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Hi! It has been 1,5 years since I had my procedure at Ameds in Poland. I have been sleeping inclined ever since, and I have managed to keep my improvements so far without any relapses. Are any of you sleeping inclined? (IBT - Inclined Bed Therapy) I think that IBT has really helped me maintain my cu...

Hi there

I am going to Ameds on july 12th !

Anyone else going at the same time?

christian

Hi Marcia

I'm going to have the procedure at Ameds on july 13th.

Have a look at their facebook group for more info:

http://www.facebook.com/home.php?#!/gro ... 8854873321

christian

Hi dr Sclafani I have just read, that Buffalo has received IRB approval of their angioplastic trial! Please - read more here: http://ccsvi-ms.ning.com/profiles/blogs/breaking-newsbuffalo-launching?xg_source=activity Could you maybe borrow their application and do a little copy'n'paste ? :D Christian

Hi Dr Sclafani This cutting balloon you are sometimes using - is it not risky to use? I mean - what if you perforate the vein - could the patient not risk bleeding out? Over here (EU) we have a certain german dr, who peforms the CCSVI procedure. He has however expressed concerns about perforating th...

@Ali888:

I think around january 20th.

christian

Today I got my preliminary appointment with Ameds. July 12th!

Anyone else receiving appointments from Ameds?

christian

Hi - the above mentioned link is from the presentation on the 14th of april - is it not?

I hope the presentation on the 30th of april (yesterday) which I have not yet seen a webcast from is more positive.

christian

Dr Sclafani:

How dangerous would you say your procedure for CCSVI is - could it be fatal? And if the patient where required to have angioplastic the second time - would this be more risky than the first time?

christian

Fantastic news GiCi !

christian

Dr Vogel in Germany has done some pwms, and so has dr Sclafani, USA.

So far 2 patients from Denmark had the operation (one with dr Vogel, and one with dr Sclafani - as far as I know, from http://msforum.dk)

Christian[/url]

No problem Andrew - I don't mind.

I will also post my details to your forum once I get time enough for it

Btw - I am also corresponding with the New Pathways journalist about the IBT piece he is writing.

christian

Inge - if your jugulars are showing stenosis when you are lying flat - you may just benefit from sleeping inclined - if you are not already. It did miracles to my MS (I have a collapsed left internal jugular, according to dr Simka).

christian

This may have been mentioned elsewhere:

http://www.theglobeandmail.com/news/nat ... le1460740/

christian

Pepe - congratulations on Marias improvements! I am so happy for you. I am really impressed with the 3 km walks! When I saw you guys in Poland - Maria was in a wheelchair!? I'm glad to hear that the IBT is also doing Maria some good. Too bad about the money though - maybe tie her shoelaces together?...