Search found 4 matches

by shoshin
Mon Jan 18, 2010 2:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: The kinds of venous malformations that have been found
Replies: 47
Views: 14939

I guess jugular valve problems have been covered, but I thought I'd stick my story on anyway since it does seem a little unusual. I had malfunctioning jugular valves on both sides. They looked like they were flapping up and down when they were supposed to be open so that was causing the blood to flo...
by shoshin
Tue Dec 08, 2009 4:42 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Bad News --All Dake surgeries canceled even w/ appt.
Replies: 137
Views: 34702

I was just at Stanford last Thursday and Friday and my heart goes out to those who had their appointments canceled. I just cannot even imagine the disappointment. It’s not only the money and the arrangements, but the emotional investment--the wanting to hope, the fearing to hope, the trying to quash...
by shoshin
Tue Dec 08, 2009 4:30 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI tracking project-POST PER P.1 FORMAT ONLY
Replies: 163
Views: 394932

MS HISTORY Name: Shoshin Male/Female: F Age: 39 Date(s) & type of neurological diagnosis (RRMS, SPMS, PPMS, CIS, or other): Dx’d with MS 11/07; previously mis-dx’d with idiopathic peripheral neuropathy for six years Gave up on the question of type; in 1998 one clear mild sensory relapse with see...
by shoshin
Tue Nov 24, 2009 4:31 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: List of Those Who Had/Scheduled to Have Procedure-Stanford
Replies: 58
Views: 18620

De-lurking to say that I am going to Stanford for testing on 12/3 and possible stents on 12/4. I also wanted to say a big thank you to everyone on this forum, and especially Cheer, for all the effort you've put into researching this, sharing information, generating interest, and promoting further re...

Go to advanced search