Search found 9 matches
- Sun Feb 13, 2011 7:41 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: just came from my routine 3month campath visit
- Replies: 4
- Views: 3979
hi, thats what i had thought originally and was surprised when they stated now that it was going to be yearly until campath was approved. i was a little hesitant, but i don't want to chance it. my ms was pretty aggressive until i started the campath infusions. anyway i was hoping it was two and out ...
- Mon Feb 07, 2011 9:40 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: just came from my routine 3month campath visit
- Replies: 4
- Views: 3979
just came from my routine 3month campath visit
anyone else been offered an extension for the campath clinical trial? genzyme wants to do yearly infusions now. any info would be good, i am setting up for my next infusion in end of april. this will be number three for me the initial 5day dose, followed by 3day dose. then i guess this will be a mai...
- Wed Jun 09, 2010 3:09 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: Is Campath helping you?
- Replies: 8
- Views: 5026
hi maria, i got my second infusion in the end of april and i too am feeling pretty bad right now, if it wasnt for ampyra i dont know how i could function at work. my legs are so weak differently than pre ampyra muscle weakness versus the weakness from my ms. i am stable though no new symptoms vs in ...
- Wed Sep 30, 2009 1:29 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: 5 month update
- Replies: 0
- Views: 2479
5 month update
well ive past the 5 month mark. no relapses so far, i think... no real changes in symptoms. my chronic sleepiness since december is decreasing somewhat, but that may be normal for relapsing remitting since it has been 9 months since that symptom came up. but all my old symptoms are still the same. i...
- Tue Jul 21, 2009 7:17 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: Second round of infusions start tomorrow
- Replies: 17
- Views: 7568
- Tue Jun 30, 2009 8:19 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: new to the forum but had first set of infusions in april
- Replies: 14
- Views: 5149
thank you queenie i will keep in touch for sure. get so busy with work and taking the kids to there evening activities... freiguy thanks for the reply the info from people that have actually recieved campath is great. it is hard to meet people with ms, you all know how it is not a very common diseas...
- Sun Jun 28, 2009 8:17 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: new to the forum but had first set of infusions in april
- Replies: 14
- Views: 5149
queenie, my main symptoms right now that really bother me are fatigue (sleepiness), back pain and leg weakness but am still able to ride a bicycle at the gym at a decent resistance level 5 days a week, even though i pay for it during the week. im 35yo still work 64hours every two weeks. i dont reall...
- Sun Jun 28, 2009 11:54 am
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: new to the forum but had first set of infusions in april
- Replies: 14
- Views: 5149
thanks for the advice its just hard with this disease to adjust and I think a problem also is all of the info on the internet of campath being some kind of wonder drug. and since ive only really started having symptoms (a bunch.) over the last two years, I guess im still scared, even though i fool m...
- Fri Jun 26, 2009 7:02 pm
- Forum: Campath (Lemtrada, Alemtuzumab)
- Topic: new to the forum but had first set of infusions in april
- Replies: 14
- Views: 5149
new to the forum but had first set of infusions in april
just wondering how people felt two months post infusion, still feel the same symptoms havent decreased, just curious maybe im expecting too much too soon. dx 07/2007 thank you..