This Is MS Multiple Sclerosis Knowledge & Support Community

I just read this an I’m really discouraged. It seems like any doctor trying to perform CCSVI is being harassed and shut down. Is there anyone who can help people with CCSVI out there?

https://www.medpagetoday.com/special-re ... race/72033

Thank you Dr. S! I almost cancelled the appointment because the website isn’t working correctly. So, Lanie Fleet has been properly trained and we can feel confident in her ability to diagnose CCSVI? This is for my 16 year old son who has had episodic Vertigo his whole life. It became constant a year...

CCSVI Atlanta claims to have a tech trained in the Zamboni method Doppler. I NEED to know if anyone has experience with this place. The technician is named Lanie Fleet. My son is having serious issues and we have been searching for someone trained to perform a Doppler study on him. Please reply if y...

I wish I had some wisdom to share. I just wanted to wish you luck and healing. It sounds quite worrisome, but whenever there are changes physically or on MRI, that's a normal reaction. I have loved and benefitted from my stents. They have always looked good when checked. I too, have relief from that...

That's good news. Can't ask for a better outcome with a dislodged stent. Stay well.

How are you doing Mark?

The paragraphs quoted are from the link below. It's a good read. "The white matter lesions and the associated symptoms are common in demyelinating or inflammatory disorders such as multiple sclerosis and lupus, hence Lyme or bartonellosis symptoms can cause erroneous diagnoses. Furthermore, it ...

This video contains the best information on Bartonellosis and treatment.

You definitely understand the research more than I do. I know that Dr. Klingheardt, Dr. Breitschwerdt and Dr. Mozayeni all found a connection to CCSVI. In the second part of the video posted above (minute 41) Dr. Mozayeni discusses small vessels disease. It's fascinating. http://youtu.be/uYEHsRRxrQw...

http://www.sciencedirect.com/science/ar ... 7403000067
http://www.sciencedirect.com/science/ar ... 4010634918
http://www.hindawi.com/journals/jir/2012/612809/

There are many links between Bartonella and vascular lesions.

http://www.galaxydx.com/web/ I started here to research testing and browse their research. Most people work with a Lyme literate doctor. There aren't any in my area, so I took the research to my doctor and he agreed that the likelihood I have this infection is very high. I gave him my score on the M...

http://www.cangetbetter.com/
This is his book. There are some great you tube videos too.
Dr. Mozayeni is located in Maryland. He sees patients.
http://tmgmd.com/?page_id=29

Bartonella causes small vessel disease and Neurovascular problems. The bacteria live in the endothelial cells. Could Bartonella be a cause of CCSVI?

http://townsendletter.com/July2015/bart ... 715_3.html

I'll be the radiologists were scratching their heads!

I am so happy you are okay. This is just astounding. It sounds like your doctor and local IR are really taking this seriously and I hope you get the best care. Are they certain that your health is not in jeopardy? The CCSVI community will be listening and waiting to hear what the doctors think about...