This Is MS Multiple Sclerosis Knowledge & Support Community

Hi Gang! I sent my MRV results to St Vincent's and this is the response I got: 'Thanks for the information. After looking at the results we cannot proceed without an ultrasound study of your jugular veins. The MRI results are inconclusive and therefore not sufficient evidence. After the Ultrasound i...

Hi everyone, Please see my latest video update 7 weeks post procedure (link below). I saw my Neuro yesterday and he told me he has never seen me so well. http://www.youtube.com/watch?v=sazvSthoBs4 I see the Prof in three weeks for a follow up, after my doppler ultrasound I am aware that I have some...

Hey DM

Well, I got given something today...frustrating that we can't know what it is, but I do understand why.

Will definitely keep you posted on my progress.

Hi Gang! Sorry I haven't been in contact, but I didn't get my 'provisional' results until Friday. There report says 'on the left side the upper internal jugular vein is a little flattened for a short segment of 1-2 cm with smooth tapering appearances... most likely representing transient flow phenom...

I'm confused, the same people told my friend they will do a Duplex Doppler on her. A venogram injects dye and then takes X-rays - is this the external equivalent, if you will, to an angiogram (minus the baloon)? Sorry my bad....I am having the MRV done at Edgecliff on Friday after a negative Dopple...

For those interested in the trial, here's the offical website:

http://tower3.msstudies.com/index.php

Hi All

I am having my venogram this Friday at Edgecliff.

Should it prove that I do in fact have CCSVI, I was hoping someone could PM me the details of anyone doing the angioplasty procedure here in Sydney.

Any information would be greatly appreciated


Hope everyone is well
Sneaky P

Hi All

Just wanted to let you know that I am participating in the phase III trial here in Australia.

I get put into 'randomization' ion May 4th. So far, I am only the second person at my MS Clinic to go into the trial.

Hope everyone is well.
Sneaky P

please listen to me...if they say NO...GET 2ND OPINION!!!!that happened to me and sure enough when the right specialist saw my MRV...he immediately found stenosis...veins people...not neuro's... Hi Leetz Thanks for the input. I will definitely ask my neurosurgeon (who did back surgery on me) if he ...

Greetings from NSW I just had a Doppler ultrasound done at Hunter Imaging and it came back negative....is there a possibility it could be wrong? I am seeing my neurosurgeon for an unrelated matter in February, and I was wondering if I should be asking him for an MRI/MRV? Or a referral to a vascular ...