This Is MS Multiple Sclerosis Knowledge & Support Community

I'm going to try to get in touch with Jacob's and although I've been to the website, the only information I see is an email....is there a phone number to call?

I absolutely do not miss this drug at all. It was pretty much a nasty daily experience for me--despite trying to keep a positive attitude. So glad I'm not taking it...but then I haven't started anything else just yet...so I may prefer that horror to some other one. Good luck out there.

http://www.newsdaily.com/stories/tre57g4ke-us-ms-drug/ Would love to hear what my knowledgeable friends on this board think about this announcement. Drug that keeps blood vessels from contracting. Not as a new treatment per say--but seems this might fit into the CCSVI model. CHICAGO, Aug. 17, 2009 (...

Well--this is a non-issue now for me. My doctor took me off after I had a weird reaction last week (bone-shaking chills and what I'm now calling the insta-flu--came on about 30-40 minutes after shot and lasted for 20 minutes). So Avonex is next stop. But I'm in no hurry to go there....I am disappoin...

My doctor actually took me off it with a suggestion to try Avonex. Felt it was an allergic reaction. Not sure what I'm going to do now. I stuck with it for 10 weeks and I'm a bit sorry I never got to the point where, SS claims, you stop getting the big welts....and I don't look forward to the Avonex...

What I thought was interesting was the bit about repeated compression by the adjacent artery possibly causing the stenosis. Contributes to the whole stenosis comes first model, perhaps? I wonder if in some of us the jugulars aren't repeatedly compressed if not by the artery but by other repetitive f...

Okay--I'm new here and honestly, my eyes cross at some of the science underlying the theories (but believe me--I get the theory--that part seems amazingly simple!!). But I stumbled across this article and thought I'd throw it out there for those wiser than me to comment on. I apologize if this is ol...

Wow K what a tale! If one is suspicious about the CCSVI model then this is interesting, you kind of wonder if you have a stenosed area that plugged for a bit after the anticoags were gone and that triggered the lesions maybe. are you getting checked for this new model? Hey there--sorry I didn't res...

I'm about 10 weeks in on Copaxone and have had really unpleasant site reactions which I am dealing with the best I can. But tonight (weirdly after I posted yesterday asking how others were doing!) I had what I think was a delayed reaction to my shot. (This one did hurt a bit going in which was unusu...

Just checking in. It's been a few more weeks and the site reactions haven't really improved. In fact, one neuro I saw was kinda shocked that they were so bad. She's actually suggested I try Avonex but I'm going to hang in there until the 3 month mark and see if I get any improvement. So those other ...

My doc's at Georgetown--I'm all over him about this when I go in August!!

I was on Coumadin for 9 months following a stroke (carotid dissection) and I can tell you it was a pain in the tuckus--not to mention the arm. Everything I ate or did seemed to affect my levels and I finally had to resign myself to checking it once a week at the doctor's office. Really--there is no ...

cheerleader wrote:Kay...
Here's the link to the thread on MRI/MRV clinical trials Holly posted:
http://www.thisisms.com/ftopict-7473.html

I didn't see MRV mentioned in there--just MRI. I wasn't reading that closely though as my eyes are troubling me today and a little computer weary.

Thanks though!
KKA

Back to NIH... Ummmm I think that NIH is prepping for the CCSVI studies due to their 2 clinical trials regarding MRV's Yes i agree that NIH is a fantastic org. i have a bro-inlaw that works w/them. and i have used them for Mental health rehab training from my past working life. Could someone point ...

Hey marc--I Pm'd you but wanted to ask real quick--did you really get the impression that they are gearing up to do CCSVI studies there? Because she told me they didn't have the Doppler specialist needed and said that almost anybody else does--every research university in the country is what she sai...