Search found 113 matches

by wonky1
Mon Jul 25, 2011 5:25 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1638875

the retrospectoscope is a pain in the rear. I meant no criticisms of you or your doctor.
your days of pioneering are not yet completed

s
No criticism was inferred.
I also have no criticism of my doctors. Good to hear my pioneering days are not over :) Thank you, that gives me some solace.
by wonky1
Sun Jul 24, 2011 12:04 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1638875

Dear Dr Sclafani Thank you for your prompt reply. I last had images, a venogram, done when I had my last jugular stent in March of 2010. I do not know if there is any intimal hyperplasia. My last stent placement hurt like I'd been kicked by a horse though and an ultrasound done last year showed my j...
by wonky1
Sun Jul 24, 2011 11:43 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1638875

Dear Dr Sclafani Thank you for your prompt reply. I last had images, a venogram, done when I had my last jugular stent in March of 2010. I do not know if there is any intimal hyperplasia. My last stent placement hurt like I'd been kicked by a horse though and an ultrasound done last year showed my j...
by wonky1
Sat Jul 23, 2011 8:03 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani answers some questions
Replies: 8342
Views: 1638875

Azygos problem???

Dear Dr Sclafani Will you have a look at my azygos venogram please……… I had it done in 2009 and was told its ok but to my untrained eye it’s not. On the arch I see an obstruction but on the full venogram it appears that it is being held open by the catheter so I assume that its un altered state woul...
by wonky1
Wed Feb 17, 2010 2:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Nice tribute film from Sweden
Replies: 11
Views: 2167

Nice tribute film from Sweden

Just thought you may like this film


http://en.tackfilm.se/?id=1266381853184RA72


About our hero.
by wonky1
Sun Feb 14, 2010 11:15 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: News report on my liberation
Replies: 19
Views: 4953

Thank you all for your kind words. jak7ham9 When I say I used to have spasticity, I mean I would spend most of the day laying glued to the sofa. When I tried to get up my legs would stay straight and I would have to try and bend them with my hands, not easy. Since liberation that has not happened. I...
by wonky1
Sun Feb 14, 2010 7:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: News report on my liberation
Replies: 19
Views: 4953

Beth, I think I love you :D

Martin
by wonky1
Sun Feb 14, 2010 5:01 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Possible MS 'cure' comes to Britain
Replies: 21
Views: 4947

The Sun newspaper, who have a massive circulation in the UK will be doing two pages on CCSVI, Gici and myself next week.
I have given the reporter details of Dr Gillhooly and Dr Crowe and hopefully they will publish it and how people can get their veins checked.
by wonky1
Sun Feb 14, 2010 3:23 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Ella's adventures in Katowice
Replies: 117
Views: 19118

Well done Michele! You have achieved so much in promoting CCSVI.
I can't wait to here how happy you'll be, when you return with Ella liberated.
If anyone deserves this it's you.

Martin :D
by wonky1
Sun Feb 14, 2010 2:44 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: News report on my liberation
Replies: 19
Views: 4953

Hi Beth, that no proof bit bugs me too. He's from the M.S. society here. It does give me a good feeling though to see how far they are digging themselves in. Eventually they will have to admit they were wrong. I'll enjoy that. Popsy09, I used to suffer from fatigue but not any more. In the clip I lo...
by wonky1
Sat Feb 13, 2010 2:02 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: News report on my liberation
Replies: 19
Views: 4953

News report on my liberation

Hi everyone
There was a news report on my treatment and the Buffalo results.

I thought you may be heartened by it.

<shortened url>
:D
by wonky1
Fri Feb 05, 2010 12:22 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Poland part 2
Replies: 44
Views: 7407

Thank you for all your kind words.
Yes this is a happy day! Love that newsletter!
Despite me mentioning improvements in cognition earlier, I forgot to mention the warm feet. They just feel normal already.
by wonky1
Fri Feb 05, 2010 2:57 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Poland part 2
Replies: 44
Views: 7407

I can’t keep a lid on it anymore, I have to declare in best James Brown stylee ♪♪♫ I feel good ♫♪♪ 10 days after the procedure My fatigue is gone My legs are stronger, I can get up stairs without resting half way. There’s no sick giddy feeling when moving my head fast Balance is better, I can stand ...
by wonky1
Thu Feb 04, 2010 2:42 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: annbbe - second day after procedure
Replies: 66
Views: 15990

Hi Annbe My improvements this time have been slower and less dramatic but there are definitely improvements. Its taken a long time to get as bad as I was so I don't mind waiting for the improvements. Soon you'll be impatient to wake up so you can see the changes a new day brings. Happy days! Keep us...
by wonky1
Tue Feb 02, 2010 12:09 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Urgent advise please, Money in advance
Replies: 44
Views: 6455

Alby
Last week I was presented with the bill after the treatment and I then put my visa in their card machine and paid that way.

They did not ask for payment up front. Sorry to shout :oops: