Search found 301 matches

by leetz
Mon Dec 08, 2014 1:52 pm
Forum: Undiagnosed
Topic: When meds didn't work they also tested me for this...
Replies: 2
Views: 898

Re: When meds didn't work they also tested me for this...

yes you are very right...just wanted to pass it on..
by leetz
Sat Dec 06, 2014 10:35 pm
Forum: Undiagnosed
Topic: Is this PPMS? Please help
Replies: 1
Views: 878

Re: Is this PPMS? Please help

Hi...I don't know what to tell you beside...You would really have to see a Neurologist for further testing...Primary Progressive Multiple Sclerosis is different than Relapse Remitting and Secondary Progressive...You should check out the threads here and see if there is any information that might be ...
by leetz
Sat Dec 06, 2014 10:25 pm
Forum: Introductions
Topic: "Almost" diagnosed
Replies: 3
Views: 1415

Re: "Almost" diagnosed

Welcome aboard and please update us on how you are doing....
by leetz
Sat Dec 06, 2014 9:50 pm
Forum: Undiagnosed
Topic: When meds didn't work they also tested me for this...
Replies: 2
Views: 898

When meds didn't work they also tested me for this...

...can mimic plan ol M.S.... Neuromyelitis Optica (NMO)... I tested negative, .. (still have Multiple Sclerosis) but no meds were working for me so he thought maybe it could be NMO since the spinal tap was positive for oligodendrites (sp.)...thought I would spread the word because I guess there is a...
by leetz
Sat Dec 06, 2014 7:48 pm
Forum: Undiagnosed
Topic: Young with MS?
Replies: 27
Views: 2607

Re: Young with MS?

Trust your body... see a Neurologist that can offer you the proper avenues for diagnosis...glad you joined...god bless you
by leetz
Sat Dec 06, 2014 7:26 pm
Forum: Undiagnosed
Topic: My symptoms...should I worry?
Replies: 5
Views: 939

Re: My symptoms...should I worry?

Get checked by Neurologist! Don't waste time. It really could be a number of different things...just some advice (not a Doctor)...get back to us and let us know how your doing!
by leetz
Sat Dec 06, 2014 7:22 pm
Forum: Undiagnosed
Topic: Am I Crazy? Or Possible MS? Seeing Dr This Week. Opinions...
Replies: 26
Views: 5005

Re: Am I Crazy? Or Possible MS? Seeing Dr This Week. Opinion

Please please go to see a Neurologist! Leaving it up to your GP is very risky, it is much better to know what is really happening rather than to test drugs that may not even help those of us already diagnosed... if you look into it I am sure you will find that Multiple Sclerosis is not easy to diagn...
by leetz
Sat Aug 03, 2013 12:07 am
Forum: Introductions
Topic: Dealing with a parent with MS.
Replies: 5
Views: 1083

Re: Dealing with a parent with MS.

wow...some great advice! well same here I got diagnosed when my daughter was 12 or 13...she has been right here with me...18 now and she is staying close to home for college. I think as parents with this horrible disease, we do depend on those that are closest to us. I think this disease has brought...
by leetz
Fri Aug 02, 2013 11:24 pm
Forum: Regimens
Topic: My Regimen
Replies: 2
Views: 1990

Re: My Regimen

wow...that's a lot of meds....you were right..did you ever think of taking milk thistle for your liver? That is a heavy load on your liver girl! Think some people that take a lot of medication also take that to help liver along...(of course you must ask doctor first to make sure it does not interact...
by leetz
Fri Aug 02, 2013 11:17 pm
Forum: Low Dose Naltrexone
Topic: LDN - Diagnosed Less Than a Year Ago
Replies: 1
Views: 2763

Re: LDN - Diagnosed Less Than a Year Ago

blessings to you...
by leetz
Fri Aug 02, 2013 11:15 pm
Forum: Introductions
Topic: Hello
Replies: 3
Views: 767

Re: Hello

I would suggest getting an MRI of your spinal cord (this is where my lesions are hiding)....if your really desperate than ask your Doctor for a spinal tap (ouch...but remember the earlier it is diagnosed the better) I went at LEAST 8 years with out diagnosis and lost a lot of my functions, also not ...
by leetz
Fri Aug 02, 2013 11:06 pm
Forum: General Discussion
Topic: Drug relieved MS constipation but induced diarrhoea
Replies: 4
Views: 1118

Re: Drug relieved MS constipation but induced diarrhoea

i use mira-lax...drink it in coffee doesn't matter...been good to me...
by leetz
Fri Aug 02, 2013 9:58 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Experiences with Tysabri
Replies: 66
Views: 58056

Re: Experiences with Tysabri

oh sorry forgot! tested JC Negative..
by leetz
Fri Aug 02, 2013 9:54 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Experiences with Tysabri
Replies: 66
Views: 58056

Re: Experiences with Tysabri

Hi everyone... I got Tysabri for 14 months and decided to stop taking the infusions as I did not feel the little bit of "lift" it once gave me. My EDSS is 5.5 and I have RRMS. I have been in a wheel chair for about 2 years now, can still stand and walk baby steps in the bathroom with assistance an m...
by leetz
Tue Jan 15, 2013 1:25 pm
Forum: Tysabri (Antegren or Natalizumab)
Topic: Experiences with Tysabri
Replies: 66
Views: 58056

Re: Experiences with Tysabri

thank you all for your input! God Bless :)