Search found 31 matches

by watergypsy
Wed Mar 11, 2009 10:35 am
Forum: Gene Therapy
Topic: Studies on the genetics of MS
Replies: 1
Views: 3791

parents get MS in their 50's but had children 25 yrs earlier

This is fascinating reading Frank, thank you for the posting. I notice that you don’t mention the twin genes - DR2a and DR2b and I wonder if researchers have given up on these in favour of the ones you mention. I have a particular interest in this topic because three years after I was diagnosed with...
by watergypsy
Wed Jul 30, 2008 3:02 am
Forum: Low Dose Naltrexone
Topic: just got LDN Rx
Replies: 21
Views: 11293

ldn not working as well as it did

Jake, do you remember this 2007 posting of yours:- Posted: Tue Nov 06, 2007 5:23 am It happened again last night. Same time as when it happened before(approx. 1AM), got up to go to BR, walked length of house twice w/ no aid. ________________________________________ Still looking for answers, I found...
by watergypsy
Thu Jul 24, 2008 11:05 am
Forum: General Discussion
Topic: Genteics, again.....
Replies: 6
Views: 1682

Thank you gwa, Hutto and TH – not quite what I wanted to hear but thank you for caring enough to reply. However, what you have done, is to give me the shove I needed to do something – anything, rather than sitting in stunned silence wishing I could turn the clock back. I have discovered a research N...
by watergypsy
Thu Jul 24, 2008 1:54 am
Forum: General Discussion
Topic: Genteics, again.....
Replies: 6
Views: 1682

Genteics, again.....

Have received quite devastating news – my 1st husband has just been diagnosed with PPMS which I have had for four years. We married in 1974, had two children (’79 & 80) then stupidly split up around 1984. We are still friends and he is looking to me for advice but I just don’t know how to help him -...
by watergypsy
Sat Jan 12, 2008 7:33 am
Forum: Low Dose Naltrexone
Topic: LDN and Baclofen ???????
Replies: 19
Views: 16699

[quote="christine13"] I'm still taking 2 tablets of baclofen morning and night and LDN without any side effect. I dare not stop baclofen. as it is a central neuro drug, it's important not to stop it suddenly but gradually. I completely got rid of my spasticity. quote] Hi Christine I hope you don't m...
by watergypsy
Fri Jan 04, 2008 2:59 am
Forum: Low Dose Naltrexone
Topic: LDN and Baclofen ???????
Replies: 19
Views: 16699

Mardie, thanks for your reply. I’ve never been offered any immune suppressants. In the UK absolutely nothing is offered if one has primary progressive ms so I don’t think that is the problem. I’m reluctant to go back to the 4.5 because I fear it will make even getting into the w’chair an impossibili...
by watergypsy
Tue Dec 25, 2007 12:54 pm
Forum: Low Dose Naltrexone
Topic: LDN and Baclofen ???????
Replies: 19
Views: 16699

Re: LDN & Baclofin

Hello Andy. I myself started LDN 6 months ago. Before LDN I was on Zanafex for spasicity. After 2 month on 4.5ML of LDN I no longer needed Zanaflex. All Spasicity was gone. You may want to increase your dose to 4.5ml to see if it helps. I had started on 3ml but still had spascity the first month on...
by watergypsy
Tue Jul 31, 2007 9:03 am
Forum: Low Dose Naltrexone
Topic: LDN Drug Interactions?
Replies: 6
Views: 4511

Thank you for that NHE. I had muddled opioids with cannaboids.
by watergypsy
Mon Jul 30, 2007 7:12 am
Forum: Low Dose Naltrexone
Topic: LDN Drug Interactions?
Replies: 6
Views: 4511

So, does that preclude the use of Sativex whilst on ldn? - just wondered....
by watergypsy
Tue Jul 24, 2007 2:00 am
Forum: Low Dose Naltrexone
Topic: Tramdol and LDN
Replies: 3
Views: 3539

Because it was not a symptom before I began taking ldn and as I reduce the dose, it does get better. Unfortunately, even though I take only 1 mg now, the stiffness has not gone completely and still confines me to the house. What the ldn has achieved is to remove fatigue, slurred speech, cognitive pr...
by watergypsy
Mon Jul 23, 2007 12:35 pm
Forum: Low Dose Naltrexone
Topic: 6mg ldn
Replies: 3
Views: 4101

CureOrBust - I forgot to say that I've had this body size/dose conversation with my supplier and it seems that some tiny females do take 5 or 6 mg and some big chaps take as little as 1 or 2 - seems to be neither rhyme nor reason for this!
by watergypsy
Mon Jul 23, 2007 12:27 pm
Forum: Low Dose Naltrexone
Topic: 6mg ldn
Replies: 3
Views: 4101

Did he begin at this dose or has he increased it for a specific reason? And, if so, why??? Sorry to be inquisitive but I have been changing amounts for over a year now trying to find a dose that will get rid of really dreadful spasticity in my legs. Ldn has fixed every other problem I had and I have...
by watergypsy
Mon Jul 23, 2007 12:12 pm
Forum: Low Dose Naltrexone
Topic: Tramdol and LDN
Replies: 3
Views: 3539

Sorry for taking so long to reply – been off the boards for a while. I have taken Zamodol, the slow release version, on just a couple of occasions at night when pain in my hip (sciatica?) has been really bad. For some reason I then wake up with a horrid numb but achy feeling in my neck and shoulders...
by watergypsy
Sat Mar 10, 2007 3:45 am
Forum: General Discussion
Topic: Procedure for stiff muscles
Replies: 4
Views: 2198

Thanks for your advice Terry. It’s wonderful that you can walk, and even jog you lucky thing – it’s brilliant that you’ve got the oral Baclofen working for you.
by watergypsy
Fri Mar 09, 2007 3:42 am
Forum: General Discussion
Topic: Procedure for stiff muscles
Replies: 4
Views: 2198

Hi Toyoterry You say you "almost" went for the Baclfen Pump which implies that you changed your mind - what did you do instead if increasing the oral dose did not help you. I am desperate for something to help remove the stiffness which is the only symptom I now have after two years on ldn. It is so...