Search found 22 matches

by Boudreaux
Tue Apr 24, 2018 9:49 am
Forum: General Discussion
Topic: MS pain
Replies: 9
Views: 1197

Re: MS pain

I know this topic may stir up the proverbial hornets nest. But I have had multiple sclerosis now for nearly 12 years. Other than some initial optic pain, I have never experienced pain. I know that for a long while many doctors did not think that MS even caused pain. Now it seems that every forum I ...
by Boudreaux
Thu Nov 16, 2017 3:13 am
Forum: General Discussion
Topic: Should I tell my boss?
Replies: 2
Views: 558

Re: Should I tell my boss?

If you're comfortable telling, do so. If not, then don't. You don't have to say anything and it's against the law to fire you. If performance is not impacted why would it matter what you have?
by Boudreaux
Mon Nov 13, 2017 7:05 am
Forum: General Discussion
Topic: Trigeminal Neuralgia Meds
Replies: 4
Views: 1079

Re: Trigeminal Neuralgia Meds

i have no personal xp with TN, but have looked into it previously. revisiting and refreshing memory, i went along usual channels for me, landing on surgeries first this time. Arterial compression of nerve is the primary cause of trigeminal neuralgia https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3889...
by Boudreaux
Sun Nov 12, 2017 9:08 pm
Forum: General Discussion
Topic: Trigeminal Neuralgia Meds
Replies: 4
Views: 1079

Trigeminal Neuralgia Meds

What works for you guys? I had my first dance with TN 4 years ago, now its back and the pain is 10x as bad. Sent a message to my Neurologist and he should reply tomorrow but I need to know what the experts have to say. So, anything help you guys? I'm not interested in any surgeries and my plan is to...
by Boudreaux
Wed Nov 01, 2017 11:40 am
Forum: General Discussion
Topic: What’s the point?
Replies: 19
Views: 1501

Re: What’s the point?

I never took any DMD's, 15 years into it and no regrets from me either.
by Boudreaux
Tue Oct 31, 2017 9:10 am
Forum: General Discussion
Topic: Really struggling with everything
Replies: 46
Views: 2422

Re: Really struggling with everything

Yeah...It sucks to be us but you can still live a great fulfilling life. You are still working and said you have no symptoms and you speak of compassion, sorry but there are plenty on this board reading your post that are praying for the bad life that you have. I was dx'ed October 31, 2002 and had n...
by Boudreaux
Mon Oct 09, 2017 5:53 pm
Forum: General Discussion
Topic: What’s the point?
Replies: 19
Views: 1501

Re: What’s the point?

Your life is not over. It won't be as easy.... You may not be able to do asa much as you would like.... You may not be able to do as much as the next person.... but, it is not over. The entire left side of my body was paralyzed in the latter part of 2002 from MS. I was tired, even after I could walk...
by Boudreaux
Wed Mar 29, 2017 4:13 am
Forum: Undiagnosed
Topic: MRI w/o Contrast
Replies: 11
Views: 2667

Re: MRI w/o Contrast

I never get the contrast because of the same reason you stated, supposedly it's some nasty stuff. Without contrast will show older lesions where scar tissue has developed but not new or "active" lesions. The way I understand it is even with the contrast a person could have some low level demylenatio...
by Boudreaux
Mon Mar 13, 2017 7:19 am
Forum: Exercise and Physical Therapy
Topic: MS and Martial Arts
Replies: 10
Views: 2881

Re: MS and Martial Arts

BJJ- There is no way I could remain vertical if I removed one of my feet from the ground in an effort to kick anything above knee height. The thing that gets me is the heat, grappling with someone while wearing a GI can drive the temp up fast.
by Boudreaux
Thu Mar 02, 2017 10:57 am
Forum: Low Dose Naltrexone
Topic: RE STUDIES SHOW LDN'S BENEFITS, LDN CAN CURE M.S
Replies: 6
Views: 3522

Re: RE STUDIES SHOW LDN'S BENEFITS, LDN CAN CURE M.S

I've been taking 1.5 a night for 4 months and do feel a lot better....placebo effect or real results, I'll take it.
by Boudreaux
Tue Feb 21, 2017 12:29 pm
Forum: Undiagnosed
Topic: scared I have ppms-need help
Replies: 5
Views: 1089

Re: scared I have ppms-need help

You should definitely go back to the doctor and get a diagnosis because you might be barking up the wrong tree. Then whatever bucket you end up falling in, you should learn as much about it as you can and continue on with life as best as you can. It's understandable to be scared about the unknown bu...
by Boudreaux
Tue Feb 21, 2017 12:08 pm
Forum: Introductions
Topic: JAN 2017 ARMY MS DIAGNOSED
Replies: 4
Views: 2524

Re: JAN 2017 ARMY MS DIAGNOSED

It's good for 30% disability from the VA. Not positive but I believe you may be able to continue to serve. Make sure all your symptoms are documented in you medical records and get a copy upon discharge. This will make things easier for you once you discharge as the VA labyrinth can become quite con...
by Boudreaux
Thu Feb 02, 2017 5:44 am
Forum: Daily Life
Topic: new shellfish record!
Replies: 3
Views: 2294

Re: new shellfish record!

Crack dem oyster shells open and suck dat muscle out, ain't nothing like some fresh raw oysters potna.
by Boudreaux
Thu Dec 22, 2016 11:41 am
Forum: Introductions
Topic: Making treatment decisions - new to the forum
Replies: 9
Views: 2063

Re: Making treatment decisions - new to the forum

How do they know it's fast acting? Have you gotten a second opinion? I don't think anyone can just assume they know how your case will play out over your life. I too am concerned about the side effects of these DMD's which is why I declined them. Hi Newbie - the fast acting comment was based on the...
by Boudreaux
Thu Dec 22, 2016 7:05 am
Forum: Introductions
Topic: Making treatment decisions - new to the forum
Replies: 9
Views: 2063

Re: Making treatment decisions - new to the forum

How do they know it's fast acting? Have you gotten a second opinion? I don't think anyone can just assume they know how your case will play out over your life.

I too am concerned about the side effects of these DMD's which is why I declined them.