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Have dilated juglars with aneurysms . Prof thomson not sure how to treat them suggested maybe faulty valves . But i have the reflux and fulfil other criteria for ccsvi Have other people been treated for faulty valves ?and how successful was it ? I have signed up for the clinical trial in oct if it h...

Have dilated juglars with aneurysms . Prof thomson not sure how to treat them suggested maybe faulty valves . But i have the reflux and fulfil other criteria for ccsvi Have other people been treated for faulty valves ?and how successful was it ? I have signed up for the clinical trial in oct ? loulou

it was posted on Dr Jelynek s web site .He has ms and has caught it early through diet etc . The date of the paper caught my eye cos i know i saw something before on this site and im wondering if it was the same paper. If it was could somebody give me a reference to which thread the earlier paper wa...

Am following up a lead that there is someone in Adelaide finally who is interested in veins and ms .WOW
thanks to the helpful profs office .
LOULOU

ive been anticipating this .Congrats to prof t for being the aussie trailblazer in this treatment protocol. This is a step towards the powers that be at the least not prosecuting practionersthat carry out the protocol.But it will be a long time before it is a standard adjunct treatment for MS. lou lou

Thanks nico and h webb for passing on the info re mrv from prof t .
Its saved me alotof money .By the way what s a venogram ?

H webb ,i think your going well after your proceedure considering
the proceedure has to be repeated in about 50 % of patients( at this stage ).
keep me up dated

lou lou

i rang the melbourne clinic yesterday and the receptionist started talking about MRI when i said i wanted my azygous checked as well. Surely she meant an MRV ? By the way could somebody whose had imaging done in melbourne and is wheelchair bound give me ideas about how you walk the 10 steps to the t...

i rang the melbourne clinic yesterday and the receptionist started talking about MRI when i said i wanted my azygous checked as well. Surely she meant an MRV ? By the way could somebody whose had imaging done in melbourne and is wheelchair bound give me ideas about how you walk the 10 steps to the t...

H Webb

JUst wondering who gave you the referral to Dr Gregg.
Was it your GP or neuro ?And what was the reason written on the referral ?
Thanks
lou lou -adelaide

Australian MS Researchers show interest in new CCSVI Treatment: MS Australia and MS Research Australia (MSRA) are very aware of the reports from Italy and Canada regarding the vein disorder Dr Zamboni has called Chronic Cerebrospinal Venous Insufficiency or CCSVI. We are naturally interested in any ...

Hi Yes,we definitely do have to go the extra mile for getting new experimental procedures for ms here in australia .I remember my struggle to get ldn compounded for me in 2003 in Adelaide. I can relate to your comments about children ,i have 2 ,and Im hoping this ccsvi testing arives soon so my kids...

Your op sounds messed up as though the surgeon was following his own interpretation of Dakeand Zamboni's proceedures re anesthesia.But hope you are ok and there are no consequences!AND being in adelaide ,australia myself i was just about to email you and ask for the surgeons name etc.BUTI think i'll...