This Is MS Multiple Sclerosis Knowledge & Support Community

Just got this in my daily MS google news alerts, sounds very promising, we'll see what the mice say

Didn't the vagus nerve angle present during the early ccsvi days? I recall it was basically ruled out insofar as stenosis being caused by the vagus nerve, so imagine my muted excitement reading this incredible article, results going into phase III look promising. For Crohn's and RA too. Wow. 3 trial...

When your orthopedic surgeon asks "what's MS", just walk out. Seriously.
You don't have to be an expert or anything, but I'm pretty sure the average Joe on the street knows say "arthritis" . Let alone a medical professional not having a CLUE about MS?

Pangs here too. My buddy that drove me up there back then is gone now too, he was standing right there when I called her on the way back. It is fun though to twist the young doctors arms, the ones fresh out of med school. Awww, so cute look at you with your pretty smock. I say "Stanford" i...

Agreed. Will never forget her. Am now consulting with a neurosurgeon and a stellar new ortho surgeon who knows all about the modified Eden Lange procedure aka triple tendon transfer, the gold standard for acc damage. Last ortho called it "scapular instability" and gave me PT. I could have ...

After 7 long years and many orthopedic surgeons finally figured out that yes indeed, do have confirmed accessory nerve damage on left side which has rendered that shoulder nearly immobile for a long time. I told THEM, "hey I remember ACC nerve damage causing shoulder problems way back after ste...

Granted you came in late to the discussion. Dake is a fraud period. He flat out lied to my face in his office in 2009 when I asked why the left stents were visible but not the right, it's all in the follow up surgery notes, I just didn't know what I was looking at back then. Now I do. He knows. Joan...

Just to add for posterity. My spinal accessory nerve was also damaged, this was only discovered recently after over 6 years of left shoulder problems. And of course had to figure it out on my own, after having orthoscopic shoulder surgery in 2016, now PT etc. Never made the connection until a few we...

Long time Exactly 1 month ago, I had a C4-7 disc fusion, hybrid surgery. You can clearly see my left side "stovepipe", they came in from the right since there was no Stent there. [https://photos.imageevent.com/markandsuzy/cervicalacdfsurgerywithmobicdisc/large/20210626_141648.jpg] The top ...

As a matter of fact the excess of ballooning is causing more injury in an already compromised vein and I guarantee you the body will react to that.

"And when you have Zamboni himself... concluded that “the liberation treatment” for MS does not work" Perhaps you can explain why he came to this conclusion a couple of years ago, more importantly why he has not changed his position since then and why this important fact is overlooked by ...

Where is the migrated stent lodged? Not the heart but an artery feeding the lungs? I would be so mad, not at it happening but that you weren't informed and options considered back when there were options. In the right pulmonary artery yes. My pulmonologist said " wow I've never seen that befor...

Thats the problem, we're talking about a nickle titanium stent that was made for veins, not for the vasculature that directly feeds the lungs. There is some kind of really nasty looking inflammtory process upper right lobe that has them stumped so far, I've been tested for just about everything, all...

Medical protects medical. That simple. I should forward them two mri/ post op reports, one from August 2009, one from April 2010, then ask if they would like to amend their glowing presentation propaganda on Dr. Dake to include " pioneered groundbreaking cath procedure on MS patients in 2009&qu...

Copied from my reply on another thread. Just bored so what the heck. Its not helpful (CCSVI Treatment) because treating doctors are not research doctors, just good guessers for a fee. Zamboni was doomed from the start with his poorly structured trials. Once the IR's figured out that treating then re...