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Hi,

As i was advised by Dr Franceschi, I have tried IBT for 1 week. I'm happy with this but i sometimes feel pressure in my veins. Don't no if that's a good thing or not. I sleep a lot with IBT, I feel pretty good with IBT, hope this will go on and I will feel greatter improvements...

Jean

MS history Name : Jean Male Age 30 DATE/Type of neurological diagnosis : 1/1995 (RRMS) 3/2002 (SPMS) 2008 (benign MS). My sister has PPMS Lesion locations : for MS ? for CCSVI : not blood flow in both internal jugular veins. MS symptoms before stenosis intervention : no intervention yet. But CCSVI d...

I agree with the former threads. The venous problem isnt "a simple narrowing that can be enlarged", the venous problem is wide (especially in progressives MS) and presently difficult to solve. I'm french and can easily speak to Dr Franceschi. He is very careful (that's why he didn't send m...

Hi, I have been tested for CCSVI last week in Paris by Dr Franceschi. I have a problem with both internal jugular veins ( no blood flow). I'm advised to try inclined bd therapy, to see if this can improve some symptoms. Then I could have a venography before intervention (balooning). One of my sister...

Hi ! Following the ARSEP publication, I wrote an e-mail to a scientist who works for ARSEP. I asked what was the Arsep plannig to do (specific studies, further research, clinical trials...) The answer was in brief, that everything as to be controlled, with a call for proposals, a talk with three wor...

The french MS association ARSEP released today an article on CCSVI (we were looking forward such a statement). This is important because french scientists now pay attention to CCSVI.

Very good news for us in France.

Good evening,

John-the-frog[/code]

That's a great article.
In France, CCSVI is a really important topic for patients, but we have difficulties to make things moving. I hope we can soon involve the media.
(This as been very efficient in Canada and the US, since money is planned to be spent for more research on CCSVI).

Thank you for the link. I had already read the threads, but I can't find any name (doctors). I prefer posting as a new topic since it's not obvious in the title "we had bad news and good news". I hope you were not ironic when you write you love "CCSVI, juste les faits, madame. I did i...

Hi,

Any people being diagnosed for CCSVI in France ?
Who are the doctors to meet ?

Best wishes

Jean

I can't find the paper neither. Nothing on the web. I get really impatient too.

Jean

Hi, I'm a french patient living in Lyon. I have an appointement next month in Paris with Dr Fanceschi (who works with Zamboni). WhyRwehere, if you could tell me more in PM (about the doctors you have met), I would really appreciate. http://csvi-ms.net/forum_fr is a brand newforum in french, made by ...

Hi,

Any news about Zamboni's last publication? (has it been released? Tomorrow?...)



Jean

Good evening everybody,

here is a link about CCSVI and MS : ccsvi-ms.net with a translation in FRENCH of the article "CCSVI : just the facts ma'ame".

best regards

Jean