Search found 18 matches

by DigitalMunkey
Wed Oct 07, 2009 5:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Why arent any of you using the media to get this out there?
Replies: 12
Views: 3050

Hi Cure

I have been trying to find a direct root to Montell, but no luck yet. Everything leads to his research page or the show pages. Its clear that anything sent there is getting filtered by others before getting to him.

Ill keep searching fora phone number or direct email link.


Peter
by DigitalMunkey
Wed Oct 07, 2009 4:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Woe is Finland
Replies: 8
Views: 2368

Thanks Erkki

I just feel hopeless and useless at times like this, Im sure you have felt this yourself. These feelings usually lead to frustration, desperation and anger. Thanks for the replies Erkki.


Peter
by DigitalMunkey
Wed Oct 07, 2009 4:52 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Why arent any of you using the media to get this out there?
Replies: 12
Views: 3050

Jees, my bad

I was checking Richard Pryor website today and it had a very active forum. I just assumed he was still goin strong. I couldnt believe it when I read he was 65 when he passed on, it feels like five minutes ago since I enjoyed his work as a teenager. Cheer is doing a grand job, I just thought the, con...
by DigitalMunkey
Wed Oct 07, 2009 4:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Woe is Finland
Replies: 8
Views: 2368

Hi Errki

Its just so slow. Anu has developed a vision problem in her right eye over the past few days and may have to go for the cortisone treatment tomorrow. This process is just too slow.


Peter
by DigitalMunkey
Wed Oct 07, 2009 2:46 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Woe is Finland
Replies: 8
Views: 2368

Woe is Finland

I am a Brit who resides in Finland and my wife who is a Finn has RRMS. I feel as though Im banging my head against a brick wall over here. The Finns as a people are fairly Passive and have no culture of protest or positive societal action. Now, when a call to action is required Im looked upon as a p...
by DigitalMunkey
Wed Oct 07, 2009 2:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Why arent any of you using the media to get this out there?
Replies: 12
Views: 3050

Why arent any of you using the media to get this out there?

Here is a tip folks I am about to begin informing European media personalities who suffer from MS about CCSVI. You guys in the US could start by contacting people such as Montell Williams or Richard Pryor. Ge the word in the right ear and watch what transpires. Williams even runs his own MS foundati...
by DigitalMunkey
Mon Sep 21, 2009 11:13 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Getting Doppler in Finland
Replies: 11
Views: 3213

Go, Go, Go Blitzi!!!

Blitzi

You are flying the flag for us brother. Thank god one of us managed to get some progress. We are waiting with great anticipation to hear what the scan has to say about your veins.

Good luck for tomorrow and please let us know as soon as you can

Peter
by DigitalMunkey
Fri Sep 11, 2009 6:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hello from Helsinki
Replies: 32
Views: 9609

The worst possible news

:cry: As I said earlier my wife went to drop off the papers ad guidelines we got from Dr Simka at her doctors office. This was to give the radiologist a chance to familiarise himself with the doppler procedure. 30 minutes after leaving the Simka documents the radiologist calls my wife to say NO WAY....
by DigitalMunkey
Fri Sep 11, 2009 3:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: After Bologna- What can we do?
Replies: 33
Views: 8176

Cureorbust I was just thinking

The same thing.

But what to say and how to say it? What format, video or presentation? Its a really great idea as good news spreads like wildfire on youtube.

Peter
by DigitalMunkey
Fri Sep 11, 2009 2:51 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and Slovakia, Europe
Replies: 384
Views: 93394

Congratulations Erika

I hope this works out perfectly for you. My prayers and best wishes are with you :D


Peter
by DigitalMunkey
Fri Sep 11, 2009 2:11 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hello from Helsinki
Replies: 32
Views: 9609

Cureorbust

Is there really a video available? We have to get hold of that no matter how. Im going to start writing and calling now.

Ill start with Dr Simka

Peter
by DigitalMunkey
Fri Sep 11, 2009 2:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hello from Helsinki
Replies: 32
Views: 9609

Hi Erika

I have just sent the PDF to Daniel here on the forum ad he is going to make it available to everyone here.


Peter
by DigitalMunkey
Fri Sep 11, 2009 1:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hello from Helsinki
Replies: 32
Views: 9609

Hi Turtle

Sorry to let you down my friend, but im not Finnish, I just live here. Im from the UK. My wife has the appointment with a radiologist who specialises in head and neck on Monday morning. We have instructions from Dr Simka on how the scan should be undertaken and my wife is taking them to his assistan...
by DigitalMunkey
Fri Sep 11, 2009 1:36 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hello from Helsinki
Replies: 32
Views: 9609

Im spreading the word as best I can

Im an active member of an online artists community. I have been posting in my Journal about CCSVI < shortened url > And in the community forums < shortened url > I was a bit surprised by one of the responses from a lady in Greece I was diagnosed with M|S about 6 years ago, the best treatment is Avon...
by DigitalMunkey
Fri Sep 11, 2009 1:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Hello from Helsinki
Replies: 32
Views: 9609

Document

Thanks for that Cureorbust


Peter

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