Search found 574 matches

by magoo
Thu Mar 29, 2018 4:29 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is CCSVI Atlanta legit???
Replies: 6
Views: 1586

Re: Is CCSVI Atlanta legit???

I just read this an I’m really discouraged. It seems like any doctor trying to perform CCSVI is being harassed and shut down. Is there anyone who can help people with CCSVI out there?

https://www.medpagetoday.com/special-re ... race/72033
by magoo
Wed Mar 28, 2018 12:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is CCSVI Atlanta legit???
Replies: 6
Views: 1586

Re: Is CCSVI Atlanta legit???

Thank you Dr. S! I almost cancelled the appointment because the website isn’t working correctly. So, Lanie Fleet has been properly trained and we can feel confident in her ability to diagnose CCSVI? This is for my 16 year old son who has had episodic Vertigo his whole life. It became constant a year...
by magoo
Tue Mar 27, 2018 6:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Is CCSVI Atlanta legit???
Replies: 6
Views: 1586

Is CCSVI Atlanta legit???

CCSVI Atlanta claims to have a tech trained in the Zamboni method Doppler. I NEED to know if anyone has experience with this place. The technician is named Lanie Fleet. My son is having serious issues and we have been searching for someone trained to perform a Doppler study on him. Please reply if y...
by magoo
Sun Apr 02, 2017 6:00 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 352
Views: 67004

Re: Notes from CureIous' at Stanford

I wish I had some wisdom to share. I just wanted to wish you luck and healing. It sounds quite worrisome, but whenever there are changes physically or on MRI, that's a normal reaction. I have loved and benefitted from my stents. They have always looked good when checked. I too, have relief from that...
by magoo
Mon Feb 15, 2016 3:07 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 352
Views: 67004

Re: Notes from CureIous' at Stanford

That's good news. Can't ask for a better outcome with a dislodged stent. Stay well.
by magoo
Mon Feb 15, 2016 10:35 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 352
Views: 67004

Re: Notes from CureIous' at Stanford

How are you doing Mark?
by magoo
Fri Feb 12, 2016 8:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Bartonella and CCSVI connection
Replies: 11
Views: 1583

Re: Bartonella and CCSVI connection

The paragraphs quoted are from the link below. It's a good read. "The white matter lesions and the associated symptoms are common in demyelinating or inflammatory disorders such as multiple sclerosis and lupus, hence Lyme or bartonellosis symptoms can cause erroneous diagnoses. Furthermore, it is po...
by magoo
Thu Feb 11, 2016 7:17 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Bartonella and CCSVI connection
Replies: 11
Views: 1583

Re: Bartonella and CCSVI connection

This video contains the best information on Bartonellosis and treatment.
by magoo
Thu Feb 11, 2016 8:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Bartonella and CCSVI connection
Replies: 11
Views: 1583

Re: Bartonella and CCSVI connection

You definitely understand the research more than I do. I know that Dr. Klingheardt, Dr. Breitschwerdt and Dr. Mozayeni all found a connection to CCSVI. In the second part of the video posted above (minute 41) Dr. Mozayeni discusses small vessels disease. It's fascinating. http://youtu.be/uYEHsRRxrQw...
by magoo
Wed Feb 10, 2016 7:09 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Bartonella and CCSVI connection
Replies: 11
Views: 1583

Re: Bartonella and CCSVI connection

http://www.galaxydx.com/web/ I started here to research testing and browse their research. Most people work with a Lyme literate doctor. There aren't any in my area, so I took the research to my doctor and he agreed that the likelihood I have this infection is very high. I gave him my score on the M...
by magoo
Tue Feb 09, 2016 5:30 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Bartonella and CCSVI connection
Replies: 11
Views: 1583

Re: Bartonella and CCSVI connection

http://www.cangetbetter.com/
This is his book. There are some great you tube videos too.
Dr. Mozayeni is located in Maryland. He sees patients.
http://tmgmd.com/?page_id=29
by magoo
Mon Feb 08, 2016 3:58 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Bartonella and CCSVI connection
Replies: 11
Views: 1583

Bartonella and CCSVI connection

Bartonella causes small vessel disease and Neurovascular problems. The bacteria live in the endothelial cells. Could Bartonella be a cause of CCSVI?

http://townsendletter.com/July2015/bart ... 715_3.html

by magoo
Fri Jan 15, 2016 3:18 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 352
Views: 67004

Re: Notes from CureIous' at Stanford

I'll be the radiologists were scratching their heads!
by magoo
Fri Jan 15, 2016 6:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Notes from CureIous' at Stanford
Replies: 352
Views: 67004

Re: Notes from CureIous' at Stanford

I am so happy you are okay. This is just astounding. It sounds like your doctor and local IR are really taking this seriously and I hope you get the best care. Are they certain that your health is not in jeopardy? The CCSVI community will be listening and waiting to hear what the doctors think about...