Search found 96 matches
- Wed Aug 25, 2010 12:51 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: All Users Post Here At Least Once
- Replies: 13
- Views: 3325
Bonzo... It IS hard! We all empathize with you about that...the two things that have helped me a lot are... Fake it till you make it...in other words, even if you don't feel like smiling, hoping, helping, moving...what ever is positive...do it anyway. For instance, if you smile, even if your heart i...
- Thu Jan 14, 2010 7:49 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Notes from CureIous' at Stanford
- Replies: 363
- Views: 154421
Hi Beth, I took Copaxone for 2 years and Avonex for the next 2 and with out a doubt, I wish I had NEVER taken ANY...I have never felt so bad in my life and I continually got worse. I should have stopped them sooner, but my neuro was SO insistent! And he kept telling me that I would get used to them,...
- Mon Jan 11, 2010 8:34 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Palo Alto 1/20 to 1/22!!
- Replies: 22
- Views: 7017
Beth, Really glad to hear how well you're doing! SammyJo, you're website has been a real help, I've given out the address a few times, especially to the docs at Kaiser... If you would, please, try to find out from Dake where the rest of us stand with regard to the study, getting the procedure, etc. ...
- Thu Jan 07, 2010 7:19 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Chronic Cerebrospinal Venous Insufficiency (CCSVI)-
- Replies: 1011
- Views: 434640
I have had a skin problem that has some of the same characteristics as psoriasis, but after many tests and biopsies, it was concluded that because of the ANA test results, it was something autoimmune, but despite a lot of tests, they can't narrow it down...the drs. looked at lupus, pemphigus, some t...
- Thu Dec 17, 2009 1:02 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Stent manufacturers
- Replies: 38
- Views: 7822
Re: We need t interest business in stents!!
I am going to start working on a presentation that I can start using to spark interest. In the meantime, I encourage anyone with any contact such as that mentioned in this topic to use it to see what interest they can spark. i.e. lots of money to be made in stenting veins, especially other than CSV...
- Thu Dec 17, 2009 11:56 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Stent manufacturers
- Replies: 38
- Views: 7822
- Thu Dec 17, 2009 11:49 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Oh, Radeck?
- Replies: 194
- Views: 63323
- Thu Dec 17, 2009 11:36 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Dr Dake has been busy
- Replies: 16
- Views: 5297
Sharon, The pharma company that wanted to meet with me after the first of the year regarding funding for CCSVI, has stepped up their timing and now wants to meet with me asap...I understand Dake has a really good CCSVI PP presentation...have you seen it or do you know if it is on line somewhere? If ...
- Tue Dec 15, 2009 8:36 am
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Oh, Radeck?
- Replies: 194
- Views: 63323
- Mon Dec 14, 2009 8:49 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Finding cures is not even remotely a consideration by pharma
- Replies: 26
- Views: 7620
- Mon Dec 14, 2009 4:57 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: No one will listen
- Replies: 14
- Views: 7385
- Mon Dec 14, 2009 3:55 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Acupuncture for neck veins
- Replies: 35
- Views: 10324
Guess I should've figured that out for myself...lol...but thanks for giving me the shortcut... I emailed your herb lady to ask about the UTI herbal treatment. I told her that you referred me, but that I couldn't give her a name, just Judipom...from the TIMS board... That would sure be a big help! I ...
- Mon Dec 14, 2009 3:47 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Oh, Radeck?
- Replies: 194
- Views: 63323
- Mon Dec 14, 2009 3:25 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: No one will listen
- Replies: 14
- Views: 7385
- Mon Dec 14, 2009 2:54 pm
- Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
- Topic: Oh, Radeck?
- Replies: 194
- Views: 63323
Did anyone get to hold one of the stents? I did, and when I squeezed it, it sprung right back to its original shape and it seemed pretty indestructible given where it would be going...maybe some people have more 'acid' (or something similiar) in their systems that tends to break down the stent stren...