This Is MS Multiple Sclerosis Knowledge & Support Community

Thank you Leonard for the info and subsequent links. It is really interesting, makes sense to me and something I'd like to pursue. To summarise, What would your advise be with regard to the necessary steps to take?.. How do we get tested / find out if this is an issue for ourselves personally and wh...

Very interesting! I've often wondered about this and not known what to do about it.. When I first went to A&E with what was to be diagnosed as MS 4 weeks later, my blood sugar was zero... I've often wondered whether there was a link, but it's not one the hospital pursued so I just bowed down to ...

Thank you so much for your lovely reply! I'm so pleased that Emma has been helped.. Feeling 'drunk'! that's it - but without the enthusiastic loss of inhibition!. It does worry me where the visual issues may lead. I already limit my driving to avoid busy areas as movement is disturbing. As you say, ...

So pleased to hear that Emma is improving following her treatment at EHC.. What kind of improvements has she seen with her vision?.. I read earlier that she had problems with her eyes working independently of each other.. I have oscillating and double vision - rather like seeing the world with hand-...

Magoo, I am so thrilled for you. I've not been here for a while, But remember reading your posts a year ago as you went through your procedure etc. It is wonderful to read how well you are doing. I've just got back from the 1st UK CCSVI conference. It's amazing to see how this journey is developing!...

TMrox wrote:Is this a different place to the Essential Health Clinic in Glasgow?

Yes..

colmmc wrote:Is that you Professor H ?

Colmmc

I guess that would be the Dippy Professor!

(This is a private joke by the way, everyone else, and in no way represents the clinic doing the assessments!!!)

An education and research centre, linked to one of the North-west England's major hospitals, will soon be ready to start offering assessments into CCSVI, hopefully later this month. They been drawing up the protocol with the recognised experts, most recently Micheal Dake. I understand that scans wil...

Hi Rosegirl, I too am interested in your query, tho' I'm afraid I can't directly help. I was diagnosed, following a doppler scan, with a flapping valve, just kind of quivering, in my left jug, causing reflux, but no apparent narrowing or stenosis. I appreciate that venography may reveal more, but I ...

I have been quite startled by this post.. I have MS, and my son has a large brown birthmark on his hand.. (I have no visible birth marks). Naturally, as there is a possible hereditary link with MS, the fact that he has this birthmark is now causing me alarm.. Is there someone i should see about this...

Eh up!! Count me in too on the cold hands and feet - have always, since a child, been on the receiving end of the "cold hands, warm heart" greeting.. and 'get those cold feet off me'!!!... Prone to dizzy spells. Stiff and sore neck - absolutely! Until I learnt of CCSVI, I assumed it was po...

Ditto bump ditto ditto!!! I think we all at least need to see our GPs and bring this to their attention.. I did, last month, and tho' my GP hadn't heard of CCSVI, now she has. I'm pleased to say that she is extremely interested and glad that finally something positive is being done for MS, and has r...

Interesting! I wonder what this therapy is that they allude to? - "Dr. Grossman's laboratory has identified the signature of a chemical called N-acetyl aspartate in the brains of people with multiple sclerosis. Early studies suggest that patients with an imbalance in this chemical may benefit m...

Happy Anniversary, and thank you so so much for the education and knowledge shared. It is appreciated beyond words!
x

Nees wrote:My mum is Irish, from Roscommon in the west of Ireland. Her cousin had MS and my brother has it too.

Yep!!.. I can add with the Irish factor.. But, Oh Blimey! narrowing down even further - my Grandad's parents were from Roscommon!! Hey Nees! We could be related...!..