Search found 26 matches

by mazza
Sat Jun 04, 2016 4:11 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 527911

Re: CCSVI and CCVBP

Such sad news. We have lost a very knowledgeable & supportive man.
by mazza
Tue Oct 02, 2012 3:51 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: New MS Types
Replies: 6
Views: 1143

Re: New MS Types

Well thought out and summarised Vesta. No wonder that it is so difficult to get a handle on this "disease".
by mazza
Wed Aug 08, 2012 10:13 pm
Forum: Introductions
Topic: another confused MS sufferer
Replies: 8
Views: 1539

Re: another confused MS sufferer

Hi Sophie, The book I have found most helpful is "Overcoming Multiple Sclerosis" by Professor George Jelinek, a doctor who himself has MS. It has been almost 15 years since I got the diagnosis and have avoided DMDs so far. I know we are all different but for me the progression has been very slow. We...
by mazza
Tue May 01, 2012 4:08 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Long time lurker...my journey begins Tuesday
Replies: 68
Views: 5787

Re: Long time lurker...my journey begins Tuesday

Yes, absolutely amazing.

I have been sitting on the fence since I joined this forum but am getting closer to jumping off. I have similar left sided issues to a lesser extent. The fear of maybe making things worse holds me back.

Please keep us posted on your progress.
by mazza
Tue Apr 10, 2012 3:48 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: What things make your MS symptoms feel worse?
Replies: 10
Views: 4126

Re: What things make your MS symptoms feel worse?

Shivering due to cold weather. This seems to affect muscles, making walking and co-ordinating my gait more difficult.
by mazza
Sun Dec 25, 2011 6:12 pm
Forum: General Discussion
Topic: How many had Back Problems before being diagnosed with MS
Replies: 21
Views: 3810

Re: How many had Back Problems before being diagnosed with M

Yes, herniated disc at L4/L5, but long before the diagnosis. Backache on and off for many years. Low back pain is a common ailment in the general public. Then there is the whole cervical spine story.... see Dr Flanagan's thread. As so many have said we have individual stories. Let's hope the puzzle ...
by mazza
Mon Apr 25, 2011 5:32 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 527911

Thanks for your advice and interest in my story Dr Flanagan. I am so happy that it drew you back to this thread for the benefit of us all.
by mazza
Fri Apr 22, 2011 5:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: CCSVI and CCVBP
Replies: 4794
Views: 527911

I agree wholeheartedly with everyone's sentiments. I have followed this thread since it started and believe Dr Flanagan's theories and explanations are a very large piece of the ms puzzle. Before you leave, and I hope you don't, can you recommend any NUCCA chiropractors in Sydney. Thank you for shar...
by mazza
Thu Jan 20, 2011 9:53 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Inclined Bed Therapy
Replies: 832
Views: 190910

It's been a year since I started sleeping inclined and the most noticable improvement has been in leg spasms when going to sleep. It doesn't happen anymore. I also feel less sinusy in the morning. As IBT is my only "therapy" apart from a Swank type diet, I'm sticking with it. Low temperature is an i...
by mazza
Wed Jan 12, 2011 1:08 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: "whining about neurologists"
Replies: 65
Views: 9970

Oh yes the patronising rant, I've heard it too. Quite insulting.

Guess we can vote with our wobbly feet...........
by mazza
Thu Jan 06, 2011 2:21 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: Misguided speculation
Replies: 39
Views: 4720

I am grateful for the open discussion and sharing of information and experiences on this site. I think great strides have been made in the last year. For 13 years I have resisted DMDs and have yet to make a decision about the procedure. I guess if I had more disability and symptoms I wouldn't hesita...
by mazza
Mon Jan 03, 2011 4:13 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani ASKS a question
Replies: 109
Views: 19944

Thanks jimmylegs and 1eye.

I forgot to mention that there is also a difference in skin colour of the weaker left arm and leg compared to the right. I thought this had to do with circulation but who knows?
by mazza
Mon Jan 03, 2011 2:27 am
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani ASKS a question
Replies: 109
Views: 19944

Re: doc asks

MS is about Loss, and from Loss comes Grief. zina[/quote] So true and there is no consolation that time will help. It's often the reverse. I don't know whether this has been mentioned before. I have more difficulty walking when I shiver. My weaker left arm and leg result in an odd gait. I wonder whe...
by mazza
Fri Dec 31, 2010 10:38 pm
Forum: Chronic Cerebrospinal Venous Insufficiency (CCSVI)
Topic: DrSclafani ASKS a question
Replies: 109
Views: 19944

Dr Sclafani asks a question

Living life as if there is a Damocles sword over your head. Fear that you have passed this on to your children. Feeling betrayed by your body. Having to concentrate on each step otherwise you trip over your own feet. Even on a good day knowing you are still on that rollercoaster ride of uncertainty.