Search found 9 matches

by MSmama
Tue Dec 07, 2010 6:54 pm
Forum: General Discussion
Topic: Crepitus (crackling sounds when moving joints) in MS
Replies: 20
Views: 18854

Yes Taurus the first thing I checked was my D levels prior to commencing copaxone and they were good. i take copaxone, d3 and fish oil every other day now. It is a good idea for people to check though. My Dr suggested if I wanted to reverse it or prove it was the copaxone that I should take myself o...
by MSmama
Tue Dec 07, 2010 12:23 am
Forum: General Discussion
Topic: Crepitus (crackling sounds when moving joints) in MS
Replies: 20
Views: 18854

My Dr checked me over , confirmed my bone creaking but didn't use the term crepitus - then pulled up the prescribing info that NHE has put up and said that it was a side effect :? he obviously feels my muscular-skeletal issues fall within the symptoms. I have no pain , I am just concerned about long...
by MSmama
Sun Nov 28, 2010 2:00 pm
Forum: General Discussion
Topic: Crepitus (crackling sounds when moving joints) in MS
Replies: 20
Views: 18854

creaking joints

Hi Taurus, I am 18mths down the track of using copaxone. At the 10mth mark ALL my joints suddenly appeared to dry out- as if the synovial fluid dried up! I actually wake myself up at night when I move and all the joints individually creak loudly. It was confirmed as a side effect and I am so concern...
by MSmama
Wed Oct 06, 2010 10:18 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI - Aussie Action!
Replies: 851
Views: 226711

An Outstanding interview- Hope someone on TV will see value in the story and run with it.
by MSmama
Tue Aug 17, 2010 12:39 am
Forum: General Discussion
Topic: "End Stage MS"
Replies: 50
Views: 36413

Hi Sisterluke, One of my dear MS friends who is wheelchair bound developed a urinary tract infection and whilst in hospital was put on a medication and developed a psychosis- she thought her visiting husband wasn't her husband and that he was there to kill her. When the meds changed her behaviour no...
by MSmama
Wed Jul 28, 2010 12:50 am
Forum: Copaxone
Topic: Copaxone - daily vs. every other day???
Replies: 26
Views: 15570

I took Copaxone everyday for a year until April 2010. Then i had my veins scanned and found a left jugular stenosis which was consequently treated. It has made me Q everything I had thought, everything I had been told and the knowledge base on which current drugs have been developed. This has made t...
by MSmama
Wed Apr 14, 2010 2:13 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: 90 Minute Webb Forum into CCSVI
Replies: 41
Views: 9821

:oops:
by MSmama
Thu Jan 21, 2010 6:50 pm
Forum: Copaxone
Topic: injections, air bubbles, stinging and the like
Replies: 5
Views: 5095

I was also told to leave the bubble there for the same reasons as patienttx wrote. :D
Marsha
by MSmama
Thu Jan 21, 2010 6:40 pm
Forum: Copaxone
Topic: Experiences with Copaxone
Replies: 60
Views: 95209

Deb, I am on my 11th month of using Copaxone and have not had any relapse. BUT My first month on copaxone was murder!! High fever with intermittent chills , extreme fatigue (unlike I had experienced previously), sick to my stomach, headaches and pain throughout my body. I was going to give up but as...

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