Search found 11 matches

by TvG
Sat Feb 18, 2012 2:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Evolution in QOL after CCSVI, Belgium
Replies: 1
Views: 1064

Evolution in QOL after CCSVI, Belgium

Evolution in quality of life and epidemiological impact after endovascular treatment of CCSVI in patients with MS R Beelen*, L Maene*, P Castenmiller†, V Decoene* and I Degrieck* *Department of Cardiovascular and Thoracic Surgery, OLV Hospital, Aalst, Belgium; †Department of Surgery, Hospital Zorgs...
by TvG
Sat Jan 08, 2011 5:33 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: I think I found it: This Is MS
Replies: 19
Views: 7294

Most likely 'MS' is more a collection of different pathologies resulting in the same loss of neurons/myelin (and symptoms). As long as we keep searching for 1 overall explanation for 'MS' I don't think it will be found... Asuming that CCSVI plays a huge role in breaking down the BBB as the main caus...
by TvG
Thu Oct 28, 2010 8:12 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI-Tracking.Com
Replies: 31
Views: 8968

You’re right welshman, we track the symptoms monthly and we start in the month before the treatment. The aim is to collect long term data. We have a team in place to assist participants and to remind participants to enter their data if needed. Data is collected regardless of the effect of the treatm...
by TvG
Wed Aug 18, 2010 1:37 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: TIMS Survey?
Replies: 14
Views: 2939

ccsvi-tracking.com

CCSVI-Tracking.com shows the effect of the Liberation Treatment in MS patients in graphs. Registered participants can input their data (personal experience of symptoms and professional examination results if available) every month and view their personal graphics. Aggregated graphics will soon be a...
by TvG
Sat Jun 19, 2010 4:12 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Results CCSVI-research Amsterdam
Replies: 2
Views: 1745

He was in Italy for doppler-instructions.
They will start a new study with more patients and other scanning techniques...
by TvG
Sat Jun 19, 2010 12:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Results CCSVI-research Amsterdam
Replies: 2
Views: 1745

Results CCSVI-research Amsterdam

English subtitled video of the broadcast on Dutch television is available on YouTube.
Unfortunately, they found nothing; didn't use the right protocol so that was expected... :evil:
by TvG
Tue Jun 15, 2010 10:36 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: [b]EDSS-FSS- MSF and MSIS[/b]
Replies: 5
Views: 1979

Snowbound, soon http://www.ccsvi-tracking.com will be available.
MarkW, you're right that most of these are subjective but this project also makes it possible to registrate and view measurements by professionals...
by TvG
Sat Feb 13, 2010 3:14 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI on Dutch TV
Replies: 4
Views: 2201

CCSVI on Dutch TV

English subtitled video of the CCSVI-broadcast on Dutch television is available on YouTube.
by TvG
Fri Nov 20, 2009 12:36 am
Forum: Low Dose Naltrexone
Topic: Experiences with Low Dose Naltrexone
Replies: 70
Views: 63171

I'm over 6 weeks on 3mg LDN now and still notice more energy (better dreams) but unfortunately also much more stiffness/spasticity every week. It's a hard decision to change/lower dose or quit completely. Are there more people with PP with increased symptoms after 1.5 month, continued and now are gl...
by TvG
Tue Sep 08, 2009 8:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI PreCongress Meeting- September 7, 2009
Replies: 35
Views: 10104

PPMS

A quote from the published research In all these patients also cognitive and motor activities – assessed by means of an outcome measure called MSFC - are significantly and persistently improved while the same is not true for patients with the progressive forms of the disease. In the latter, however,...
by TvG
Mon Aug 31, 2009 6:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI in PPMS
Replies: 2
Views: 2044

Interesting issue Anna. I'm also very curious if there are any PP-experiences with CCSVI treatments. Maybe usefull for the discussion some PP hilites from the paper: Moreover, relapsing-remitting and secondary progressive courses were associated to CCSVI patterns significantly different from those o...

Go to advanced search