This Is MS Multiple Sclerosis Knowledge & Support Community

Hi CCSVI is now recognized by Google trends due to the Canadian TV report! http://www.google.com/trends?q=ccsvi&ctab=0&geo=all&date=all&sort=1 Before Google showed: "Your terms - ccsvi - do not have enough search volume to show graphs." But there is still a long way to go a...

Hi

I've found another link
http://watch.ctv.ca/news/w5/the-liberation-treatment/

I think this link has not been posted yet. If so, sorry for the duplicate.

I've to watch the video now.

Regards,
ibex

Hi Since last Sunday CCSVI is mentioned on the German Multiple Sclerosis Wikipedia article. :D :mrgreen: Multiple Sklerose > Chronische cerebrospinale venöse Insuffizienz After a discussion with one of the main authors of the MS article, he decided to write himself about CCSVI. :D CCSVI is also pres...

Pepe wrote:WHO IS WHO in CCSVI?

I've created a FAQ page on our site:
CCSVI: Who is who?

It's a starting point... if I find more time I'll enhance it...

It may interest you.

Regards,
ibex

Hi What about writing a CCSVI news article to the TIMS front page? It seems that the latest news article was added in 2007. Compare with http://www.thisisms.com/archive.html I think it's better if a native speaker writes a text. The submit link can be found on the front page. Thanks to Juan for sugg...

Hi, Thanks to Juan and Fernando for working on the website! 8) Our goal is to update the site regularly. Currently, the topic is very dynamic! :D Updated or new pages are: http://csvi-ms.net/en/content/media-coverage http://csvi-ms.net/en/content/publications-venous-multiple-sclerosis http://csvi-ms...

Who is maintaing http://csvi-ms.net/en That's me. muse and me started this website project in July. That would be a good site for all CCSVI resources. It's our goal to collect all the relevant CCSVI information and to present them in a somewhat formal way. Any collaboration is welcome. From sending...

cheerleader wrote:By working together, we can spread the word more quickly.

I want only to let you know that we're working on the German-speaking world.

Hi CureOrBust Thanks for your remarks! :D As always if you have corrections or suggestions, please let us know. I had a quick read of a few pages, looks good. A couple of suggestions from memory. The definition of TIMS says "with forum in USA ". I think it is more appropriate to say "...

Hi! Finally, we're ready to announce that our website is fully multi-lingual and that the first English and French content is available. :idea: Venous Multiple Sclerosis | CCSVI in English Sclérose en plaques veineuse | CCSVI in French The current content is just a starting point. 8) If you want to ...

Hi

cheerleader wrote:1000 patients and controls are being tested for it by Jacobs Neurological Institute in Buffalo.

Do you have some information about this test? Until now I haven't found anything.

Cheers,
ibex

I've been writing in the german wikipedia since a while, also on the MS article. Lets wait for the September conference results and afterwards - if you have time for it - we could work together on a concept, of how to extend the WP article. Hi Frank Thanks for your suggestion! It's good to have som...

Hi everybody @cheerleader: Wow. That was fast! Good Google search result. Congratulation :-D This seems to be really a simple element, but nevertheless very effective! It's another approach to the topic, with images, fans, ... I assume this will really help to spread the idea and may have a huge imp...

Wow.

That was pretty fast!

Cheers,
ibex

Hi everybody! what about starting a facebook page for CCSVI too - otherwise facebookers searching ccsvi will be disappointed.. UNLESS they do happen to be in the market for compressor parts and service in the caribbean, that is! Good point! And now is the question: How does it? Unfortunately, it's n...