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Hi all After spending most of the day reading this thread and some of the related articles I'm very excited! I had CCSVI treatment in Jan this year which cleared a membrane that had been blocking the majority of the flow in my right IJV. After this was treated my circulation and engery levels improv...

Thank you!
I'm going to train it through Canada, then drive down the west coast of America, over to Hawaii, then to NZ, Australia, South Africa and home! Maybe... I'm open to getting waylaid!


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Hi I've updated my tracking thread, but thought I'd give a bit more detail here. I joined the gym a couple of weeks ago and after 2 weeks of Pilates and gym, I feel fantastic! Fatigue is a thing of the past, my walking is stronger and quicker. Coordination is still an issue, I tend to trip over my o...

Thanks for all your kind wishes! Now I've something exciting to report, just over 3 weeks post-procedure: Yesterday I reached the point where I can say, yes I'm definitely better than I was! I met some friends and walked quicker than some of them for half a mile (we were late!), and they commented, ...

Hi All I've updated the tracking thread with everything, but I've been asked how things are going so thought I'd post my progress here. I had balloon angioplasty on my right jugular vein to clear a membrane and open up a mild stenosis, on the 21st Jan in Poland. Since then I feel warm! My feet are n...

Name: Sharon (Nees) Male/Female: F Age: 31 Diagnosis: RRMS in 11/2007 Lesion locations: Not known MS treatments: Best Bet Diet plus supplements (Omega3, D3, B12, B complex, magnesium, calcium, zinc, CQ10, gingko) from Jan 2009 LDN from June 2008 to Nov 2008 Tysabri from Nov 2008 to March 2010 MS sym...

Good luck! And let us know how it goes and how you're feeling post-op

Hey

It seems there are lots of us going to Poland in January, let's have a show of dates and maybe we could get together and compare notes or just have coffee?

I'll be there 19th - 23rd Jan
MRV on 19th, procedure (ballooning) on 20 or 21st

Shaz

The doppler ultrasound was the first test I had. I'd e-mail Dr. Simka and that's what he suggested. The costs so far have been flights and hotel. I haven't paid for the medical treatment yet, I guess that will be at the end, and I don't know how much that's going to be... Sorry if that's not much he...

My mum is Irish, from Roscommon in the west of Ireland. Her cousin had MS and my brother has it too.

A membrane patient too, kinda reassuring to know I'm not the only one! And great news that you're starting to feel better, here's hoping you go all the way!

Hello from Poland! I had my Doppler ultrasound yesterday, the hands of Dr. Simka, and came away a very happy bunny indeed! Leading up to it I was absolutely terrified that he wouldn't find anything, and so relieved when he did I didn't ask half the questions I should have! What he found was not sten...

I'm just having a doppler ultrasound initially, so I guess that's why I'm going to the Rolna Euromedic. Thanks for clarifying Erika.

Depending on results then we'll look at next steps. Fingers crossed for a nice obvious, easily treatable stenosis!

I've just confirmed my appointment with Dr. Simka (10am on the 1st December) and he as advised the hospital address was

Euromedic, Katowice ul. Rolna 18

Which is about 2 or 3 km south of Franz Josef Hotel.

Just thought I'd let you know as it was a surprise to me.

Good luck everyone!

Hi everyone First of all a massive THANK YOU!!! I've been reading and learning so much from this forum, and it has given me the impetus to actually take the plunge: I have an appointment with Dr. Simka for a doppler ultrasound on the 1st December!!! I'm going the go over for the 30th November so if ...