Search found 9 matches

by charlie1
Sun Feb 13, 2011 7:41 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: just came from my routine 3month campath visit
Replies: 4
Views: 3979

hi, thats what i had thought originally and was surprised when they stated now that it was going to be yearly until campath was approved. i was a little hesitant, but i don't want to chance it. my ms was pretty aggressive until i started the campath infusions. anyway i was hoping it was two and out ...
by charlie1
Mon Feb 07, 2011 9:40 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: just came from my routine 3month campath visit
Replies: 4
Views: 3979

just came from my routine 3month campath visit

anyone else been offered an extension for the campath clinical trial? genzyme wants to do yearly infusions now. any info would be good, i am setting up for my next infusion in end of april. this will be number three for me the initial 5day dose, followed by 3day dose. then i guess this will be a mai...
by charlie1
Wed Jun 09, 2010 3:09 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Is Campath helping you?
Replies: 8
Views: 5026

hi maria, i got my second infusion in the end of april and i too am feeling pretty bad right now, if it wasnt for ampyra i dont know how i could function at work. my legs are so weak differently than pre ampyra muscle weakness versus the weakness from my ms. i am stable though no new symptoms vs in ...
by charlie1
Wed Sep 30, 2009 1:29 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: 5 month update
Replies: 0
Views: 2479

5 month update

well ive past the 5 month mark. no relapses so far, i think... no real changes in symptoms. my chronic sleepiness since december is decreasing somewhat, but that may be normal for relapsing remitting since it has been 9 months since that symptom came up. but all my old symptoms are still the same. i...
by charlie1
Tue Jul 21, 2009 7:17 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: Second round of infusions start tomorrow
Replies: 17
Views: 7568

Time for your campath refill!! good luck, though im sure everything will be fine.
by charlie1
Tue Jun 30, 2009 8:19 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: new to the forum but had first set of infusions in april
Replies: 14
Views: 5149

thank you queenie i will keep in touch for sure. get so busy with work and taking the kids to there evening activities... freiguy thanks for the reply the info from people that have actually recieved campath is great. it is hard to meet people with ms, you all know how it is not a very common diseas...
by charlie1
Sun Jun 28, 2009 8:17 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: new to the forum but had first set of infusions in april
Replies: 14
Views: 5149

queenie, my main symptoms right now that really bother me are fatigue (sleepiness), back pain and leg weakness but am still able to ride a bicycle at the gym at a decent resistance level 5 days a week, even though i pay for it during the week. im 35yo still work 64hours every two weeks. i dont reall...
by charlie1
Sun Jun 28, 2009 11:54 am
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: new to the forum but had first set of infusions in april
Replies: 14
Views: 5149

thanks for the advice its just hard with this disease to adjust and I think a problem also is all of the info on the internet of campath being some kind of wonder drug. and since ive only really started having symptoms (a bunch.) over the last two years, I guess im still scared, even though i fool m...
by charlie1
Fri Jun 26, 2009 7:02 pm
Forum: Campath (Lemtrada, Alemtuzumab)
Topic: new to the forum but had first set of infusions in april
Replies: 14
Views: 5149

new to the forum but had first set of infusions in april

just wondering how people felt two months post infusion, still feel the same symptoms havent decreased, just curious maybe im expecting too much too soon. dx 07/2007 thank you..

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