Search found 7 matches

by strayinma
Tue Dec 01, 2009 7:47 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Circulation problems, anyone?
Replies: 13
Views: 6110

I have a mild case and am a furnace. I rarely get cold hands or feet. But, my girlfriend - who does not have MS - is always freezing and jams her icy feet and hands on me. Knew my heat had to do with circulation - I thought it was related to CCSVI insulating my head. Another odd thing that doesn't f...
by strayinma
Tue Dec 01, 2009 6:41 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Venous.MS
Replies: 0
Views: 1862

Venous.MS

Gang, I was thinking about Dr. Zamboni's call to action to patients: bring CCSVI to doctors. Cheerleader built the #1 essential resource for patient education on CCSVI. http://csvi-ms.net/en Any interest in a central spot to keep abreast of current conversations? At least another molecule to pin to ...
by strayinma
Mon Nov 30, 2009 8:24 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How many are of Celtic background?
Replies: 39
Views: 9802

This is the first time I have ever considered ancestry or genetics with MS - I've always read over it. I'm half Irish, half Lebanese. My mom (Irish) and family are directly from County Cork (Donoughmore). I'm 1st gen USA. Weird creepy and interesting.
by strayinma
Mon Nov 30, 2009 2:28 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Regarding Dr. Zamboni's article
Replies: 28
Views: 8504

Just received an alert from the Journal of Cerebral Blood Flow & Metabolism Edited - just caught the publication name. Edited Again (again, moments later). In fact its not "The One." Oh well, it's free. :) Anomalous venous blood flow and iron deposition in multiple sclerosis http://www...
by strayinma
Fri Oct 02, 2009 5:31 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How best to tackle CCSVI with neuro?
Replies: 14
Views: 5090

Thanks guys. This is definitely a handle with care topic. I respect my neuro too much to step on her toes. She is actually, by all measures, brilliant. She offers a great balance of education and caring to her practice. She is a healthy skeptic so this is purely a "have you seen this" talk...
by strayinma
Wed Sep 30, 2009 10:02 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How best to tackle CCSVI with neuro?
Replies: 14
Views: 5090

Cheer, thank you very much for the quick reply on the article and publication details. I hoped to have the new article - hot off the press - in hand for my MS appt next Monday. I'm a probable MS case but want to start this conversation. I'll bring the old presentation as an icebreaker (with answers ...
by strayinma
Wed Sep 30, 2009 8:40 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: How best to tackle CCSVI with neuro?
Replies: 14
Views: 5090

I have been stalking this website for a couple of weeks. It looks like the Issue has been uploaded... but I can't find the article. :( Any ideas? Am I looking in the wrong place? http://www.jvascsurg.org/current * EDIT - is this an old article? Closest web search brought me to this article but not o...

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