Replies: 36
Views: 9569

Yes, they check wbc counts monthly, as well as a slew of other things. My wbc has slowly been climbing, finally breaking 3 at 5 months.
by queenie
Mon Oct 05, 2009 7:16 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: 8 month update, and a long rant.. enjoy....
Replies: 9
Views: 4542

At almost 6 months, I am doing very well. I no longer have the wierd neuropathic pain in my groin, but still take the cymbalta. I DID cut back from 80 mg to 60. Yesterday I developed bad eye pain. I thought I scratched my cornea, but now I am wondering if I have optic neuritis? Anyway, other than th...
by queenie
Sun Sep 27, 2009 7:09 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Five month update, shamless self promotion, and a question?
Replies: 5
Views: 3442

I am five months post Campath. My counts dropped to expected levels, and have been rising slowly and consistantly. I have not been sick once with any illness. I have not caught my DD's bad, bad cold. I feel better than I have in 20 years! I am ready and willing to sign up for year Two! O do not miss...
by queenie
Sun Sep 27, 2009 7:01 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: awesome results
Replies: 36
Views: 9569

I am sooo happy to hear from someone 3+_years in!!! I am at 5 months, but feel better than I have in 20 years! I wonder what happens after the year 2 infusions. If they offer them yearly, I AM IN!!! This is the best news I have had in some time! Please respond, as I need incouragement. I have found ...
by queenie
Sun Sep 27, 2009 6:50 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Flu shot, post campath: Yes or no?
Replies: 6
Views: 3031

Trixie: Thanks for posting! My research nurse finally told me it is okay, as long as I don't get any live viruses. The flu shot is a dead virus. I got it about 2 weeks ago, and all is good. As a healthcare worker (RN) my state has mandated it unless I have a very specific dr's note. Any way, I am fi...
by queenie
Fri Sep 25, 2009 6:47 pm
Forum: General Discussion
Topic: BIG dose o'prednisone ?
Replies: 12
Views: 2836

That is not an especially high dose, except that if you need that much, you probably should be getting it IV.
Something for your tummy and sleep is standard.
by queenie
Fri Sep 11, 2009 8:57 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: awesome results
Replies: 36
Views: 9569

Makes me happy!!!
I am going into month 5, and feel better than I have in about 20 years...
by queenie
Tue Sep 08, 2009 6:17 pm
Forum: General Discussion
Topic: Worried about my daughter
Replies: 12
Views: 2878

I have had similar concerns, altho with less dramatic presentation, with my DD that is 21. I have long thought her to be clumsey and uncoordinated, well before my dx. Does anyone see something familiar here? Anyway, since she got mono a year ago, she has not seemed weel, and really messed up her jun...
by queenie
Tue Sep 08, 2009 1:45 pm
Forum: Reading Nook
Topic: Reading Group
Replies: 55
Views: 29447

I've posted a few times, but it seems like folks don't reply much.
Thanks for the link to your blog. I will check it out.
by queenie
Mon Sep 07, 2009 10:37 pm
Forum: Reading Nook
Topic: Reading Group
Replies: 55
Views: 29447

Oops. You are correct, Agate. That post was from 2006!
Well, I'm gonna take a stab at the book anyway. I'm going on a little 5 day trip to Cozumel on the 17th, and was looking for some good things to read. Any suggestions?

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